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Message |
Allison
Member
Username: Allisonslater
Post Number: 2
Registered: 01-2010
| | Posted on Wednesday, January 13, 2010 - 08:35 pm: | 
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My mom had her kidney transplant 2 years ago, I was the donor. She has been in the hospital since Nov 24th and in ICU since Dec 18th, they finally diagnosed her with Aspergillus. This is an awful fungus which attaced her lung and her brain. People immune compromised have the chance of getting it while in the hospital. Does anyone know anyone who has been thru it? My poor mother has gone thru so much, she is 68 years old. We are hopeful, she has a CT Scan tomorrow please pray it is good. Also for my dad he has been there twice a day every day since day one. He has signed a no dialysis order or no life saving order per my moms wishes. Her kreatnin level is 2.2 right now. What would be a real bad level? As I am her donor, I am not sure if I would do it all over again. |
LadyDi
Forum Leader
Username: Ladydi
Post Number: 2100
Registered: 03-2008
| | Posted on Thursday, January 14, 2010 - 11:43 am: |
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I am so sorry to hear your mom is having problems, Allison. I will pray for good news and her recovery.
Kidney Donor to Husband 10/30/07
Forum Leader-Living Organ Donation
Barnes Jewish Hospital St. Louis, Mo
I walk slowly, but I never walk backward - Abraham Lincoln |
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Hostess Rise'
Forum Leader
Username: Risa
Post Number: 12091
Registered: 05-2003
| | Posted on Thursday, January 14, 2010 - 02:27 pm: |
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Hi Allison
I will keep you all in my prayers. I am sorry this is happening to all of you right now.
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donnie
Member
Username: Donnie
Post Number: 89
Registered: 02-2009
| | Posted on Thursday, January 14, 2010 - 07:25 pm: |
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Allison, I have never heard of this disease so I googled it and this is basically what I found.
Aspergillus is a fungus very common in our environment making it literally unavoidable and there are many forms of this fungus.
Aspergillosis is a disease caused by Aspergillus and the invasive type usually invades people with immune system problems like solid organ transplant patients.
You can find further information on the web.
Your dad is going to need all the support you can give him. He is making a decision none of us would like to make.
A creatinine level of 2.2 is not bad. Mine rose to 10.5 before action was taken, but I would not let that happen again.
You were lucky to be her donor and you would surely do it again. You realize you have one kidney left and it is important to take care of that one you have left. It is doing the work for two and to ensure it functions properly, the less stress on it the better. Eating properly is important to reduce stress on all our organs.
This leads to another way to reduce stress on your kidney. Mental stress can have a devastating effect on your health like what you are going through at the present time. If you are experiencing fear or anxiety or other similar emotions, those will not let you feel good and will put undo stress upon you. If you approach this and every situation no matter how difficult it may be from acceptance, understanding and love, these will bring more peace and calm to your mind. These emotions will be also be transmitted to others around you and they will have the same effect for them.
So Allison, make it easier for everyone and choose acceptance. I am sure your mom would like to see your loving smile. Don't confuse this and think I am saying to give up. I'm not giving up and neither should anybody else. I choose life. Everyone makes better decisions however when thinking from loving thoughts rather than fearful ones. This is your choice and I know you want to be loving and understanding.
Your mom and dad might be fearful at this time and you can help take their minds to a place where fear does not exist. Maybe focusing on past times with them, remembering so many fond memories you all had as a family.
Find that inner peace Allison. Everything will be ok.
donnie.teambuilders@gmail.com
Donnie Lynn
Malta,Mt
Polycystic Kidney Disease
tx 1/08/08. Virginia Mason. Seattle, Wa.
My wife gave me one of hers.
we are all connected |
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