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Hostess Risé
Board Administrator Username: Rise
Post Number: 17890 Registered: 05-2003
| Posted on Friday, October 18, 2013 - 07:18 pm: |
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Not sure if this is age related or transplant related but there are some foods after eating them for a few days where I I will break out in tiny areas around my lips and nose and sometimes on my scalp. I will sometimes itch all over. Fortunately, I know how to detect for food sensitivities after eating them for a few days with muscle testing. I have mentioned muscle testing many times but sometimes I can test strong and then a few days later test weak after I have consumed a specific food for a few days. My biggest food sensitivities are Quinoa- my scalp breaks out with bumps and I itch all over my body. Dairy even organic when I eat too much, my lower lip develops tiny pimples. Cocoa and Whey are big culprit as well for me. Even after being gluten free for a few years now, I still have other food sensitivities. Just wondering if you have noticed anything different post transplant. Sometimes we blame our drugs but I believe it is possible with a weakened immune system that we can become sensitive instead of allergic to foods that we never had problems before transplant. Of course this is just my opinion based on my experience.
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Cora
Member Username: Cora
Post Number: 537 Registered: 06-2007
| Posted on Friday, October 18, 2013 - 07:23 pm: |
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I have had changing food issues, but they started pre-transplant. I used to love kiwis, and ate tons of them. Then gradually, I couldn't. They make my lips and tongue go numb. I'm not epi-pen allergic, but definitely sensitive. My Mom has been like this over the years, adding food sensitivities as she ages. I suspect I will follow the same path, with or without the meds.
Dx with T1 in 1966 Kidney tx in Minneapolis 2002 Pancreas tx in 2008 |
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Hostess Risé
Board Administrator Username: Rise
Post Number: 17894 Registered: 05-2003
| Posted on Saturday, October 19, 2013 - 05:28 pm: |
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Hi Cora thank you for taking the time to reply to my question. I am always wondering and thinking it is my nature to try and figure things out. Whenever I would eat too much of anything, I become sensitive. For awhile, I would be able to consume Quinoa in almost every dish for added calories (always trying to gain weight) and after a few months, one night, I started to itch and I knew that it had to be a food sensitivity. Sure enough I hated all that itching, got out of bed went over to my pantry and started to muscle test for all the foods that I ate that day. Sure enough, I had an extremely weak response to the quinoa noodles that were already cooked and to the box of uncooked quinoa. I took several months off from eating quinoa then reintroduced it to my diet. I did well for about a week then started to itch again and developed bumps on my scalp. I know how to clear sensitivities and after I cleared it energetically I was stopped itching and the bumps went away within two days. Energy Medicine is amazing. I know I have sensitivities to nuts and if I eat too many, my skin starts to break out. I really never had too many nuts prior to transplant so I cannot say if this would have been an issue for me. I find nutrition fascinating. I took a nutrition course in college and loved it but then I became sickly and did not want to stay in school for too long. I took the easy way out after I graduated four years, I started to read books and spoke to many nutritionists.
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Hostess Risé
Board Administrator Username: Rise
Post Number: 17897 Registered: 05-2003
| Posted on Monday, October 21, 2013 - 06:48 pm: |
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I spoke to a transplant buddy last night who said she cannot eat quinoa because she gets headaches. Very interesting- I just wonder if more of us have some of these food sensitivities in common.
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papillonbleu
Forum Leader Username: Papillonbleu
Post Number: 2287 Registered: 10-2007
| Posted on Tuesday, October 22, 2013 - 07:55 am: |
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I noticed that after my transplant I can no longer tolerate pineapple. When I tried to eat some, I experienced a lot of pain and discomfort. I am not sure if it is an allergy or just that the fibrous nature of it is difficult on my bowels to tolerate. I used to love eating pineapple when I was healthy. I also noticed that I could not seem to tolerate salads post transplant. I cannot remember the exact reaction just that it was enough to convince me to stay away from them. These two differences occurred before I developed the gastroparesis again post transplant (which has limited my diet) and was thus eating more normally. Perhaps it was because I got a small and large intestines transplant as part of the whole. They have seemed more sensitive than my previous ones.
Bobbiejo Forum Leader-Multivisceral dx: GERD 1995, gastroparesis 2002, pseudo-obstruction of the bowel 2004 multivisceral transplant, 6 organs, 10/06/05 University of Miami/Jackson Memorial Hospital
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Hostess Risé
Board Administrator Username: Rise
Post Number: 17898 Registered: 05-2003
| Posted on Tuesday, October 22, 2013 - 06:29 pm: |
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Thank you Bobbiejo I too muscle test weak to pineapple. I believe it must be a reaction with our transplant medications. Another tx buddy of mine who also experienced gastroparesis said she cannot take bromelain which is the enzyme naturally occurring in pineapple. How interesting! Thank you for sharing
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