Post Number: 21
|Posted on Tuesday, March 20, 2012 - 08:59 am: ||
I'm wondering if any of you have been transplanted due to PSC? I was transplanted at the age of 23 after 17 years of having PSC.
Now my sister is getting married, and I'm thinking about children as well, but I cannot live with knowing I passed PSC onto any of my or my sister's children. Is there a gene for it? Does anyone know? I'm seeing a genetic specialist at the Cleveland Clinic in April but am kind of curious what any of you may know about this. Thanks!
Post Number: 14
|Posted on Tuesday, March 20, 2012 - 09:23 am: ||
Amanda, I was transplanted August 21, 2011, in St. Louis. I was diagnosed with U/C, when I was around 30 yrs. old. I am now 49. At that time, my liver enzymes show a possible problem, which ended with a diagnosis of PSC, in 2000. My wife (Leah) and I decided not to have children early in our marriage, in 1991. This decision was not totally based on having the U/C and possible PSC, but it was something we both thought about. I know there is no definite cause for either of these diseases, but as you know, genetics does play a part. Leah and I have been following your journey for a while, and wish you all the best. Hugs!
U/C, 1993, PSC, 2000
Liver/Kidney transplant 8/21/11
St. Louis University Hospital
Post Number: 318
|Posted on Tuesday, March 20, 2012 - 08:43 pm: ||
I had my first PSC symptoms in 1987 when I began itching, became jaundiced, had elevated liver enzymes and was very tired. I was not diagnosed until 1990 when I had the same set of symptoms. I was transplanted 10-17-2007.
I am now in the best health I have ever been. I have been told by my physicians that PSC is not inherited, I have read the same from other sources, I also had Hemochromatosis. I had both of my children go in for testing. Both passed - liver enzymes and Iron were normal. Both are over 30 now.
You are going to a great place for answers with a lot more credibility than mine. Hope you find the answer you are looking for.