| Author |
Message |
Nataciara
Member
Username: Nataciara
Post Number: 1
Registered: 11-2011
| | Posted on Saturday, November 05, 2011 - 06:49 am: | 
|
Hi,
Has anyone here had HFMD? I've been infected with it for almost a week now and it seems to only be getting worse. There is little information on this disease regarding adults with immunosuppression. If you have had it how long did it last and was there anything you did to help get rid of it. Both my kids were infected with this virus and we did not know until it was too late for me to take extra precautions. I';m open to any help at all, please. |
CiscoKidney07
Forum Leader
Username: Gregg
Post Number: 5093
Registered: 03-2008
| | Posted on Saturday, November 05, 2011 - 08:47 am: |
|
I have no personal knowledge, but if I were you, I would google it. Good luck. By the way, welcome to transplant buddies.
|
Alinds
Member
Username: Alinds
Post Number: 272
Registered: 09-2010
| | Posted on Saturday, November 05, 2011 - 10:35 am: |
|
A child at my son's camp had it this summer and I was worried about it too...but I was on a very low dose of prograf so it wasn't as much of an issue. Even though it is very contagious neither one of us ended up contracting it.
I hope soemone here can give you more information. |
Hostess Rise'
Board Administrator
Username: Rise
Post Number: 16875
Registered: 05-2003
| | Posted on Wednesday, November 09, 2011 - 01:16 pm: |
|
I found this link to view from the CDC
http://www.cdc.gov/hand-foot-mouth/index.html
I certainly hope you heal quickly.
|
Nataciara
Member
Username: Nataciara
Post Number: 5
Registered: 11-2011
| | Posted on Wednesday, November 09, 2011 - 05:52 pm: |
|
Thanks. I think I have read every thing I possibly can but most sites only talk about it being a childhood disease. Adults rarely get it because their immune systems are strong enough to handle it. Not much info on immunosuppressed adults and the havoc this disease can have on us. Baylor University Medical Center and Dallas Transplant Institute are documenting my case with pictures and course of treatment to get published in medical journals and onto the internet to help others in the future. I will be hospitalized for over a week and then have to have IVIG treatments at home for several weeks after release. This can be a hard virus to kick and it doesn't help that I was in the hospital last month for 5 days with pneumonia. I was kidney pancreas transplanted in 2007 and this has been my first serious take down being suppressed. I appreciate your compassion and research. |
Nataciara
Member
Username: Nataciara
Post Number: 6
Registered: 11-2011
| | Posted on Wednesday, November 09, 2011 - 05:58 pm: |
|
IVIG is intravenous immuno globulin. Its a cocktail of antibodies (not antibiotics) to help support the immune system defeat viruses. Its a long journey. |
Hostess Rise'
Board Administrator
Username: Rise
Post Number: 16879
Registered: 05-2003
| | Posted on Thursday, November 10, 2011 - 01:14 pm: |
|
Hello Nataciara,
I will keep you in my thoughts and prayer daily. You are very welcome.
You find many of the people on this website to be compassionate.
Sending you good wishes and a healing hug,
Rise'
|
