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Hostess Rise
Board Administrator Username: Rise
Post Number: 13654 Registered: 05-2003
| Posted on Tuesday, July 13, 2010 - 09:00 am: |
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Anyone here want to comment about their Myfortic experiences. In the past, we had many threads on Myfortic. http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0000075
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05 Debra Fertel MD- Med. Dir. Lung Transplant/Pulmonary Hypertension Programs Jackson Memorial Hospital Si Pham MD, Professor of Surgery, Dir. of Thoracic Transplant & Artificial Heart Program-Miam Transplant Institute Anas Hadeh MD, Cleveland Clinic, Weston, Florida CF consultant- Critical Care and Sleep Medicine Sharing Knowledge is an Invaluable Experience Transplant Friends & Chat Questions- Contact Hostess Rise' |
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James
Member Username: Jamie52
Post Number: 1 Registered: 09-2010
| Posted on Tuesday, September 07, 2010 - 01:41 pm: |
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Hi. I had my liver transplant on Oct. 28, 2009 at UCSF. My new liver is working great but I have had some issues arise, I believe due to Myfortic. I had experienced severe abdominal pain for eight months following surgery. I began to suspect that the pain might be related to Myfortic when I hit 3 months and was told that I should no longer be experiencing such heavy pain. All my other medications had been reduced at this point so I told my doctors that I suspected Myfortic might be causing the pain. Instead of looking into the possibility, pain medication was prescribed and it went on like that for 5 more months. I finally got my patient coordinator to look at my Myfortic dose 8 months out. They had not lowered the dose level since the surgery and I was still taking 1440 mg. daily. She cut the dose in half (720 mg/day) and the results were unbelievable. I experienced a huge drop in pain during the following week and this has continued to be true 3 months later. It has opened my life back up again and I am experiencing all of the benefits that I had always heard about. I am truly grateful to be alive. |
Madfish
Member Username: Madfish121
Post Number: 5 Registered: 10-2010
| Posted on Monday, October 25, 2010 - 11:21 pm: |
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I was on prograf and myfortic and had GI problems from it, vomiting every day and often diarrhea, it has gradually gotten better over a period of 4 years but I believe I was either allergic or extremely sensitive to its affects. |
ModernHEALTH
Member Username: Modernhealth
Post Number: 22 Registered: 05-2010
| Posted on Saturday, December 18, 2010 - 09:13 pm: |
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Myfortic is very similar to CellCept, however, there is no generic for myfortic (it is patent protected until 2017). From the myfortic site: myfortic delivers the same highly effective antirejection treatment, called mycophenolic acid (MPA), as CellCept®. The difference between myfortic and CellCept is that myfortic is an enteric-coated formulation of MPA in a delayed-release tablet. This special coating keeps it from dissolving in your stomach right after you take it. The active ingredient is not released until it reaches your small intestine. It's important not to crush, chew, or cut myfortic tablets. Swallowing the tablet whole ensures the enteric coating remains intact. myfortic is patent protected (cannot be produced in generic form) until 2017. So if your healthcare professional prescribes myfortic, you can be confident that you'll receive myfortic every time with no chance of generic substitution.
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cam172
Member Username: Cam172
Post Number: 5 Registered: 12-2010
| Posted on Monday, December 20, 2010 - 01:39 am: |
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Ive been taken off myfortic today was causing way to many problems. |
sslgot5
Member Username: Sslgot5
Post Number: 34 Registered: 10-2010
| Posted on Monday, December 20, 2010 - 07:10 am: |
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I've had my kidney for 8 months and have been on 720 mg of myfortic from day 1. The most bothersome Side affect has beeb a burning tingly sensation in my extremities mainly my toes about a hald hour after taking it
Come celebrate with me that every day something has tried to kill me and failed. |
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