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Message |
Jack
Member
Username: Johnhollenbach56
Post Number: 141
Registered: 12-2009
| | Posted on Friday, July 09, 2010 - 09:31 am: | 
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As there was a bit of chatter regarding assistance with the high cost of some drugs, here are some of the drug company sites I have used to get help for my drugs:
Cellcept - Roche - several programs available - discount coupons at http://www.cellceptforliving.com/ or you can call 1-877- 509-2235 to speak abbout other options
Valcyte - Roche - website is under construction but you can call 1-877-
821-8590
Rapamune - Pfizer (used to be Wyeth) - two programs -
RSVP 1-888-327-7787 or http://www.pfizerhelpfulanswers.com/pages/Programs/programdetails.aspx?p=12
Pfizer Pfriends 1-866-706-2400 or http://www.pfizerhelpfulanswers.com/pages/Programs/programdetails.aspx?p=1
Lipitor - Pfizer - both programs listed above for Rapamune PLUS 'Connection to Care Program 1-866-2400 or http://www.pfizerhelpfulanswers.com/pages/Programs/programdetails.aspx?p=2
Another place to check is Medicare & Medicaid Services 'Limited Income NET Program, here is a link to that https://www.cms.gov/LowIncSubMedicarePresCov/03_MedicareLimitedIncomeNET.asp
Hope this helps folks, stay well,
Jack
Jack Hollenbach
jack_hollenbach@hotmail.com
Received double lung transplant August 2, 2007 for COPD at UCSD Thornton Hospital, San Diego, CA
Live each day to your fullest, for it is a gift to be treasured |
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Hostess Rise
Board Administrator
Username: Rise
Post Number: 13603
Registered: 05-2003
| | Posted on Friday, July 09, 2010 - 10:22 am: |
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Hi Jack
Thank you so much! 
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05 Jackson Memorial Hospital, Miami, Florida
Debra Fertel MD- Med. Dir. Lung Transplant/Pulmonary Hypertension Programs
Si Pham MD, Professor of Surgery, Dir. of Thoracic Transplant & Artificial Heart Program
Anas Hadeh MD, Cleveland Clinic, Weston, Florida
CF consultant- Critical Care and Sleep Medicine
Sharing Knowledge is an Invaluable Experience
Transplant Friends & Chat
Questions- Contact }Hostess Rise' |
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Jack
Forum Leader
Username: Johnhollenbach56
Post Number: 384
Registered: 12-2009
| | Posted on Sunday, January 02, 2011 - 09:53 am: |
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Let's get this thread back up in the active area as we have a new year and folks will want to check some of these out. If your drug(s) are not listed google the manufacture - most all of them have assistance programs offering drugs at a discount or no cost to the patient - Medicare does not exclude you from many of these.
Jack Hollenbach
jack_hollenbach@hotmail.com
Received double lung transplant August 2, 2007 for COPD at UCSD Thornton Hospital, San Diego, CA
Live each day to your fullest, for it is a gift to be treasured |
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Kim
Member
Username: Littlebrittle
Post Number: 1
Registered: 03-2011
| | Posted on Friday, March 04, 2011 - 08:15 pm: |
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 Thank you so much for the Rapamune info. I am going to call Monday. Thank you again!!!!
Kim Vallen |
Hostess Rise'
Board Administrator
Username: Rise
Post Number: 15859
Registered: 05-2003
| | Posted on Monday, March 07, 2011 - 02:58 pm: |
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Hi Kim
welcome to transplant buddies
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Jack R
Forum Leader
Username: Jack_r
Post Number: 365
Registered: 08-2010
| | Posted on Monday, March 07, 2011 - 03:46 pm: |
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Supplementing Jack's post this months Consumer Report Magazine has an Article titled "Best Buy Drugs" (page 24). It lists Select discount-drug programs and provides information on cost and, in some cases, minimal annual fees.
The article lists: Costco, CVS, Kmart, Kroger, rite, Target, Walgreens, and Walmart/Sams Club.
Some of them have 400+ listed medications, vitamins available.
Most programs are not valid with Medicare, Medicaid, or Tricare. The lists is generally priced at $4 per 30 day supply or $10 for a 90 day supply.
Cardiac history going back to 1993. Heart Transplant received in Oct. 2004. Interesting first year and have been very physically active ever since. I currently am pro-active with the SE PA. Gift of Life and a member of Johns Hopkins patient administered Heart Transplant Foundation.
Exercise - look around you and don't tell me you can't -Blog |
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LouLou
Forum Leader
Username: Manilaangel
Post Number: 1581
Registered: 09-2007
| | Posted on Friday, April 08, 2011 - 03:49 pm: |
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Has anyone had any experience with SCBN re: Patients Assistance program for medications?
I am having a problem getting a renewal for PAP for Prograf from the manufacturer. SCBN works like a membership and they are Patients Advocate and they informed me that for a minimal amount, they can get me the Prograf.
Help!!!!! I need some info if anyone had any experience with SCBN.
Many thanks!
