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Message |
Donna Martin
Member
Username: Jackson
Post Number: 3
Registered: 05-2010
| | Posted on Saturday, July 10, 2010 - 10:08 am: | 
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As we prepare for my granddaughters transplant on the 21st of this month. I know we need to get her the med ID bracelet and I have looked at a few.
Some of the ones I have looks at don't say Kidney transplant so I was wondering is there standard wording that need to be put on?
If you have a bracelet can you tell me what was put on yours and where you would suggest ordering it from?
Any help would be appreciated as she is 3 so I would guess we will be ordering more than one of these for her.
One more question as I am also the donor I understand I may need one but not sure what wording need to be on mine, any help would be wonderful. |
Hostess Rise
Board Administrator
Username: Rise
Post Number: 13616
Registered: 05-2003
| | Posted on Saturday, July 10, 2010 - 12:23 pm: |
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Hello Donna
http://www.creativemedicalid.com/
I have never bought from this company, we just swap links and the lady who runs the site had a kidney transplant. I believe she received her kidney from her Mom. I am not sure about the details just relying on my memory.
On your bracelet, It is best to have your name, diagnosis, transplant and mention any allergies on your bracelet.
Best regards
Rise'
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05
Debra Fertel MD- Med. Dir. Lung Transplant/Pulmonary Hypertension Programs
Jackson Memorial Hospital
Si Pham MD, Professor of Surgery, Dir. of Thoracic Transplant & Artificial Heart Program-Miam Transplant Institute
Anas Hadeh MD, Cleveland Clinic, Weston, Florida
CF consultant- Critical Care and Sleep Medicine
Sharing Knowledge is an Invaluable Experience
Transplant Friends & Chat
Questions- Contact Hostess Rise' |
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Cora
Member
Username: Cora
Post Number: 169
Registered: 06-2007
| | Posted on Saturday, July 10, 2010 - 12:27 pm: |
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I have always had MedicAlert. I know the Canadian Foundation is very active and I found the US version: http://www.medicalert.org/
I got my first bracelet (my folks ordered it) in 1966 when I was 2 1/2. Basically you provide the information and they will customize the bracelet for you. They maintain a database with all the info you provide (allergies, meds, doctors, etc) and have a 24 hour line with the phone number on the bracelet for emergency personnel to call for info. My bracelet says:
MI: stents
Kidney tx
Pancreas tx
Immunosuppressed
Drug allergies
######### (my personalized number)
And then the phone number.
You can fit an awful lot on one small tag and if you are feeling extravagent you can get a gold or silver one for special occasions (got one from my folks for my 40th birthday). They do have an annual membership fee, but you can call them at any time to update the info and they will always send a new, personalized wallet card with the changes.
While I have been fortunate enough to have never actually had to use mine in almost 45 years, I do get a great sense of security knowing that the ID and info associated with it are always up to date.
For your granddaughter, they come in children's sizes and I've always found them esthetically pleasing. For yourself, it wouldn't be a bad idea either and they can help you with the exact wording.
Hope this helps a bit.
Cora
Dx with T1 in 1966
Kidney tx in Minneapolis 2002
Pancreas tx in 2008 |
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jaimeskidney
Member
Username: Jaimeskidney
Post Number: 47
Registered: 10-2009
| | Posted on Saturday, July 10, 2010 - 01:41 pm: |
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My TX center - Loyola University Medical Center - actually provided one for me. They filled out the paperwork the way they wanted it, etc. It's not pretty but it works!
At some point I will trade it in for a pretty one though. 
Carol with Jaime's Kidney
Kidney Transplant 12/13/07
Loyola Medical Center - Maywood, IL |
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Karen R.
Forum Leader
Username: Relivkaren
Post Number: 4614
Registered: 07-2007
| | Posted on Saturday, July 10, 2010 - 05:23 pm: |
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Donna:
I think it a very smart idea to have a medical alert bracelet for both of you.
I found a great place that has toddler size bracelets. I am very small and I got a toddler size. I choose sterling silver, but they have all kinds. They recommend stainless steel for kids. I can understand why!!
http://www.americanmedical-id.com/
Even though my bracelet is very small I still have a lot of info on it.
