| Author |
Message |
Tara
Member
Username: Flnts
Post Number: 29
Registered: 01-2012
| | Posted on Sunday, April 15, 2012 - 08:53 pm: | 
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Hi Everybody,
So my husband graduated from the transplant clinic on March 27th and doesn't see his nephrologist til May 2nd. Of course, his original nephrologist has handed him off to someone else because he says that he doesn't feel comfortable with the transplant drug management. So my question is have any of you had canker sores post transplant? My husband has been doing great but recently has multiple canker sores. They discontinued his valcyte on April 1st but other than that there have been no changes. Thanks for any input.
Tara |
Alim
Member
Username: Alim
Post Number: 7
Registered: 04-2012
| | Posted on Sunday, April 15, 2012 - 09:23 pm: |
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Tara,
I was transplanted last dec 2 and the sat 8 weeks I have had many canker sores too! My valcyte eas dc. I see the transplant doc tomorrow and will let you know what they say?
Ali |
papillonbleu
Forum Leader
Username: Papillonbleu
Post Number: 2209
Registered: 10-2007
| | Posted on Monday, April 16, 2012 - 07:12 am: |
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Dear Tara,
I had once after my transplant what may have been canker sores on the sides of my mouth and up behind my upper teeth. The dentist gave me some ointment to put on it although I am not sure if this helped or not. I also soon after developed very painful sores on my tongue. To dull the pain some, I tried to used something like a Chloraseptic spray to help numb the areas so that they were not as uncomfortable. I now use only use extra soft tooth brushes.I mostly seemed to just have to ride it out and put up with it until it ran its course. I have not had the problem again. .I hope your husband may soon obtain some relief. I will keep you both in my thoughts and prayers. Many hugs.
Bobbiejo
Forum Leader-Multivisceral
dx: GERD 1995, gastroparesis 2002, pseudo-obstruction of the bowel 2004
multivisceral transplant, 6 organs, 10/06/05
University of Miami/Jackson Memorial Hospital
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Joan
Member
Username: Coco1999
Post Number: 152
Registered: 08-2008
| | Posted on Monday, April 16, 2012 - 08:39 am: |
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I had my kidney TX almost 11 years ago. Now I started having blisters on my mouth. I tried B2 and it works for me.
Joan
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Rocket Heart
Member
Username: Rocketheart583
Post Number: 652
Registered: 08-2007
| | Posted on Tuesday, April 17, 2012 - 08:41 am: |
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Tara - did some research on cancor sores after kidney transplant - here's what I found:
Herpes-simplex virus types l and II: These viruses most often infect the skin but can also occur in other areas, such as the eyes and lungs. Type I typically causes cold sores and blisters around the mouth, and type II causes genital sores. Herpes is an infectious disease and can be
transmitted sexually. Herpes infections in transplant patients are not necessarily transmitted sexually. Most herpes simplex infections are mild, but occasionally they can be severe. Although there is no cure for herpes, it can be treated. Depending on the severity of the infection, the
treatment is either topical cream, oral medication or intravenous medication. Symptoms of herpes include feeling weak and having painful fluid-like sores in your mouth or genital area. Women should be aware of any unusual vaginal discharge.
Rocket Heart
Tom Emahiser
Waterville, Oh
Heart Failure
Heart Txplt 1/26/05 University of Michigan |
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Joe Berry
Forum Leader
Username: Joe910
Post Number: 319
Registered: 08-2008
| | Posted on Tuesday, April 17, 2012 - 08:25 pm: |
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I too had many of them from about month 3 thru month 6. I still have them occasionally, but for those three months they were plentiful. I was given Valtrex first. It did nothing. They gave me acyclivor cream (Zovirax) as a topical. It was quick relief. I still have the little tube and use it whenever I feel one coming on. They never last more than 24 - 36 hours. The first time I used it I had at least 10 around my mouth and nose. Two days later, I had none.
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Tom Butler
Member
Username: Butltc
Post Number: 1
Registered: 04-2012
| | Posted on Friday, April 20, 2012 - 09:48 am: |
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I'm plagued with apthous ulcers, too. These are more than just sores on the surface that go away in a couple days. Mine eventually form deep holes in the tissue that reach into the nerves and glands in my neck.
At this moment I've got five active lesions firing on all cylinders, and the pain is incredible. I'm even on oxycontin for the nerve and gland pain and eat nothing but soft foods and nothing acidic. Topical treatments only last a few minutes.
Stress seems to bring them on, but I also had my prograf dose increased recently and noticed more after that happened, too.
These things are killing me! |
missamber
Member
Username: Missamber
Post Number: 109
Registered: 05-2008
| | Posted on Monday, April 23, 2012 - 03:16 pm: |
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hi, I also had a kidney transplant (4 years ago) and was on valcyte the 1st year. I had very bad sores in my mouth, similar to what Tom describes. They were very painful, even drinking water would burn. After months of dealing with these and trying lidocaine cream to numb, my doctor prescribed a "rinse" that they give cancer patients that going through chemo. The rinse was a combination of:
1) Nystatin mouth rinse
2) Benadryl (liquid form)
3) milk of magnesium
I would swish a small amount in the morning and after meals. It was a miracle because the sores vanished forever.
Might want to ask your doctor if you can try this with your sores.
| Kidney Transplant 2008. My brother donated. |
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Anne
Member
Username: Buckeye_4_life
Post Number: 206
Registered: 03-2008
| | Posted on Tuesday, April 24, 2012 - 01:46 pm: |
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They called that Magic Mouthwash! I had a few horrible sores from rapamune in my mouth. Worked like a charm!!
Anne
kidney recipient 3/11/96, deceased donor, John L.
- dialysis started 11/15/07
son Billy gave me the gift of life May 6, 2008 at The Ohio State University! Amazing!
Doubly blessed!! |
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