Post Number: 2
|Posted on Wednesday, September 02, 2009 - 05:33 am: ||
Hello My name is Deborah. All my life I have taken good care of my body. After many years I had my son when I was 36. I felt fine...then I started having gall bladder attacks and had to have my gallbladder out when he was two. I had my own business..and seemed fineMy little son was in first grade when I started feeling bad. WE meaning my family and my MD chalked it to stress and early menopause. In February I was diagnosed with PBC and told that within 10 years I would need a liver transplant. It was so unreal..I laughed because I was sure I had pancreatic cancer. That was in February, In April I had a varicese bleed and was flown from our small hospital to a trauma center. I stayed there for almost a week. The good thing was that I got new and better drs who took care of me so well. I was put on the Liver transplant list atUNC @ Chapel Hill. My surgeon there told me it would be about 9 months before I got my transplant. It was 10. My MELD score went from16 to 24 within a week. My kidneys were shutting down. I got my first liver and woke up in ICSU within 24 hours I was doing great. Then I was told that it had a blockage. I stayed in the Hospital for 3 more weeks waiting for another transplant. Finally I got one, but it was asleep, so to speak, I was in a coma for 5 days at which time I was put on dialysis. When I finally woke up I could not speak, raise my head or my left arm. I came home 3 weeks later..The drs told me I had the genes of Superman. When I saw my original surgeon again his first words were I am so glad you are alive! So am I ... http:aftertransplant.blogspot.com
Post Number: 10254
|Posted on Wednesday, September 02, 2009 - 12:27 pm: ||
Welcome Deborah to TransplantBuddies
What a wonderful story-thank you for sharing. You are not alone in this transplant walk. We are all in this together. I hope you get to know the wonderful members who visit daily.
Post Number: 3489
|Posted on Wednesday, September 02, 2009 - 01:37 pm: ||
Welcome to Transplant Buddies! Goodness! You certainly went through a lot. I am so happy that the second liver worked and that you are alive!! Praise God for that!! I am waiting on a double lung transplant so I have a lot to go through yet.
I hope you continue to visit and share more of your story with us. We are looking forward to getting to know you.
Dx: BOOP - May 2006. Rediagnosed with Bronchiolitis Obliterans Nov. 2006
Listed Feb 2008 - Waiting on double lung transplant at Cleveland Clinic
Be kinder than necessary because everyone you meet is fighting some kind of battle.