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Charlene
Member
Username: Charlenevp

Post Number: 3
Registered: 08-2010
Posted on Wednesday, August 25, 2010 - 06:58 am:   Edit Post Delete Post Print Post

I'm sorry if this has already been discussed. I'm new here and trying to spend as much time as I can navigating this site and all the links. Sorry if this topic is a tired discussion or I have posted in the wrong forum.

I'm very intrigued by the phenomonen/therory that not just our brains hold memory, but all of our organs do, and that possibly an organ recipient carries an imprint of the donor.

I would love to hear any experiences transplant recipients may have with cellular memory.

How do you feel connected to the donor? Has the donor organ imprinted on you in any way, in your personality, your taste in music, food, etc...?
Charlene
Hostess Rise
Board Administrator
Username: Rise

Post Number: 14216
Registered: 05-2003
Posted on Wednesday, August 25, 2010 - 09:15 am:   Edit Post Delete Post Print Post

Hi Charlene,

With my first transplant, I had a feeling when his birthday was and I was right.
With my second transplant, there has been nothing that I can recall that has changed.

Thank you for Sharing.
love
Rise
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05
Debra Fertel MD- Med. Dir. Lung Transplant/Pulmonary Hypertension Programs
Jackson Memorial Hospital

Si Pham MD, Professor of Surgery, Dir. of Thoracic Transplant & Artificial Heart Program-Miam Transplant Institute

Anas Hadeh MD, Cleveland Clinic, Weston, Florida
CF consultant- Critical Care and Sleep Medicine

Sharing Knowledge is an Invaluable Experience
Transplant Friends & Chat
Questions- Contact Hostess Rise'
Charlene
Member
Username: Charlenevp

Post Number: 8
Registered: 08-2010
Posted on Wednesday, August 25, 2010 - 11:16 am:   Edit Post Delete Post Print Post

Wow, knowing his birthday, that's amazing.

Mark's doctor asked his family to watch for and report to him any changes in his usual habits or in his personality.

Mark suddenly took to drinking coffee which he never liked before. My brother's best friend makes his own brand of hot sauce, my brother used it on everything, practically every meal and Mark now has developed a liking to hot sauce also.
Charlene
Hostess Rise
Board Administrator
Username: Rise

Post Number: 14228
Registered: 05-2003
Posted on Wednesday, August 25, 2010 - 11:47 am:   Edit Post Delete Post Print Post

Charlene,

I am so impressed with Mark's doctor that he is very opened minded to this theory. Very interesting story.
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05
Debra Fertel MD- Med. Dir. Lung Transplant/Pulmonary Hypertension Programs
Jackson Memorial Hospital

Si Pham MD, Professor of Surgery, Dir. of Thoracic Transplant & Artificial Heart Program-Miam Transplant Institute

Anas Hadeh MD, Cleveland Clinic, Weston, Florida
CF consultant- Critical Care and Sleep Medicine

Sharing Knowledge is an Invaluable Experience
Transplant Friends & Chat
Questions- Contact Hostess Rise'
Lindsey
Member
Username: Lindsey3

Post Number: 70
Registered: 06-2007
Posted on Thursday, April 07, 2011 - 09:24 pm:   Edit Post Delete Post Print Post

Charlene,

The only changes I have noticed revolve around my food choices. I haven't figured out if it is because of my donor or simply because I am not sick anymore and that my sense of taste has improved because of that.

The strangest ones for me are hot dogs and pickles. I hated hot dogs, they make me sick, literally I have the worst stomach pain and cramping when I even so much as have a hot dog. I hadn't eaten a hot dog since 7th grade when I had my transplant and I go through phases now where I crave them, the cravings started about 6 months after my transplant. I still don't eat them very often because they still upset my stomach, but I crave them desperately sometimes.

The other - pickles. I didn't like pickles and never ate them pre transplant. Since my transplant I started with relish. I put relish on sandwiches, burgers, and load up chicken salad or tuna salad with relish all the time. Then came straight dill pickles. I love them sliced, speared, as relish anything.

As for other things I went for several months immediately after my transplant and would dream about a man. I had never and have never seen this person before. He wouldn't talk to me he would just stare at me and then he would just fade away. I am assuming it was my donor, but I have no idea what my donor looks like to verify this.

I have added a whole plethora of new food to my menu since my transplant though, pickles and hot dogs are the two that have everyone stumped especially my family. My mom to this day makes comments about the things I eat but I eat so much more now than I used too.

