| Author |
Message |
megw07
Member
Username: Megw07
Post Number: 4
Registered: 10-2011
| | Posted on Thursday, February 02, 2012 - 06:56 am: | 
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Ok...so after doing a tiny *coughs, All of my spare time* looking online to reduce my creatinine levels and improve kidney function....I came across this...
http://onlinelibrary.wiley.com/doi/10.1111/j.2042-7158.1997.tb06099.x/abstract
also read so info on Nettle leaf tea, that also helps lower all kinds of blood levels. And lastly i was recommended solidago.....its a kidney tonic.
What do you guys think? worth ago?
Dx w/ renal failure- 1996
Heamodialysis - 2005
Tx - 2008
begining weight Jan 2011-81kg
current weight - 69.9 kg
Creatinine-- Feb 2011- 269
May- 250
July-241
September- 236
Check up's finally once every 3 months! |
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Cora
Member
Username: Cora
Post Number: 446
Registered: 06-2007
| | Posted on Thursday, February 02, 2012 - 08:02 am: |
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I didn't read the link, but you need to beware of the natural diuretic properties of many of these so called "kidney tonics". Basically you would be adding a med. I would talk to your center and see what they think. I think that there are a lot of potential ways to hurt your transplant with this stuff, especially since you don't know what the fillers are.
Cora
Dx with T1 in 1966
Kidney tx in Minneapolis 2002
Pancreas tx in 2008 |
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Kuldip Gill
Member
Username: Ksgill
Post Number: 19
Registered: 06-2007
| | Posted on Thursday, February 02, 2012 - 05:29 pm: |
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I am with Cora , anything you put in the body without any consult can and may cause damage. It could be good but check with your TX center.
Transplant date : July 30,2007
Donor : Sister
Medication :Twice a day
2.0 mg Tacrolimus
500 mg Mycophenolate |
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cruizin
Member
Username: Cruizin
Post Number: 232
Registered: 09-2010
| | Posted on Friday, February 03, 2012 - 12:43 pm: |
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Hi megw, wow the chitosan treatment too good to be true (and maybe is?). My biggest suspicion is that it was written in '97 but I haven't heard of it since, so maybe the results weren't repeatable, or the effect was transient?
I did a quick look, here are some known safety concerns: http://www.med.nyu.edu/content?ChunkIID=21656#P5
Here's a clinical trial they did re. Phosphate Binding of Chitosan Chewing Gum:
http://clinicaltrials.gov/ct2/show/NCT01341691
Elsewhere I found "In pharmaceutical manufacturing, chitosan is used as a filler in tablets". I guess it shouldn't be too harmful if it's used this way.
I've heard of nettle tea, parsley tea, and a pineapple blended whole. I never tried any of these.
I did try a herbal concoction from http://www.kundankidneycare.com/ while on dialysis. I took it exactly as prescribed but had no significant effect on anything except anemia which improved slightly. I researched the herbs in the concoction. My notes are here: https://docs.google.com/document/pub?id=1ovXviaO_IARKNQN-A0gYR_p8w8Z5LCS5yvVGUV7C6r8. There were about 16 herbs in total. In theory, some of the herbs should have been helpful, perhaps in greater dosage.
Anyways if you do try anything, write here again to report your results, either good, neutral or bad! This stuff has always interested me. I would love to hear how it affected you!
