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TransplantBuddies.org Forums » Medications - Dental - Skin » Myfortic « Previous Next »


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Myfortic and Hair Loss?!Barbaradennis02-25-10  08:51 am
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Hostess Rise
Board Administrator
Username: Rise

Post Number: 13654
Registered: 05-2003
Posted on Tuesday, July 13, 2010 - 09:00 am:   Edit Post Delete Post Print Post

Anyone here want to comment about their Myfortic experiences. In the past, we had many threads on Myfortic.
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0000075
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05
Debra Fertel MD- Med. Dir. Lung Transplant/Pulmonary Hypertension Programs
Jackson Memorial Hospital

Si Pham MD, Professor of Surgery, Dir. of Thoracic Transplant & Artificial Heart Program-Miam Transplant Institute

Anas Hadeh MD, Cleveland Clinic, Weston, Florida
CF consultant- Critical Care and Sleep Medicine

Sharing Knowledge is an Invaluable Experience
Transplant Friends & Chat
Questions- Contact Hostess Rise'
James
Member
Username: Jamie52

Post Number: 1
Registered: 09-2010
Posted on Tuesday, September 07, 2010 - 01:41 pm:   Edit Post Delete Post Print Post

Hi. I had my liver transplant on Oct. 28, 2009 at UCSF. My new liver is working great but I have had some issues arise, I believe due to Myfortic. I had experienced severe abdominal pain for eight months following surgery. I began to suspect that the pain might be related to Myfortic when I hit 3 months and was told that I should no longer be experiencing such heavy pain. All my other medications had been reduced at this point so I told my doctors that I suspected Myfortic might be causing the pain. Instead of looking into the possibility, pain medication was prescribed and it went on like that for 5 more months. I finally got my patient coordinator to look at my Myfortic dose 8 months out. They had not lowered the dose level since the surgery and I was still taking 1440 mg. daily. She cut the dose in half (720 mg/day) and the results were unbelievable. I experienced a huge drop in pain during the following week and this has continued to be true 3 months later. It has opened my life back up again and I am experiencing all of the benefits that I had always heard about. I am truly grateful to be alive.
Madfish
Member
Username: Madfish121

Post Number: 5
Registered: 10-2010
Posted on Monday, October 25, 2010 - 11:21 pm:   Edit Post Delete Post Print Post

I was on prograf and myfortic and had GI problems from it, vomiting every day and often diarrhea, it has gradually gotten better over a period of 4 years but I believe I was either allergic or extremely sensitive to its affects.
ModernHEALTH
Member
Username: Modernhealth

Post Number: 22
Registered: 05-2010
Posted on Saturday, December 18, 2010 - 09:13 pm:   Edit Post Delete Post Print Post

Myfortic is very similar to CellCept, however, there is no generic for myfortic (it is patent protected until 2017). From the myfortic site:

myfortic delivers the same highly effective antirejection treatment, called mycophenolic acid (MPA), as CellCept®. The difference between myfortic and CellCept is that myfortic is an enteric-coated formulation of MPA in a delayed-release tablet. This special coating keeps it from dissolving in your stomach right after you take it. The active ingredient is not released until it reaches your small intestine. It's important not to crush, chew, or cut myfortic tablets. Swallowing the tablet whole ensures the enteric coating remains intact. myfortic is patent protected (cannot be produced in generic form) until 2017. So if your healthcare professional prescribes myfortic, you can be confident that you'll receive myfortic every time with no chance of generic substitution.
ModernHEALTH, Pharmacy for Transplant Recipients
ModernHEALTH Transplant Pharmacy Services
cam172
Member
Username: Cam172

Post Number: 5
Registered: 12-2010
Posted on Monday, December 20, 2010 - 01:39 am:   Edit Post Delete Post Print Post

Ive been taken off myfortic today was causing way to many problems.
sslgot5
Member
Username: Sslgot5

Post Number: 34
Registered: 10-2010
Posted on Monday, December 20, 2010 - 07:10 am:   Edit Post Delete Post Print Post

I've had my kidney for 8 months and have been on 720 mg of myfortic from day 1. The most bothersome
Side affect has beeb a burning tingly sensation in my extremities mainly my toes about a hald hour after taking it
Come celebrate with me that every day something has tried to kill me and failed.

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