Lou Lou
Forum Leader- Prayer and Inspiration
Kidney Transplant recipient
July 2007 Chicagoland
Every Moment is a Gift.
CELEBRATE LIFE each day!
RELAX, REPLENISH and CELEBRATE
One Moment, One Breath at a Time ...........
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Jack R
Forum Leader
Username: Jack_r
Post Number: 417
Registered: 08-2010
| | Posted on Saturday, April 09, 2011 - 09:01 am: |
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LouLou,
Good morning.
I haven't heard of SCBN so I Googled it and at face value, with their income requirements criteria, they may have potential to be of assistance.
Prior to completing their application, which has you give up a lot of information, I would contact your Transplant Hospital's Patient Assistance or Advocate department and ask them if they have heard of them or they have any other recommendations.
I would also check with the Better Business Bureau both locally and the area in which they are located.
regardless, please post your bottom line findings for it will prove beneficial to many others.
Cardiac history going back to 1993. Heart Transplant received in Oct. 2004. Interesting first year and have been very physically active ever since. I currently am pro-active with the SE PA. Gift of Life and a member of Johns Hopkins patient administered Heart Transplant Foundation.
Exercise - look around you and don't tell me you can't -Blog |
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Amy Tippins
Member
Username: Amytippins
Post Number: 22
Registered: 06-2009
| | Posted on Saturday, April 09, 2011 - 07:52 pm: |
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Astellas also has one that you can register for through www.transplantexperience.com (I think). They will give you up to $200 towards your prograf
RockScar Love is where we celebrate the scars of new life! www.Rock Scar Love.com
A portion of sales credited to Transplant Buddies goes to COTA! |
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LouLou
Forum Leader
Username: Manilaangel
Post Number: 1582
Registered: 09-2007
| | Posted on Saturday, April 09, 2011 - 10:08 pm: |
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Thanks Jack, will check.
Lou Lou
Forum Leader- Prayer and Inspiration
Kidney Transplant recipient
July 2007 Chicagoland
Every Moment is a Gift.
CELEBRATE LIFE each day!
RELAX, REPLENISH and CELEBRATE
One Moment, One Breath at a Time ...........
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LouLou
Forum Leader
Username: Manilaangel
Post Number: 1583
Registered: 09-2007
| | Posted on Saturday, April 09, 2011 - 10:15 pm: |
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This is what I found online about SCBN and its record with BBB.Check this link:
http://www.bbb.org/central-texas/business-reviews/medical-dental-discount-plans/selectcare-benefits-network-in-austin-tx-60175
I dont know how accurate this is but when I spoke to someone, they told me initial cost is $85.00 (50.00 for membership, plus $35 for Prograf) and monthly you pay $35 for Prograf .
Dont know how updated that BBB review is.Maybe I should check it out further.
Lou Lou
Forum Leader- Prayer and Inspiration
Kidney Transplant recipient
July 2007 Chicagoland
Every Moment is a Gift.
CELEBRATE LIFE each day!
RELAX, REPLENISH and CELEBRATE
One Moment, One Breath at a Time ...........
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Laura
Member
Username: Ldude916
Post Number: 2
Registered: 03-2011
| | Posted on Tuesday, April 19, 2011 - 11:12 pm: |
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Lou Lou,
NeedyMeds.org has a discount card that pays for 80% of drugs NOT covered by insurance.
If you use that in conjunction w/ your Prograf Card and the Astellas program that your doctor can sign you up for, it should be free Prograf.
Maybe that will help |
LouLou
Forum Leader
Username: Manilaangel
Post Number: 1584
Registered: 09-2007
| | Posted on Sunday, May 01, 2011 - 11:42 pm: |
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Thanks Laura for the info. Astellas did not approve my renewal so I will go the route you told me via NeedyMeds plus Prograf card? and see how much I still have to pay?
Lou Lou
Forum Leader- Prayer and Inspiration
Kidney Transplant recipient
July 2007 Chicagoland
Every Moment is a Gift.
CELEBRATE LIFE each day!
RELAX, REPLENISH and CELEBRATE
One Moment, One Breath at a Time ...........
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lowsodiumblog.com
Member
Username: Lowsodiumblogcom
Post Number: 8
Registered: 07-2011
| | Posted on Tuesday, July 19, 2011 - 01:07 am: |
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www.rxassist.org is a good resource. You can type in the drug name and it will pull up patient assistance programs for the drug, both brand and generic. You can look up most of your drugs in that one place rather easily.
www.lowsodiumblog.com
Adapting After Life Turns on a Dime.
Dedicated to Family, Shared with All. |
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Rachel
Member
Username: Rmorado
Post Number: 3
Registered: 11-2011
| | Posted on Friday, December 16, 2011 - 01:13 am: |
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Hi,
Hope you were able to find help with the prograf. I found help thru Astellas, they send me my first 30 days supply and the application is being process. They will notify me. I was approved for Valcyte thru patient assistance . I'm also taking Mepron which is expensive, I just bought one bottle today. It cost me $289./21 days. I have to spend $600.00 to appeal to this co. Good Luck! |
