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Heather
Forum Leader
Username: Heather
Post Number: 3236
Registered: 05-2003
| | Posted on Wednesday, February 09, 2011 - 01:44 pm: | 
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I have been waiting to update here until I get some lab results back from my new hematologist in Indianapolis. I saw her last week and she ordered more complete bloodwork than Mayo...more in depth for the APS. She said she does not diagnose people quickly with this disease...it is very difficult to correctly diagnose. She said she even has 2 patients that she knows beyond a shadow of a doubt that they DO have it but she could never prove it by their labs..odd. She is very intrigued by the interfering substance in my blood that keeps the Lupus panel from being done the normal way. It has always had to be sent or done by a special lab or in a special way..and I am assuming that is the one that is holding up my labs this week as well. She called and said all of them were not back yet and they would be a few days later than she said. So I should know something tomorrow or Fri. Will update on stuff then.
Meanwhile..we are going to a specialist in ankle surgery for my husband today. It never really just rains, does it? So he is looking at either replacement or fusion of his ankle..very soon.
Heather
Forum Leader - Living Organ Donation
Heather's Blog
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
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Hostess Rise'
Board Administrator
Username: Rise
Post Number: 15688
Registered: 05-2003
| | Posted on Wednesday, February 09, 2011 - 02:10 pm: |
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Hi Heather,
I think about you Very often. I am sorry you are dealing with so much at one time. You are an angel to so many people.
I wish you the best always. Give my regards to your hubby for me.
I will be waiting to hear about your results. Sounds like you have a great doctor.
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Heather
Forum Leader
Username: Heather
Post Number: 3237
Registered: 05-2003
| | Posted on Wednesday, February 09, 2011 - 09:23 pm: |
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Well the doctor we saw for Danny today does not do ankle replacement but did talk to us a little about ankle fusion. He is referring Danny to a doctor in Indianapolis and one also in Springfield is he wants to talk to 2 of them and then decide which direction to go. See if they both say the same thing or what.
It is nice to know I am thought about, Rise! I think about you as well. How are you these days? How is your hubby doing??? Anything new and exciting with you?
Heather
Forum Leader - Living Organ Donation
Heather's Blog
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
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Heather
Forum Leader
Username: Heather
Post Number: 3239
Registered: 05-2003
| | Posted on Thursday, February 10, 2011 - 08:41 pm: |
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Dr. called again..still waiting on some labs..I am telling you...mark my words..it is the Lupus testing....holding things up. They said they would call Monday.
Got some nice stuff in the mail today..my BILL from 3 days at Mayo..YIKES!! I am hiding it from Danny for a few days. I was not aware that they charge separately for your entire spine...so instead of 5,000 for the MRI it was like 15, 000..that was just my spine...then I had the brain and the face...2 more...then all the neuro tests and the labs..holy cow. My friend Robin guessed the amount right on the money...she is used to it by now...sigh. I wish I could have gone last year at the end..my insurance covered all MRI's..now I have to pay so much for each one. oh boy.
Heather
Forum Leader - Living Organ Donation
Heather's Blog
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
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LadyDi
Forum Leader
Username: Ladydi
Post Number: 2564
Registered: 03-2008
| | Posted on Thursday, February 10, 2011 - 11:24 pm: |
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What's wrong with Danny's ankle, Heather? I guess I must have missed something on that as didn't realize he was having problems. That would be nice if they could do the replacement to give him some kind of mobility. How is the medicine working that they gave you? Does it help the symptoms?
I can hardly wait til next week - I am guessing you are going to be in 40s the same as we are. We'll be breaking out the bikinis!
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Karen R.
Forum Leader
Username: Relivkaren
Post Number: 5237
Registered: 07-2007
| | Posted on Saturday, February 12, 2011 - 12:29 am: |
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Heather:
I know you have to be frustrated. Please let us know what the doc says as soon as you get your labs back. I do believe you have found a great doc. I just keep praying for you.
I also hope that you get some good information so that Danny can make the right decision about his ankle. I will pray for him too!
God Bless!
