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Hostess Rise'
Board Administrator
Username: Risa
Post Number: 10211
Registered: 05-2003
| | Posted on Saturday, August 29, 2009 - 07:38 pm: | 
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Since I have been taking Vitamin D daily (1000mg or more daily) I have not had a cold or flu. There are many articles on the importance about taking vitamin D if you do not get enough sunlight. I try and take in both. I remember my transplant surgeon asking me if i was taking vitamin D prior to transplant.
http://articles.mercola.com/sites/articles/archive/2009/08/27/Canada-Looks-at-Vi tamin-D-for-Swine-Flu-Protection.aspx
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Karen R.
Member
Username: Relivkaren
Post Number: 3471
Registered: 07-2007
| | Posted on Saturday, August 29, 2009 - 08:46 pm: |
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Risa:
Maybe that's why I haven't been sick in a long time. I take a liquid Vitamin D supplement. I can remember right now how many mg it is, but it's in addition to all the other supplements I take. Ummm...very interesting!!
God Bless!
Karen
Dx: BOOP - May 2006. Rediagnosed with Bronchiolitis Obliterans Nov. 2006
Listed Feb 2008 - Waiting on double lung transplant at Cleveland Clinic
Ohio, USA
Be kinder than necessary because everyone you meet is fighting some kind of battle. |
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Hostess Rise'
Board Administrator
Username: Risa
Post Number: 10215
Registered: 05-2003
| | Posted on Saturday, August 29, 2009 - 09:06 pm: |
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Thank you Karen for sharing. You are a Wonderful Person and I am so proud of you for all that you are and for all that you do around here by always providing support and feedback.
There might be flu's of all kinds throughout our lives. We cannot escape germs from our internal and external environment, all we can do is provide our bodies with the right defenses.
In addition to taking vitamin D, I also take one teaspoon of cod liver oil and fish oil. I am going to have a vitamin D blood test soon. I was suppose to have this three months ago and something was not received correctly on Quest labs end. I have to go to another doctor to just get a vitamin D blood test script. No biggies. This is just fuel for my motivation to find a local doc
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Deb
Member
Username: Deb
Post Number: 721
Registered: 06-2003
| | Posted on Sunday, August 30, 2009 - 07:35 pm: |
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Hey ya'll, isn't vitamin D in milk, yogurt and supposely from the sun for about 15mints? Of course, soon as my stomach gets a lot better, I am suppose to be taking my Actonel.
I bought me some Greek plain yogurt and that is the most strongest tasting yogurt I have eating. Whoo! Even my cat ate some. 
Kidney transplant 6/22/2002
lildeb |
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Karen R.
Member
Username: Relivkaren
Post Number: 3473
Registered: 07-2007
| | Posted on Sunday, August 30, 2009 - 09:24 pm: |
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Risa:
I just looked at my Vit. D bottle. I get 6000mg of Vitamin D with that supplement. I also take Fish oil capsules. I can't handle the cod liver oil. I have tried it. I just can't do it. I think it's the texture more than the flavor.
I have never had my Vitamin D levels tested that I know of. Unless that's something they look at when they take the 20 vials of blood everytime I go to my clinic appointments. I will ask the next time I am up there.
I am kind of thinking that the Vit. D, the probiotics, the nose washing,good food, and the water drinking are keeping me cold free. Sammy and Jerry both had colds and I never got it. How can that be? I am so amazed!!! I think my body is finally strong again. I feel that's really good going into the surgery of a lifetime. I work on staying healthy everyday. I hope it pays off in the end.
God Bless!
Karen
Dx: BOOP - May 2006. Rediagnosed with Bronchiolitis Obliterans Nov. 2006
Listed Feb 2008 - Waiting on double lung transplant at Cleveland Clinic
Ohio, USA
Be kinder than necessary because everyone you meet is fighting some kind of battle. |
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Hostess Rise'
Board Administrator
Username: Risa
Post Number: 10218
Registered: 05-2003
| | Posted on Monday, August 31, 2009 - 12:11 pm: |
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Hi Karen
WOW that is a lot of vitamin D. What brand vitamin D is that? keep up the GREAT work!
