Author |
Message |
Kitty
Member Username: Kittymac
Post Number: 11 Registered: 08-2010
| Posted on Thursday, June 16, 2011 - 08:30 am: |
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Hello, I've posted a couple of times. I have recurring gout and my creatinine has raised to 250, awaiting results of biopsy. I am in a gout flare at the moment, i obviously cannot take nsaids as i have a transplanted kidney. I lost my transplanted pancreas in Dec last year; i am now diabetic again. After a year of recurring gout and excessive pain, and use of morphine (which only made me very sick) my kidney now has a raised creatinine of 250. I was wondering for other people out there how they best manage their gout if they have a transplanted kidney. Is Allopurinol the only option? Which painkiller can be used more effectively? I think now because I have diabetes again my best chance of trying to protect my kidney (not I have reucrring gout all over my body) that I would need a second pancreas and kidney transplant and would love to hear from anybody at all who has had a second one. Many thanks, hope someone can help. Kitty |
keith elliott
Member Username: Keith_elliott
Post Number: 104 Registered: 11-2010
| Posted on Thursday, June 16, 2011 - 10:54 am: |
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Do you know what sort of level your urate is ? I was told that allopurinol helps keep gout away and when you have a flare to take colchicine - but it depends on lots of things, not least what drugs you are on for immune suppression - so its really a discussion to be had with yr docs if you need new/different drugs. Diet, moderate exercise (low impact) and plenty of water are the main factors that help me keep my urate at a tolerable level for now (mine is usually around 470-500) - obviously avoiding beer and purine rich foods is a good idea. tc Keith |
Kitty
Member Username: Kittymac
Post Number: 12 Registered: 08-2010
| Posted on Friday, June 17, 2011 - 01:43 pm: |
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Very strange. Told today they don't even think it is gout now. Potentially pseudo gout. My uric acid levels are fine. But the bad news was I have strange antibodies in my blood that are attacking the transplanted kidney. There is quite a bit of damage and was told I'm probably a year from dialysis again. The thought is devastating. I don't know where to turn. I've had this immense pain for 12 months having regular flares lost my pancreas and now this. Anyone heard of or being treated for pseudo gout and if so what was the outcome. Keith thanks for your response. Kitty |