Lindsey
Lindsey
28 with Cystic Fibrosis
Double Lung Transplant at Mayo Clinic ~
May 2, 2007
Amy Tippins
Member
Username: Amytippins

Post Number: 20
Registered: 06-2009
Posted on Saturday, April 09, 2011 - 07:47 pm:   Edit Post Delete Post Print Post

Hi Charlene, I think I saw two major changes post transplant. (1) Hamburgers! I hated them before transplant and now I can not get enough of them. LOVE LOVE LOVE Hamburgers now!!!! (2) My donor was a cop and also a US Marshall later in life. I was raised in a domestically and emotionally abusive home and shortly after transplant I started finding strength to stand up for myself. Maybe it was my super cop?
RockScar Love is where we celebrate the scars of new life! www.Rock Scar Love.com

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Rob C
Member
Username: Rob_c

Post Number: 253
Registered: 09-2007
Posted on Wednesday, April 13, 2011 - 01:10 am:   Edit Post Delete Post Print Post

I have become a coffee drinker too since my second transplant. The weird thing is that Before my second transplant I HATED coffee. I had only tried the stuff once before in my life and poured it out because I thought it tasted nasty.

One day soon after my transplant I was in a hotel lobby and they were brewing coffee and it smelled so good I went and poured a cup fully expecting to pour it out because it smelled better than it tasted. I didn't, I drank it all and sent back for a second cup. I have been drinking it ever since, and now I can't pass a Starbucks, or any other coffee shop.

I suspect that my donor was a coffee drinker.
health journey
Member
Username: Health_journey

Post Number: 3
Registered: 04-2011
Posted on Monday, May 02, 2011 - 07:34 pm:   Edit Post Delete Post Print Post

I love your stories. My liver transplant was about 18 months ago. I knew it came from a man but I knew nothing about him. I visualized a person and I get a very peaceful feeling which I believe is from the donor. My outlook is different , however I don't know if that is from my donor or from being as close to death as one can get and comming back.

I just know I really feel very positive now am enjoying my life very much. Life is good for me now. The greatest is not being sick every day and having energy now. I am so grateful to my donor.

BTW, I do believe in cellular memory and picking up on someones DNA. I feel I was very lucky and got a liver from a very nice, good person. I can feel that much.*
Jo
Member
Username: Oxygirl

Post Number: 262
Registered: 05-2009
Posted on Friday, June 03, 2011 - 12:48 am:   Edit Post Delete Post Print Post

I don't know whether this actually happens, though I know there is a lot of talk about it among patients, but I really, really love the idea of it being true. It's really not far-fetched at all, if you think about it. It's not just an organ that we we fortunate enough to receive. I believe that my donor is now a part of me, so cellular memory, to me, isn't out of the realm of possibility.
Dx with BOOP/IPF Nov 2004
Listed Dbl Lung Tx Jan 13 2010
Double Lung tx Sept. 17, 2010
Emory Hospital Atlanta
Sarah's mom
Member
Username: Sarahs_mom

Post Number: 172
Registered: 02-2009
Posted on Friday, June 03, 2011 - 08:31 am:   Edit Post Delete Post Print Post

I LOVE this whole aspect of it, too. I believe it is real.....there's DNA in those organs...so there must be something physical to it, besides the obvious...We are all one and connected spiritually, energetically.
Sarahs mom, Kristen

Donor family
Florida, near Pensacola.

"Life is eternal; and love is immortal; and death is only a horizon; and a horizon is nothing save the limit of our sight."
-R.W. Raymond
Marina
Member
Username: Marina

Post Number: 172
Registered: 08-2009
Posted on Saturday, June 04, 2011 - 12:29 am:   Edit Post Delete Post Print Post

I asked one of the TX surgeons about this. He smiled and said "There is no scientific proof that this exists."
Kidney and Pancreas TX on Nov 9, 2010 @ California Pacific Medical center CPMC San francisco, CA . What a blessing!!!!

BELIEVE!!!!!!!!!!
John Clark
Member
Username: Fyremutt

Post Number: 5
Registered: 07-2011
Posted on Wednesday, July 27, 2011 - 08:33 am:   Edit Post Delete Post Print Post

I'm not sure, but I've noticed some changes. Prior to Transplant I drank a lot of coffee, Now maybe a cup or two, Never slept on my back, now I sleep on my back, and without snoring which I used to do constantly. Used to drink several glasses of soda with meals eaten out, now I don't finish one. and that's just what I notice. I asked my wife if she noticed any changes, she said I am more sensitive, hugs and such.I'm not sure if it's donor trait or the meds or the fact of extending my life but it is weird.
MEM1020
Member
Username: Memarston1020