Karen
Dx: BOOP - May 2006. Rediagnosed with Bronchiolitis Obliterans Nov. 2006
Double lung transplant on Dec. 1st, 2009
Cleveland Clinic
Ohio, USA
Be kinder than necessary because everyone you meet is fighting some kind of battle. |
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Heather
Forum Leader
Username: Heather
Post Number: 3242
Registered: 05-2003
| | Posted on Tuesday, February 15, 2011 - 12:54 am: |
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Well my doctor finally called me. I thought it was nice that SHE herself called me..not her nurse which is usually what happens here. I don't recall the last time a doctor called me...to tell you the truth. Kinda nice. She talked with me about 20 min. She looked again over the notes from Mayo and also at the labs she ordered and is now in agreement with what Dr Osborne said and his treatment plan..with the Cellcept. Not really what I wanted to hear at all. I was hoping I did not have this. So I follow up with her in 4 months..and on the 22nd see my new Rheum. and the 3 docs will keep in touch with each other. I also asked for her to send me copies of notes and labs..I can't tell you how much I like this doctor. I feel finally like I have someone who is taking me very seriously and who listens and wants to help me and follow my case. I hope I like the other doctor as much.
So I guess it is pretty much official...I do have APS.
Danny has had problems with his ankle for years ..it comes and goes. Now it has been really bad. He is waiting for a call to see a surgeon.
NO BIKINIS on this gal, Diane!!!!!!!!!!!!
Heather
Forum Leader - Living Organ Donation
Heather's Blog
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
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Dottie Lessard
Forum Leader
Username: Dottie_lessard
Post Number: 145
Registered: 03-2009
| | Posted on Tuesday, February 15, 2011 - 01:03 am: |
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Hang in there Heather -I am so happy to hear you found this new doctor you like-that is So super important.
Keep having a voice for yourself girl and stay positive!
Wishing you the very best,
Dottie
PS-I am quite sure the beauty you hold within -and the outer beauty i see you have would ALL look amazing in a bikini!!!!!!! 
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Heather
Forum Leader
Username: Heather
Post Number: 3243
Registered: 05-2003
| | Posted on Tuesday, February 15, 2011 - 10:07 am: |
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Thanks, Dottie. I guess they say..beauty is in the eye of the beholder..haha....
Heather
Forum Leader - Living Organ Donation
Heather's Blog
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
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LadyDi
Forum Leader
Username: Ladydi
Post Number: 2570
Registered: 03-2008
| | Posted on Tuesday, February 15, 2011 - 10:13 am: |
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Almost 60 today Heather! Bikinis are calling! --- Just kidding!
I know what you mean though. I had to go to South Dakota one year with our loss control person to see one of my accounts. Little did we know, we had planned our vist the week of Sturgis! She was laughing about how we should get our leather halter tops and motorcycle ready for the trip so we could stop traffic. I politely informed her we would definitely be stopping traffic - and for all the wrong reasons!
Maybe I will just opt for a pair of flip flops today.......
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Hostess Rise'
Board Administrator
Username: Rise
Post Number: 15772
Registered: 05-2003
| | Posted on Tuesday, February 15, 2011 - 01:37 pm: |
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Dear Heather
Glad that you like your doctor. Well I do not know what to say exactly. You sort of had a feeling you had APS and now you know. What steps can you take now to stay as healthy as possible? That is how I look at all illness. It is what we can do to stay healthy that matters. Wishing you and your husband well.
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Heather
Forum Leader
Username: Heather
Post Number: 3244
Registered: 05-2003
| | Posted on Wednesday, February 16, 2011 - 12:19 am: |
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Rise really nothing I can do other than what you would do to prevent blood clots and hope and pray it is enough. I am on aspirin and Cellcept for this. I will have my blood work done every month now to make sure my bloodcounts are ok. If my counts get too low I will go off the Cellcept til they come up again..at least that is how it was explained to me at Mayo. I can do this, unlike transplant recipients..I have already asked the doctor if she would fill out forms if I need her to as far as not flying..she said she most certainly would do that. But in the future if I absolutely HAD to fly, she could give me an injection of anticoagulant before the flight.