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Karen R.
Member
Username: Relivkaren
Post Number: 3478
Registered: 07-2007
| | Posted on Monday, August 31, 2009 - 01:38 pm: |
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Risa:
It's a liquid form of Vitamin D3. I take 3 (2000 IU each). It's made by Biotics Research - called Bio-D-Mulsion Forte. I have been using it for over a year now.
God Bless!
Karen
Dx: BOOP - May 2006. Rediagnosed with Bronchiolitis Obliterans Nov. 2006
Listed Feb 2008 - Waiting on double lung transplant at Cleveland Clinic
Ohio, USA
Be kinder than necessary because everyone you meet is fighting some kind of battle. |
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Hostess Rise'
Board Administrator
Username: Risa
Post Number: 10227
Registered: 05-2003
| | Posted on Monday, August 31, 2009 - 03:19 pm: |
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Thank you! My acupuncturist can order Biotics for me. He signed up with them. I have taken their liquid products before. Glad to hear they work.
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Heather
Forum Leader
Username: Heather
Post Number: 2621
Registered: 05-2003
| | Posted on Saturday, October 17, 2009 - 07:06 am: |
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I think I will go get some Vit. D. Anyone here in Illinois needs it...as we have not seen the sun much for weeks..lol. I am sure we are all deficient..
Heather
Forum Leader - Living Organ Donation
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
DONATE LIFE |
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Hostess Rise'
Forum Leader
Username: Risa
Post Number: 11078
Registered: 05-2003
| | Posted on Thursday, November 12, 2009 - 07:33 pm: |
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I had another vitamin D test and it still came back low. I am taking 12 thousand mg of Vitamin d. All my other vitamins tests came back normal. I would like to know how many of you take very high doses of vitamin D?
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Karen R.
Forum Leader
Username: Relivkaren
Post Number: 3812
Registered: 07-2007
| | Posted on Thursday, November 12, 2009 - 09:32 pm: |
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Risa:
Have you tried liquid Vitamin D. I take 6000 IU of vitamin D a day plus what is in my food, but I use a liquid vitamin D by Biotics Research. I use the Forte rather than the regular. I don't know if that will help. I have not had my vitamin D levels tested.
God Bless!
Karen
Dx: BOOP - May 2006. Rediagnosed with Bronchiolitis Obliterans Nov. 2006
Listed Feb 2008 - Waiting on double lung transplant at Cleveland Clinic
Ohio, USA
Be kinder than necessary because everyone you meet is fighting some kind of battle. |
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Hostess Rise'
Forum Leader
Username: Risa
Post Number: 11080
Registered: 05-2003
| | Posted on Friday, November 13, 2009 - 09:50 am: |
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Thank you Karen
I am going to ask my new endocrinologist to give me a monthly script for a vitamin d test and I will keep testing until I reach the desired number.
Here is my plan. Since the vitamin d dry pills I take have no effect whatsoever, I am going to greatly reduce this amount and take five teaspoons of cod liver oil which has additional 2,000 units of vitamin d from cod livers.
Then in one month, I will test again. If my number is not up to par, I will buy the biotics research brand. Tell me the exact name of the one you take.
Mostly everyone who does not get enough sunlight is low in vitamin d. Even if you take the supplements, it seems to be the new findings that labs are reporting.
My acupuncturist can get the biotics for me.
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Meagan
Forum Leader
Username: Newheart14
Post Number: 469
Registered: 01-2009
| | Posted on Friday, November 13, 2009 - 10:51 am: |
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Hi Rise'
My bottle says 400 IU and I take one pill per day. Not sure how many grams that is. I think 1 IU = 10 mg. Hey, I grew up with the imperial system, not this metric stuff.  I also take calcium and I believe the two work together.
When I had my babies, the doctors would say make sure you give the baby at least 20 minutes/day of sunlight. Now, it's be careful and make sure the baby is wearing a hat, sunglasses and sunblock.