Post Number: 12
Registered: 03-2011
Posted on Wednesday, July 27, 2011 - 02:15 pm:   Edit Post Delete Post Print Post

I have a physical difference. Before transplant I was never smaller than a size 10 for pants, skirts etc. I am within 5 lbs of my lowest weight pretx and now I take a 4. I lost my hips. I joke that my kidney came from a male. The other difference is that I never cared much for sweets and now I do like them more. This is not so good. But I am able to limit myself. Just thought I would add my experience...
MEM1020
KidneyTX Oct 2008-Cadaver Donor
Polycycstic Kidney Disease
Mayo Clinic Jacksonville
lites
Member
Username: Lites

Post Number: 2
Registered: 10-2011
Posted on Monday, October 24, 2011 - 08:19 am:   Edit Post Delete Post Print Post

I have had a double lung transplant, the donor organ came from a man (we don't get any info about the donor)., always been a tea drinker but now I seem to crave coffee more...also I find myself being more assertive than before as I am usually a shy and quiet woman. When driving I also cannot stop myself from talking aggressively at 'foolish' drivers - I have no intention or desire to be physically aggressive in any way shape or form but I cant understand why I feel better after saying things like " If you don't stop all that honking I'm gonna get out and slap somebody!" I say it all the time, but I know I would never really do that!! Is it just my medication?
I don't understand. I started saying things like that since day one after the operation when I had an unpleasant nurse right up in my face.
Hostess Rise'
Board Administrator
Username: Rise

Post Number: 16801
Registered: 05-2003
Posted on Monday, October 24, 2011 - 12:22 pm:   Edit Post Delete Post Print Post

Hi lites
Thank you for sharing. I believe anything is possible!
:-)

God Bless all our Donors and their Families!
CF- dx at 2yrs. 2nd double lung tx-05 JMH
My Photos on Transplant Friends

Transplant Buddies & Friends on Facebook



Questions-contact
transplantbuddieshelp@gmail.com
Terri
Member
Username: Terri

Post Number: 248
Registered: 09-2007
Posted on Thursday, January 12, 2012 - 05:34 pm:   Edit Post Delete Post Print Post

I had a dream about three years into my transplant. In the dream I saw what looked like a school picture of a young girl with long radish blond hair. She had on a denim outfit. I never saw this girl in my life other than this dream so I always wondered if it was my donor.

I've always had this feeling my donor was a girl. When I would talk about her, I never said he, I always said she. People would ask me how I knew that and I would say I don't know. Later, when I sent one of my donor letters, I asked the OPO if they could tell me anything about my donor. He said all he could say was that she was an 11 year old girl from Arkansas.
Terri Lynne - 20 Year Liver Transplant Survivor
"Whatever doesn't kill me had better start running!"
Olivia - Raw TV
Member
Username: Oliviaisaacs

Post Number: 2
Registered: 02-2014
Posted on Wednesday, February 26, 2014 - 12:08 pm:   Edit Post Delete Post Print Post

Hi all

Thank you for sharing your stories about cellular memory! I wondered whether any of you would like to get in touch with me (olivia.isaacs@raw.co.uk) as I am working on a television show for Discovery Science Channel and we are looking for people who feel they have experienced cellular memory or any strange (even small) changes after their transplant.

Do drop me an email, even if you feel your changes are small in comparison to some stories.

Thank you and best wishes

Olivia
Assistant Producer
RAW TV www.raw.co.uk
Hostess Risé
Board Administrator
Username: Rise

Post Number: 18012
Registered: 05-2003


Posted on Wednesday, February 26, 2014 - 04:07 pm:   Edit Post Delete Post Print Post

Hi Olivia
I see your company is UK based. Most of our members live in the USA.
How would that work out for you all?
CF- dx at 2yrs. 2nd double lung tx-05 JMH
My Photos on Transplant Friends

Facebook-TransplantBuddiesfriends

Twitter-transplantbuds

Contact: transplantbuddies@gmail.com
Olivia - Raw TV
Member
Username: Oliviaisaacs

Post Number: 3
Registered: 02-2014
Posted on Thursday, February 27, 2014 - 08:16 am:   Edit Post Delete Post Print Post

Hi Hostess Rise

Thank you for your question. This is an international show and we will be filming in the States in the coming months.

Best wishes

Olivia
Olivia - Raw TV
Member
Username: Oliviaisaacs

Post Number: 4
Registered: 02-2014
Posted on Thursday, February 27, 2014 - 08:18 am:   Edit Post Delete Post Print Post

Hi Hostess Rise

Thank you for your question. This is an international show and we will be filming in the States in the coming months.

Best wishes

Olivia

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