Thank you all for your concern and for checking on me here.
Heather
Forum Leader - Living Organ Donation
Heather's Blog
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
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Karen R.
Forum Leader
Username: Relivkaren
Post Number: 5253
Registered: 07-2007
| | Posted on Friday, February 25, 2011 - 12:40 am: |
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Heather:
I am sorry that I am behind in posting. I have read your posts so I am keeping up.
So it's official - you do have APS. Well - because of you I had all my blood tests run again. I am not sure my PCP ordered the correct test for APS. He did Anti-cardiolipin. There are so many...I really need to see my Rheumy. That specific test came back negative. Yeah! He did tell me that it could come and go - I don't know if he knows what he is talking about?!!? He also did the tests for Sjogren's - SSA and SSB - those were REALLY positive. I also had a positive ANA. Have you seen that on your blood work results? Positive ANA basically indicates autoimmune disease of some kind. It's all really confusing.
I am sorry that you truly do have APS. I am positive that you can manage it and live a full life, but I am more concerned that APS doesn't really explain all of your symptoms. I hope this new doctor will continue to search for more answers.
In the meantime, try and relax, take your meds, and enjoy each day. That's all any of us can do. We have to learn to deal with all the struggles that life throws our way in the most positive way we can. You know that - you are a strong, positive person.
Keep us all up to date on you and Danny. As always - you are in my daily prayers.
God Bless!
Karen
Dx: BOOP - May 2006. Rediagnosed with Bronchiolitis Obliterans Nov. 2006
Double lung transplant on Dec. 1st, 2009
Cleveland Clinic
Ohio, USA
Be kinder than necessary because everyone you meet is fighting some kind of battle. |
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Heather
Forum Leader
Username: Heather
Post Number: 3246
Registered: 05-2003
| | Posted on Friday, February 25, 2011 - 10:46 pm: |
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Saw my new rheum. this week. I really like her as well. She is going with Mayo's treatment but also wants me to go on Plaquenil...but she wants more bloodwork before I start that one I guess. SHe tried to call me twice today..I called her once..phone tag. She left a message she would call this weekend (huh? really? a doctor?) but my labs were normal (monthly to check blood counts) but she wants to add more to that monthly stuff. Anyway..she, Mayo and the hematologist will work together and keep each other in the loop. cool. She is not so sure of all my symptoms either..one in particular she said we (they, her) need to do some research on that..I said PLEASE....so we will see. I mentioned my tooth problems I am STILL having..she mentioned Sjogren's...I said I had been tested and it was neg..she said it can come back neg but people still have the disease. And yes I have also been told your ANA can be pos. and neg..mine was actually neg. the last time they did it.
I think she thinks much differntly than my other rheum. he did not want to really treat me untill I exhibited more symptoms. This doc wants to treat my symptoms so I can live life and feel better.
Whole other story about my grandma and that ongoing journey.
Danny sees a specialist in Indy end of March on his ankle. In the meantime..local doc gave him Voltaren (sp?) cream to put on his ankle 4 times a day..it helps a lot.
Long day..I am tired. will write more later.
Heather
Forum Leader - Living Organ Donation
Heather's Blog
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
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Heather
Forum Leader
Username: Heather
Post Number: 3248
Registered: 05-2003
| | Posted on Monday, February 28, 2011 - 08:38 pm: |
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OMG....the grandma saga....Lord help us...especially my mom. Mom brought grandma home after the nursing home she was getting therapy in said she had not been making progress lately and medicare would not pay for her room anymore..so we either pay private pay prices or take her home and pay for home care. So the choice was a no brainer. I would much rather see her happy at home where she has been wanting to go...and pay someone to come into the home..than pay a nursing home even more money when all they do is take her to the bathroom and give her the same meds my mom was before her stroke when she was living with them. SOOOOOOOOO
She came home last Fri. evening and omg...I was there the entire day with my mom getting her ready, taking stuff home, and getting her home. The next morning...I called my mom and asked how things were going and I could tell by her voice I better get over there. I was actually in my car about 5 blocks from her house..headed somewhere else. I went there and helped her get grandma taken care of and in her wheelchair and settled. I did some laundry while my mom got dressed and showered..while she could. Then I did some dishes and stuff and stuck around til after lunch to help take care of her again before going home. I told mom (maybe too many times) she needed to make some phone calls Today (SAT.) and get some help lined up..at least to get her up in the morning and bathed and dressed and ready for breakfast so mom could also get a break and get herself ready. So she finally got someone that was recommended and I met her today. She knows what she is doing and I like her. I hope she works out and stays. What a task my mom has taken on. More than she thought it would be. I hope it is not too much for her physically because I just CANNOT do a lot of lifting and stuff..not with my back. I feel horrible not being able to step up and help more..I do what I can. So oh my....it has been a wild weekend. Today seemed better for mom with the helper that came in. I don't know how the rest of the day has gone...I ran errands and fell asleep for over an hour..I never do that!!