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DAP1122
Forum Leader
Username: Dap1122
Post Number: 1201
Registered: 05-2008
| | Posted on Friday, November 13, 2009 - 07:33 pm: |
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I take Oscal, with vitamin D (400 IU), 3 times a day. Once a month I take 50,000 IU of vitamin D.
The orthopedic doc told me that these amounts, with calcium, will promote/maintain good bone health. I was on Fosamax, with Vit D for almost 2 years, but that was stopped as my bone density tests showed improvement.
I'm not sure how to convert IU numbers, I "THINK" it's different, for various things. And don't ask me why, LOL.
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Hostess Rise'
Forum Leader
Username: Risa
Post Number: 11084
Registered: 05-2003
| | Posted on Saturday, November 14, 2009 - 11:01 am: |
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Hi Meagan and Dap
I am curious Dap, what is the pill that you take once per month of 50.000 units of vitamin d. IU stands for international units.
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DAP1122
Forum Leader
Username: Dap1122
Post Number: 1205
Registered: 05-2008
| | Posted on Saturday, November 14, 2009 - 08:35 pm: |
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Rise'
I know what IU stands for, but not how to convert to mg. Different vitamins convert at different rates, I believe.
It's actually 50,000 IU of Vitamin D2 (this is a prescription dose) ....... a single, blueish-green, translucent capsule ......... will add a pic below with a dime and DonateLife pin so you can see the relative size.
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Hostess Rise'
Forum Leader
Username: Risa
Post Number: 11091
Registered: 05-2003
| | Posted on Sunday, November 15, 2009 - 03:23 pm: |
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Thank you! Since Vitamin D is stored in the liver, a one time higher dose is sufficient. I wonder why they did not give you a vitamin D test?
I am going to ask for a script if my cod liver oil dose does not bring me up to par. I just need to raise another ten points to be in the normal range.
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DAP1122
Forum Leader
Username: Dap1122
Post Number: 1208
Registered: 05-2008
| | Posted on Sunday, November 15, 2009 - 08:45 pm: |
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Rise'
Actually, they did check my Vit D level at that point and it was pretty decent, as I remember. My Tx Coordinator "guessed" that the orthopedic doc would stop the Vit D and the Fosamax ......... the ortho doc said I should keep taking the Vit D, as it would continue helping me.
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Karen R.
Forum Leader
Username: Relivkaren
Post Number: 3818
Registered: 07-2007
| | Posted on Sunday, November 15, 2009 - 09:42 pm: |
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Risa:
I take Bio-D-Emulsion Forte from Biotics Research. This one has 2000 IU of Vitamin D3. My bone doctor at the Cleveland Clinic was very interested in learning more about it. I gave her some information. I don't know what my vitamin D levels are, but I will ask for them to be tested the next time I need blood work.
God Bless!
Karen
Dx: BOOP - May 2006. Rediagnosed with Bronchiolitis Obliterans Nov. 2006
Listed Feb 2008 - Waiting on double lung transplant at Cleveland Clinic
Ohio, USA
Be kinder than necessary because everyone you meet is fighting some kind of battle. |
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Hostess Rise'
Forum Leader
Username: Risa
Post Number: 11097
Registered: 05-2003
| | Posted on Monday, November 16, 2009 - 12:05 pm: |
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Thank you Karen
The blood vitamin D test is called Vitamin D 25-OH
I will give myself one month to see if my levels increase after taking larger doses of Cod Liver Oil.
I am happy I thought about asking for my vitamin tests. many years ago it would have cost me a fortune and now I get it for free.
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CiscoKidney07
Forum Leader
Username: Gregg
Post Number: 2756
Registered: 03-2008
| | Posted on Monday, November 16, 2009 - 12:21 pm: |
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I take 1500 IU of Vitamin D daily. They encouraged me to take extra vitamin D because I could not be exposed to as much sun as I have been used to over the years.
| There are not too many things in life worth working my butt off for, but my health is one of them |
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vajohn
Member
Username: Jfarel
Post Number: 143
Registered: 02-2008
| | Posted on Thursday, July 29, 2010 - 05:23 pm: |
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Sorry I am late to the party on this one. Due to my bones, I have to get a enough vit D. My endo has me on 50k per week. Ergocalciferol is the brand.
