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TransplantBuddies.org Forums » Kidney - Pancreas Transplant » Archive through March 13, 2012 » gout « Previous Next »
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ivy
Member
Username: Norman1

Post Number: 40
Registered: 02-2012
Posted on Saturday, March 10, 2012 - 12:22 pm:   Edit Post Delete Post Print Post

i cannot understand why i get gout? my uric acid is under 400 i take allopurinol 200mg daily eat vegatarian and don't drink alcohol and my creatinine is still pretty good 124-140??

Any ideas??
keith elliott
Member
Username: Keith_elliott

Post Number: 221
Registered: 11-2010
Posted on Monday, March 12, 2012 - 07:23 am:   Edit Post Delete Post Print Post

This isn't meant to be rude and may just be a silly question .. but are you 100% sure that it's gout and not something similar (eg pseudogout or something else).

As I understand it, the crystals that form in joints for gout are urate based and those that form in pseudogout are calcium based.

If it were pseudogout then that might explain the 'normal' urate levels.

The treatment for psuedogout, not surprisingly, is to take steroids ... and they seem to work for you (albeit with nasty consequences etc)

Also I think you mentioned that sometimes your calcium levels run upper end to high ?

I guess the only way to tell for sure is for a doctor to take a sample of the fluid in an affected joint during a flare and have it tested.

If it were psuedogout then maybe there is a different way of managing your diet to help avoid it (I don't know tbh .. I've only ever had the horrid normal gout).

Not sure if this helps but I guess it's a possible explanation :-)

take care
Keith
ivy
Member
Username: Norman1

Post Number: 41
Registered: 02-2012
Posted on Monday, March 12, 2012 - 10:05 am:   Edit Post Delete Post Print Post

i thought the same keith, and asked Dr duds but he said no but that was befroe trying colchicine which didnt work.

Hopefully seeing him on thursday in bristol if i am well enough to commute.
ivy
Member
Username: Norman1

Post Number: 42
Registered: 02-2012
Posted on Monday, March 12, 2012 - 10:32 am:   Edit Post Delete Post Print Post

i kinda figure it probably is regular gout ,as psudogout is normally a knee thing to start with, and colchicine is prescribed for psudogout also.

I imagine the lower dose 2 x 500mcg of gout just isn't strong enough for me, and this was probably the worse gout i have ever had. And left it a day before treating so i think you have to nip it in the bud at first twinge otherwise it takes much longer to go.

Also i believe colchicine is much slower acting on the inflammation than pred especially at lower doses.

But thanks for the input, always good to get another angle on it.

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