Heather
Forum Leader - Living Organ Donation
Heather's Blog
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
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Hostess Rise'
Board Administrator
Username: Rise
Post Number: 15836
Registered: 05-2003
| | Posted on Monday, February 28, 2011 - 09:04 pm: |
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Glad to hear your Grandma is home. always take care of yourself my dear.
blessings,
Rise'
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CiscoKidney07
Forum Leader
Username: Gregg
Post Number: 4534
Registered: 03-2008
| | Posted on Monday, February 28, 2011 - 10:15 pm: |
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Is Grandma participating in the therapy? That was what happened when my mother was sick. They gave her exercises to do and she would not do them!! It was like she reverted to childhood. That was why my sister wanted to put her in a nursing home. I could not stand the thought of my mother being in a nursing home, although in some cases, a person has no choice. I told my wife if she ever put me in a nursing home, I would haunt her for the rest of her life. LOL!! I been in a few when friends and clients were in there and I just don't like it. I am sure that things will work out for you, Heather. I will pray for you and your family.
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Heather
Forum Leader
Username: Heather
Post Number: 3249
Registered: 05-2003
| | Posted on Tuesday, March 01, 2011 - 01:12 am: |
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Just to clarify..it was not up to me where she lives...kinda sounded like I made the decision....but that was up to my mom. I would rather see her at home as long as she can be..and as long as it is not too much for my mom.
Heather
Forum Leader - Living Organ Donation
Heather's Blog
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
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LadyDi
Forum Leader
Username: Ladydi
Post Number: 2599
Registered: 03-2008
| | Posted on Thursday, April 07, 2011 - 11:45 am: |
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Heather, I know you have been trying to work through things going on medically with yourself and Danny. But wanted to let you know I was thinking about you and hope you are doing okay. It's finally spring in central Illinois which at least makes things a little brighter!
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Heather
Forum Leader
Username: Heather
Post Number: 3256
Registered: 05-2003
| | Posted on Friday, April 15, 2011 - 12:56 am: |
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My grandma did her exercises and cooperated with the therapists when she first came home..but is not wanting to do them anymore.
I try to take my mom out for a drive or something as often as she will go...and if I did not have the health issues I am dealing with...and they did not keep their house so darn hot...I could help more...but I cannot handle being there for too long..especially in my grandmas rooms....
So I am now up to the dosage of Mycophenolate that the doc. at Mayo suggested and also my new Rheum. put me on the generic form of Plaquenil...just last week. I feel like I take as many pills as my dad now. It is awful. I hate it.
Had to go back to the endodontist as the 2nd root canal I had done was killing me (it only had the first step done) . I was ready to pull the tooth..but he convinced me it just needed done...so I did it and it feels much better. Still sensitive to pressure though. Will be glad when all the tooth stuff is over....been dealing with that since Oct. or before.
Decided to get my hair cut short...what a nightmare...took 3 cuts in 8 days to get something I could live with. but I like it and it feels so much better. Dont' think I will ever grow it back out long again. Got tired of pulling it up in a pony tail all the time...might as well have it short. some days I can't get it to do what I want..but oh well. It is short enough that if I just kinda mess it up and pat it down..it looks like it is supposed to be like that..haha.
have some more family issues going on..pretty serious ones I can't talk about really.