Front: Karen Range
Lung Tx
Cleveland
Clinic
Back: 1-800-xxx-xxxx (transplant center number)
Page Tx doctor on call
See Charm for more
medical info
I then have a little charm that has a phone number and an access number for a doctor or EMT to access all of my medical info including drugs, doctor names and numbers, emergency contact, etc. There is no fee for this. I just have to update the website myself.
I hope this helps.
God Bless!
Karen
Dx: BOOP - May 2006. Rediagnosed with Bronchiolitis Obliterans Nov. 2006
Double lung transplant on Dec. 1st, 2009
Cleveland Clinic
Ohio, USA
Be kinder than necessary because everyone you meet is fighting some kind of battle. |
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LadyDi
Forum Leader
Username: Ladydi
Post Number: 2365
Registered: 03-2008
| | Posted on Saturday, July 10, 2010 - 10:10 pm: |
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We got ours the same place as Karen. We were very pleased with the sportsband style that is a woven nylon. Cisco had one of the link type bracelets and it just didn't last long. The woven one has been much sturdier, plus it was one of those "click" type clasps rather than trying to mess with one of the regular clasps. You could choose a number of different colors with coordinating print fabric backing.
We have had ours for several years now, and I have even put them in a small lingerie type bag and washed them in the wash machine. Very sturdy!
As the donor, I also wear one, Donna. That way, it is very clear that I have only one kidney. I have my name, and right below it "One kidney - right" along with a medicine allergy below that.
Kidney Donor to Husband 10/30/07
Forum Leader-Living Organ Donation
Barnes Jewish Hospital St. Louis, Mo
My Donation Story
I walk slowly, but I never walk backward - Abraham Lincoln |
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Donna Martin
Member
Username: Jackson
Post Number: 4
Registered: 05-2010
| | Posted on Sunday, July 11, 2010 - 11:02 am: |
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Thank you all for your input. This helps me a lot as I try to get this step in our journey done so my daughter does not have to worry about this.
I will look at all web sites you have provided. |
kakarp
Member
Username: Kakarp
Post Number: 76
Registered: 02-2009
| | Posted on Tuesday, July 13, 2010 - 09:25 am: |
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http://www.americanmedical-id.com/
I too highly recommend “American Medical ID” I’ve had two from them, the last being silver. Mine can hold all the info I need on it.
For instance:
On the front I have
My name
Kidney Transplant
Immunosuppressed
(see reverse side)
on the back I have
No Bianin or E-Mycin
No Non Steroidal Drugs
ICE: (my wife’s name and cell #)
(med list behind license) ……… I keep a list of all my med tucked behind my license
Regards,
Kevin
Kidney Transplant 10.17.1994
Received from my daughter
Living in central Mass.
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John M
Member
Username: Jam1107
Post Number: 88
Registered: 12-2006
| | Posted on Tuesday, July 13, 2010 - 12:45 pm: |
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Thanks very much for bringing up this topic. Since my transplants, I have been lax in carrying any medical identification. As a result of this thread, I bought several charms from American Medical ID that say "see wallet for information" and printed all my medical information on a card. I will attached the charms to my keychain, etc. (I hate wearing jewelry).
I am glad to create the card myself, since my medication dosage (Prograf, in particular) changes on a regular basis, and my insurance company seems to change every two years.
John
Pancreas alone transplant 4/13/04; rejected 2/07; removed 5/31/07.
Second pancreas transplant received 11/11/08.
NY Presbyterian/Cornell Medical Center, NY |
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gretita
Member
Username: Gretita
Post Number: 1
Registered: 07-2010
| | Posted on Wednesday, July 14, 2010 - 10:29 am: |
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Try www.keepsmesafe.com
My mum works for the transplant service in the Uk and she has often mentioned to me the importance of medical id bracelets for people scheduled for or who have had transplants. I wear a medical id bracelet everyday for various health reasons and i know my mum always recommends the site to people who ask her. The tags look small but like other people have said above, you can fit a lot into a small space. Mine has 5 lines of info and can be read easily. The wording has to be brief, clear and legible.
I have several bracelets, they are all really attractive and i know they have lots of children´s bracelets too because my children also wear them and are really pleased. There are lots of sites out there, just browse and i´m sure you´ll find some ideal bracelets to suit you both.
Hope this helps.
Gretita. x |
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