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Message |
Deborah
Member
Username: Deborah28763
Post Number: 2
Registered: 09-2009
| | Posted on Wednesday, September 02, 2009 - 05:33 am: | 
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Hello My name is Deborah. All my life I have taken good care of my body. After many years I had my son when I was 36. I felt fine...then I started having gall bladder attacks and had to have my gallbladder out when he was two. I had my own business..and seemed fineMy little son was in first grade when I started feeling bad. WE meaning my family and my MD chalked it to stress and early menopause. In February I was diagnosed with PBC and told that within 10 years I would need a liver transplant. It was so unreal..I laughed because I was sure I had pancreatic cancer. That was in February, In April I had a varicese bleed and was flown from our small hospital to a trauma center. I stayed there for almost a week. The good thing was that I got new and better drs who took care of me so well. I was put on the Liver transplant list atUNC @ Chapel Hill. My surgeon there told me it would be about 9 months before I got my transplant. It was 10. My MELD score went from16 to 24 within a week. My kidneys were shutting down. I got my first liver and woke up in ICSU within 24 hours I was doing great. Then I was told that it had a blockage. I stayed in the Hospital for 3 more weeks waiting for another transplant. Finally I got one, but it was asleep, so to speak, I was in a coma for 5 days at which time I was put on dialysis. When I finally woke up I could not speak, raise my head or my left arm. I came home 3 weeks later..The drs told me I had the genes of Superman. When I saw my original surgeon again his first words were I am so glad you are alive! So am I ... http:aftertransplant.blogspot.com |
Hostess Rise'
Board Administrator
Username: Risa
Post Number: 10254
Registered: 05-2003
| | Posted on Wednesday, September 02, 2009 - 12:27 pm: |
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Welcome Deborah to TransplantBuddies
What a wonderful story-thank you for sharing. You are not alone in this transplant walk. We are all in this together. I hope you get to know the wonderful members who visit daily.
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Karen R.
Member
Username: Relivkaren
Post Number: 3489
Registered: 07-2007
| | Posted on Wednesday, September 02, 2009 - 01:37 pm: |
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Deborah:
Welcome to Transplant Buddies! Goodness! You certainly went through a lot. I am so happy that the second liver worked and that you are alive!! Praise God for that!! I am waiting on a double lung transplant so I have a lot to go through yet.
I hope you continue to visit and share more of your story with us. We are looking forward to getting to know you.
God Bless!
Karen
Dx: BOOP - May 2006. Rediagnosed with Bronchiolitis Obliterans Nov. 2006
Listed Feb 2008 - Waiting on double lung transplant at Cleveland Clinic
Ohio, USA
Be kinder than necessary because everyone you meet is fighting some kind of battle. |
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