My husbands cousin who was 51 died this last Tues. He was an alcoholic for years and I think everything just shut down. He tried to get into rehab but they had no room and he died waiting. His docs I guess said the treatment may have killed him anyway...he was that bad. Very sad.
I am doing ok. Since increasing the Mycophenolate and starting the Plaquenil, I have had a lot of nausea. I don't know if it is that or me coming down with something. Time will tell. I am handling the warmer weather ok so far. When it got warm the first time this spring early...wow did that make things worse for me. but lately I have been doing ok...not wonderful but ok...
I am tired and that is all I can think to write right now.
Thank you Lady Di for checking in on me!!
Heather
Forum Leader - Living Organ Donation
Heather's Blog
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
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Hostess Rise'
Board Administrator
Username: Rise
Post Number: 15964
Registered: 05-2003
| | Posted on Friday, April 15, 2011 - 08:30 am: |
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Hi Heather
Sorry to hear about so much happening all at once. How much of Mycophenolate are you taking (cellcept or Myfortic)? My doctors lowered my dose after many years to five hundred twice daily.
Glad to hear you are happy with your hair. Feel grateful that you do not have to worry about how it looks now. I could never where my hair short unless I blow it out and that hardly happens for me.
Wishing you well and that of course includes your family.
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Heather
Forum Leader
Username: Heather
Post Number: 3258
Registered: 05-2003
| | Posted on Friday, April 15, 2011 - 10:21 am: |
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Thanks, Rise. I am now on 1000 twice daily of Mycophenolate (cellcept).
I have not had my hair this short since grade school....and it feels great not to have it in my face and have to mess with it much. I am very grateful I don't have to do much to make it look ok. I love that.
How are you doing, Rise?
Heather
Forum Leader - Living Organ Donation
Heather's Blog
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
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DAP1122
Forum Leader
Username: Dap1122
Post Number: 2542
Registered: 05-2008
| | Posted on Friday, April 15, 2011 - 10:57 am: |
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Heather, Thanks so much for the update!! Much appreciated! How about a pic of the new haircut. Bet it looks awesome.
Be well and God Bless!!
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Heather
Forum Leader
Username: Heather
Post Number: 3260
Registered: 05-2003
| | Posted on Friday, April 15, 2011 - 12:17 pm: |
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Sure I will post a pic ...just got off the treadmill....so NOT right now..haha.
Heather
Forum Leader - Living Organ Donation
Heather's Blog
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
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Heather
Forum Leader
Username: Heather
Post Number: 3265
Registered: 05-2003
| | Posted on Wednesday, April 20, 2011 - 01:42 pm: |
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Well taking a break from the treadmill for a few...trying out husbands recumbant bike. Not sure I like it. I hope it shaves off some of the hip area and not just the quads and hamstrings...whaddaya think, Cisco?
Heather
Forum Leader - Living Organ Donation
Heather's Blog
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
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LadyDi
Forum Leader
Username: Ladydi
Post Number: 2618
Registered: 03-2008
| | Posted on Friday, April 22, 2011 - 07:14 pm: |
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Hey Heather! Sorry the medication is causing side effects for you.
I think you would look really cute in short hair! I am looking forward to seeing the photo! I like my hair a little shorter in the summer months because it is so much cooler. And, like you said, you can just "wash and go".
I have also been trying to take advantage of the pool at the gym, so short hair is a plus. I have belonged to the gym for over 4 years and never did take advantage of the pool. But I have started going on Sunday afternoons for about an hour. It is real quiet, usually only one or two other people in the pool. Kind of like your own private lagoon! I told Gregg I can't believe I didn't try the pool out before now!
Have a blessed Easter, Heather! Talk to you soon!
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Heather
Forum Leader
Username: Heather
Post Number: 3266
Registered: 05-2003
| | Posted on Friday, April 22, 2011 - 10:19 pm: |
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Not sure how my face would do in chlorine water. I suppose I could just exercise in the water and not get my face too wet..haha. Wondered about salt water also. This Rosacea kicks my butt sometimes. I hate it so much.