30 years old with Cystic Fibrosis
Bilateral Lung Transplant INOVA Fairfax hospital (June 23, 2010)
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Hostess Rise
Board Administrator
Username: Rise
Post Number: 13864
Registered: 05-2003
| | Posted on Thursday, July 29, 2010 - 05:30 pm: |
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Hi John
I found an over the counter D Biotics Research and I take ten drops daily which brings me up to a 51 blood level of vitamin D which is good. I would like to aim for the sixties.
I just had a C reactive protein test which came back on the extremely low end which is great. This measures inflammation in the body.
This is not a routine blood test but I requested this because I eat a very healthy diet and was very curious.
My vitamin E and vitamin A levels were normal and I do not take these specific supplements. I do take omega 3 from Krill oil and Cod liver oil so I am getting my dose from these supplements.
If anyone is interested in knowing the exact amounts and brands, just ask me.
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05
Debra Fertel MD- Med. Dir. Lung Transplant/Pulmonary Hypertension Programs
Jackson Memorial Hospital
Si Pham MD, Professor of Surgery, Dir. of Thoracic Transplant & Artificial Heart Program-Miam Transplant Institute
Anas Hadeh MD, Cleveland Clinic, Weston, Florida
CF consultant- Critical Care and Sleep Medicine
Sharing Knowledge is an Invaluable Experience
Transplant Friends & Chat
Questions- Contact Hostess Rise' |
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patrickjohn5
Member
Username: Patrickjohn5
Post Number: 3
Registered: 06-2011
| | Posted on Thursday, July 07, 2011 - 11:17 pm: |
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My uncle is now taking a MX Vitamin D. Great benefits that we can gain through taking this kind of vitamin are it boost our immune system and avoid vitamin D deficiency symptoms and optimal dosage for daily health support throughout the year. Maybe that's why my father was encouraging to take Vitamin D. |
papillonbleu
Forum Leader
Username: Papillonbleu
Post Number: 2036
Registered: 10-2007
| | Posted on Saturday, July 09, 2011 - 12:51 pm: |
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My vitamin D is on the low end of normal, in the thirties (according to the last labs), and my local doctor thinks this is good. He does not want the vitamin D level to be to high for fear of it thus activating the immune system. Has anyone else been told this? I am taking a daily supplement of vitamin D and calcium citrate and was told to stop the once a month vitamin D of 50,000 IU I had been taking. The extra worry perhaps in my case could be due to my six organ transplant, but I was just wondering if keeping the vitamin D from being too high was a concern for others' doctors mentioned to them.
Bobbiejo
Forum Leader-Multivisceral
dx: GERD 1995, gastroparesis 2002, pseudo-obstruction of the bowel 2004
multivisceral transplant, 6 organs, 10/06/05
University of Miami/Jackson Memorial Hospital
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ashish
Member
Username: Bhatnagarashish
Post Number: 1
Registered: 09-2011
| | Posted on Monday, September 05, 2011 - 02:42 am: |
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I also heard that we can take vitamin D from sunlight. So kindly tell me that Is it possible to take vitamin D from sunlight.
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Heather
Forum Leader
Username: Heather
Post Number: 3316
Registered: 05-2003
| | Posted on Sunday, September 11, 2011 - 10:26 pm: |
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Yes we get vitamin D from sunlight.
Heather
Forum Leader - Living Organ Donation
Heather's Blog
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
DONATE LIFE |
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NewMan
Member
Username: Reganreed
Post Number: 8
Registered: 01-2012
| | Posted on Friday, April 27, 2012 - 01:43 pm: |
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At my year appointment (4/3/12) my hepatologist put me on 1,000U of D and 1,500gm of calcium per day and one Actonel per week. My Dexa showed me having poor bone density. (Dr. told me it was from the alcohol and also from the suite of post tx drugs). So, once again, good to see it's not just me that's having to do all this! I love this forum, everything I feel is searchable so far! Weight gain, check, bones, check.
Liver tx - 3/14/11
The Liver Institute - Methodist Dallas |
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