Received kidney Mar 16, 2011, from my brother! 3/6 match
St. Joe's, Hamilton, ON
Peritoneal dialysis Nov '08 - Mar '11
Dx 1995 - believed to be chronic glomerulonephritis
Started CAPD Oct 2008 |
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megw07
Member
Username: Megw07
Post Number: 5
Registered: 10-2011
| | Posted on Wednesday, February 08, 2012 - 03:40 pm: |
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Well...i took to my transplant unit, they then sent me to the pharmacy to discuss interactions with any of the pills i am on...we couldnt find any, so i have been given the go ahead! I am excited 
I will post here my next results when i have them ( if anyone is interested)
Dx w/ renal failure- 1996
Heamodialysis - 2005
Tx - 2008
begining weight Jan 2011-81kg
current weight - 75.5kg
Creatinine-- Feb 2011- 269
May- 250
July-241
September- 236
Jan-258 :'(
Check up's finally once every 3 months! |
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cruizin
Member
Username: Cruizin
Post Number: 234
Registered: 09-2010
| | Posted on Thursday, February 09, 2012 - 07:30 pm: |
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I'm interested! I'm watching this thread ...
Received kidney Mar 16, 2011, from my brother! 3/6 match
St. Joe's, Hamilton, ON
Peritoneal dialysis Nov '08 - Mar '11
Dx 1995 - believed to be chronic glomerulonephritis
Started CAPD Oct 2008 |
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CatontheRoof
Member
Username: Catontheroof
Post Number: 60
Registered: 04-2011
| | Posted on Thursday, February 16, 2012 - 01:28 pm: |
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I also tried http://www.kundankidneycare.com/ months ago, but it just improved my hemoglobin a bit. I guess that the product works more for people with kidney problems related to diabetes and high blood pressure.
Currently while on Peritoneal I'm taking http://www.kibowbiotech.com/kidney_bowel.php which has improved my health overall. The product doesnt replace dialysis, but it feels you feel normal. It also works if you havent reached the dialysis stage, preventing you to have to go on it quickly.
They're also working on improve their product up to the stage that dialysis wont be needed, who knows how long will that take them.
About Chinosa, I have been reading about it and seems great. Just ordered my own pills! I'm not only interested in that it lowers creatinine, but also that absorbs cholesterol, heals gastritis and protects the liver |
Bala
Member
Username: Balapandian
Post Number: 61
Registered: 08-2010
| | Posted on Tuesday, February 21, 2012 - 11:35 am: |
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Ayurvedic or any other indian medicine does not improve the kidney function.
| CKD stage5 due to PKD, awaiting kidney Transplant |
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CatontheRoof
Member
Username: Catontheroof
Post Number: 63
Registered: 04-2011
| | Posted on Thursday, February 23, 2012 - 10:55 am: |
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Kibowl is not ayurveda, its some scientifically proved. It works with lactobacyls and other bacteria that absorb part of the creatinine and other toxics while they're in your interior.
Chinosa has been proved to work too.
This two arent offering a miraculous healing to go off dialysis, but they definitely improve health.
Think what you want |
Bala
Member
Username: Balapandian
Post Number: 62
Registered: 08-2010
| | Posted on Thursday, February 23, 2012 - 12:15 pm: |
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catontheroof,
yes, I take kibow probiotics prebiotics and it works.
I also take activated charcoal (intestinal dialysis)
Bala
| CKD stage5 due to PKD, awaiting kidney Transplant |
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CatontheRoof
Member
Username: Catontheroof
Post Number: 64
Registered: 04-2011
| | Posted on Thursday, February 23, 2012 - 11:51 pm: |
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Can you tell me how has it worked for you Bala?
Could you explain me more about the activated charcoal, for how long you've been using it and such? |
bill s
Member
Username: Bill_s
Post Number: 104
Registered: 08-2011
| | Posted on Friday, February 24, 2012 - 02:30 am: |
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I used activated charcoal to purify a plating solution of gold cyanide (deadly poison) to remove organic molecules. I'd really get my doctors to show me documentation of testing on people (double blind, medical testing by doctors and published in a respectable technical journal) before I would consider using it. |
CatontheRoof
Member
Username: Catontheroof
Post Number: 65
Registered: 04-2011
| | Posted on Friday, February 24, 2012 - 11:59 am: |
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http://www.sjkdt.org/article.asp?issn=1319-2442;year=2010;volume=21;issue=1;spage=102;epage=104;aulast=Musso take a look |