I have been taking the Mycophenolate and the Hydroxychloroquine? about an hour apart and the latter (not wanting to type that one too often) with toast in morning and supper at night. I am feeling better..
I was reading on the Lupus website forums the symptoms and stuff the people with Lupus have..omg....I have most of them. Don't know if they are just normal symptoms for any or most autoimmune diseases or what. I am so tired all the time, unfocused, can't remember things (really bad) have weird stabbing pains in different areas..not just joints...but that could be the APS (clots?). I so abhor taking these meds. I just want to go back to when all I had was some back pain....seems a lifetime ago. I so look forward to spring and summer..but now I cannot be in the sun...not just the meds..but also because of the malignant skin cancer....and my rosacea......and my face gets worse when the seasons change I think...
How short is your hair Diane? I love having it short..for sure. I can wear it with no product in it..don't like to if I go anywhere..but I can...or I just put gel in it and I am good to go. I was putting other gunk..(paste or putty or fiber gum)..which is ok sometimes but I get tired of having all that on my head....
anyhoo..the pool sounds fun. Enjoy!!
Heather
Forum Leader - Living Organ Donation
Heather's Blog
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
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CiscoKidney07
Forum Leader
Username: Gregg
Post Number: 4648
Registered: 03-2008
| | Posted on Friday, April 22, 2011 - 11:42 pm: |
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Heather, what I can tell you that it is easier on your joints. I don't think it comes close to burning as many calories as the treadmill does. Heck, if the treadmill does not bother you except for being boring, throw some music on your ears and do it!! When I really want to get with it, that is what I do.
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Heather
Forum Leader
Username: Heather
Post Number: 3267
Registered: 05-2003
| | Posted on Saturday, April 23, 2011 - 01:43 am: |
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yeah..I noticed the low calorie count on that bike..I was like..HUH? I have gone 2 miles on here and burned like ...I don't know...60 calories? I can't run on the treadmill like I used to before I hurt my hip but I walk at 3.6 or 3.7 right now. I don't want to throw my back out again..I may just rotate the 2 and do the bike twice so my legs will carry me up the stairs when I am done each time..it is crazy..they feel like jello...
Heather
Forum Leader - Living Organ Donation
Heather's Blog
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
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CiscoKidney07
Forum Leader
Username: Gregg
Post Number: 4649
Registered: 03-2008
| | Posted on Saturday, April 23, 2011 - 02:34 pm: |
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I learned that you have to do what you can do and no more. No sense in hurting yourself because then it takes awhile to be able to exercise again. You go girl. Good luck!
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Heather
Forum Leader
Username: Heather
Post Number: 3270
Registered: 05-2003
| | Posted on Monday, April 25, 2011 - 01:10 am: |
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Well I must have a brain fart again...tried to figure out how to start a new thread...and for the life of me...can't remember. So here is me with my short hair, anyway.
Heather
Forum Leader - Living Organ Donation
Heather's Blog
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
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Hostess Meagan
Forum Leader
Username: Newheart14
Post Number: 1883
Registered: 01-2009
| | Posted on Monday, April 25, 2011 - 01:28 am: |
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I have those frequently Heather. 
I love your new do. You look gorgeous and it really accentuates your beautiful blue eyes.
I hope you're feeling a little better.
Heart-Liver Transplant - February 14, 2008
TGH, Toronto, Canada
Idiopathic dilated cardiomyopathy 1991 and CHF
- Most of the important things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie
- Bumps in the road can sometimes be mountains, so I have learned to climb mountains - Meagan
Meagan's Blog |
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DAP1122
Forum Leader
Username: Dap1122
Post Number: 2575
Registered: 05-2008
| | Posted on Monday, April 25, 2011 - 09:02 am: |
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Heather,
What a great look!! You look fabulous!!
I also hope you are feeling better.
Be well and God Bless!!
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LadyDi
Forum Leader
Username: Ladydi
Post Number: 2619
Registered: 03-2008
| | Posted on Monday, April 25, 2011 - 06:57 pm: |
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Heather, your hair is GORGEOUS! The cut really opens up your face and accents your eyes!
