| Author |
Message |
Renee'
Member
Username: Polcherr
Post Number: 4
Registered: 01-2012
| | Posted on Friday, May 18, 2012 - 06:11 pm: | 
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I have obliterative brochiolitis and RA, and found out from a transplant coordinator that I am not a candidate for a lung transplant because of the RA. This is the only hospital I have check with so far, but I am wondering if anyone has every heard of this? I plan to look into other transplant centers to find out if this is something that is a negitive at all the places of not. Please let me know if you are someone who had/has RA and have been OK'ed for transplant |
Happy2Bhere
Forum Leader
Username: Happy2bhere
Post Number: 4589
Registered: 02-2008
| | Posted on Friday, May 18, 2012 - 10:10 pm: |
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Renee" where are you located, what country, what state, which city?
Someone can better answer your questions.
Ol' Bob
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DAP1122
Forum Leader
Username: Dap1122
Post Number: 3351
Registered: 05-2008
| | Posted on Saturday, May 19, 2012 - 07:11 am: |
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Renee,
I don't know about RA, but the lung transplant team @ Cleveland Clinic, in Cleveland Ohio takes on some of the most difficult lung cases in the world.
~ DAP
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Renee'
Member
Username: Polcherr
Post Number: 5
Registered: 01-2012
| | Posted on Saturday, May 19, 2012 - 07:40 am: |
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oh, sorry, I probably should have said that. I am from central Minnesota and I went to the University of Minnesota/Fairview Hospital.
Thanks for your replys,
Renee' |
Renee'
Member
Username: Polcherr
Post Number: 6
Registered: 01-2012
| | Posted on Saturday, May 19, 2012 - 07:42 am: |
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oh, sorry, I probably should have said that. I am from central Minnesota and I went to the University of Minnesota/Fairview Hospital.
Thanks for your replies,
Renee' |
Renee'
Member
Username: Polcherr
Post Number: 7
Registered: 01-2012
| | Posted on Saturday, May 19, 2012 - 07:44 am: |
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oh, sorry, I probably should have said that. I am from central Minnesota and I went to the University of Minnesota/Fairview Hospital.
Thanks for your replies,
Renee' |
nish
Member
Username: Rickysyfee
Post Number: 152
Registered: 06-2008
| | Posted on Saturday, May 19, 2012 - 07:45 am: |
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I second the Cleveland clinic but while you are in Cleveland the service at university hospitals is great
Transplant~7/01 (living donor)
Dialysis- CAPD, APD,In center hemo and SIHD
Transplant~ 8/07 (deceased donor) |
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Renee'
Member
Username: Polcherr
Post Number: 8
Registered: 01-2012
| | Posted on Saturday, May 19, 2012 - 09:59 am: |
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but wouldn't we almost have to move to that area for 2 years for follow up appointments after the transplant? That is my concern. We can, both of us work from home and can do that, but it would be a hardship to pay for 2 places and all the medicalstuff too. |
DAP1122
Forum Leader
Username: Dap1122
Post Number: 3354
Registered: 05-2008
| | Posted on Sunday, May 20, 2012 - 06:29 am: |
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I don't think that would be necessary. For heart transplants you have to stay around for about 4 weeks or the 4th biopsy, then you can travel back & forth for appointments. Some folks transfer quickly to a center closer to home after transplant. Each center will most likely have it's own protocol, pre and post transplant. (You may want to ask this question in the heart/lung forum too).
I wish you well in your search.
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papillonbleu
Forum Leader
Username: Papillonbleu
Post Number: 2230
Registered: 10-2007
| | Posted on Monday, May 28, 2012 - 07:31 am: |
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Welcome, Renee'! I do not have experience with lung transplants, but because my type of transplant has not ever been done in my state, I have to communicate with my transplant team through long distance. Mainly my local doctors keep my transplant team informed of how I am doing such as through the results of lab work and I send in a monthly blood test I do my self to test for rejection. If I have any questions or concerns I can use the phone or the internet to reach my transplant team. I had to stay about a month down where I had my transplant after I got out of the hospital, and except for when I went down to have my ileostomy closed (which was placed during the transplant surgery) I have been able to stay here locally for all my care while still keeping my transplant team informed of everything so that they can have the final say. I do not know how this would work out for a lung, but perhaps something can be worked out for you. I wish you the best.
Bobbiejo
Forum Leader-Multivisceral
dx: GERD 1995, gastroparesis 2002, pseudo-obstruction of the bowel 2004
multivisceral transplant, 6 organs, 10/06/05
University of Miami/Jackson Memorial Hospital
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