Good call on getting it cut!
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Heather
Forum Leader
Username: Heather
Post Number: 3271
Registered: 05-2003
| | Posted on Tuesday, May 17, 2011 - 08:23 pm: |
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Well I am just BEYOND confused...what season is it????? Jeez...................my fingers are freezing....oh..that could be the Raynaud's.. but seriously...where is the sun and warmer temps...lows in the 30s..are you kidding me????
Heather
Forum Leader - Living Organ Donation
Heather's Blog
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
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LadyDi
Forum Leader
Username: Ladydi
Post Number: 2625
Registered: 03-2008
| | Posted on Thursday, May 19, 2011 - 03:53 pm: |
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Hey Heather! It is good to see you on here! Cisco and I were just talking about you last night and hoping you were doing okay.
Know what you mean about the weather - one minute it's August and the next it's March - gotta love Illinois!
Cisco and I have been battling a darn respiratory virus that has been going around. I got it first and then gave it to him. The virus didn't last long, but it kicked up my asthma so that has been the worst part. I am hoping things warm up and it gets back to normal soon.
How have you been? How is Danny?
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Hostess Rise'
Board Administrator
Username: Rise
Post Number: 16209
Registered: 05-2003
| | Posted on Thursday, May 19, 2011 - 04:49 pm: |
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Hi Heather,
I told you on FB how much I loved your hair but did not see the photo here.
Stay warm!
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Heather
Forum Leader
Username: Heather
Post Number: 3272
Registered: 05-2003
| | Posted on Friday, May 20, 2011 - 01:31 am: |
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It warmed up today and the sun actually shined at the same time!!
Thanks, Rise.
Diane and Gregg...gosh..that is sure going around. I had it in March I think. Hope you guys are feeling better soon.
Danny is doing well.
I just had the last visit to the endodontist yesterday..HOPEFULLY. Now I just need a perm filling put in and then the 2 crowns.
Heather
Forum Leader - Living Organ Donation
Heather's Blog
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
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Heather
Forum Leader
Username: Heather
Post Number: 3276
Registered: 05-2003
| | Posted on Thursday, June 09, 2011 - 12:24 am: |
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Well I guess I got the warmer temps I was looking for in the above post. JEEZ. Did we have spring?...oh yes...that was those 6 weeks of rain...and storms and rain..and rain..............................now it feels like a very hot August in June. WOW. The sun is sorta scorching hot...no kidding. I make darn sure I have my sunblock on and my hat...I am doing pretty good so far..the last few days my face has been burning and breaking out..sure from the heat and the sweating...and whatever else..
oh and the BUGS....my gosh. I don't understand. I can be sitting with 4 other people and the bugs are all on me...no one else is swatting at them...I spray myself, wear the band thing..have the OFF fan thingy..and they STILL bother me. I am beginning to wonder if it is one of my meds I started this year. It is beyond irritating.
Just got done picking out new carpeting. I hate big decisions like that..I mean it is big money and you live with it for a long time. I thought about just having the hardwood refinished under the carpet..but I like the warmth in the winter...don't like cold floors.
Have some huge things I am having to face with my family here very soon...I mean..my parents and I having to deal with something that was brought to our attention. ...it is not going to be easy or pleasant and it is not anything we want to do..but we have to. I really don't want to go into it as I think my family would not want me sharing it. Just suffice it to say....it is stressful.
Grandma is still plugging away. She will be 103 in Nov. Mom is so stressed and looks so exhausted all the time.
I have my second appt. with the hematologist on Fri. She probably forgot all about me by now. Have not been there since Feb. My Rheum is sending bloodwork orders with me (they are both in Indy)..she wants repeats done there on my CMP and some other stuff. I have some labs elevated more than once..but not every time..kinda has me nervous....
Well other than that...not much else to report. I do think...at least right now..that I am doing ok and tolerating the heat better than I thought I would..as far as my burning. So maybe the meds are helping. The Rosacea is still a freaking nightmare.
Heather
Forum Leader - Living Organ Donation
Heather's Blog
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
DONATE LIFE |
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