| Author |
Message |
rod
Member
Username: Rodw
Post Number: 12
Registered: 12-2009
| | Posted on Sunday, August 01, 2010 - 08:44 am: | 
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Has anyone else had breathing problems and chest pain as a result of being on the above meds?I had to go back into hospital as I was having big problems ,and the hospital thought it might be as a result of being on this drug,and my reaction to it.Now they have taken me off tacrolimus/prograf and put me on neoral/ciclosporin.I WOULD LIKE TO KNOW IF ANYONE ELSE HAS FACED THE SAME PROBLEMS,AND IF SO,HOW LONG IT TOOK TO RECOVER FROM THE BREATHLESSNESS AND CHEST PAINS. |
Hostess Rise
Board Administrator
Username: Rise
Post Number: 13876
Registered: 05-2003
| | Posted on Sunday, August 01, 2010 - 11:31 am: |
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Hi Rod
I believe a friend of mine had this problem many years ago. I believe after reducing her dosage she was fine. I know someone who had this problem with Rapamune.
You are still having difficulty breathing? The only thing that I strongly believe could help you is what helped me. energy medicine. Read this and if you have any questions, let me know. You can always email me
http://www.transplantbuddies.org/tbx/messages/12043/11312.html?1280257053
With any new practice, practice practice practice!
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05
Debra Fertel MD- Med. Dir. Lung Transplant/Pulmonary Hypertension Programs
Jackson Memorial Hospital
Si Pham MD, Professor of Surgery, Dir. of Thoracic Transplant & Artificial Heart Program-Miam Transplant Institute
Anas Hadeh MD, Cleveland Clinic, Weston, Florida
CF consultant- Critical Care and Sleep Medicine
Sharing Knowledge is an Invaluable Experience
Transplant Friends & Chat
Questions- Contact Hostess Rise' |
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papillonbleu
Forum Leader
Username: Papillonbleu
Post Number: 1668
Registered: 10-2007
| | Posted on Sunday, August 01, 2010 - 01:14 pm: |
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I have been on Prograf since my transplant and have not experienced the symptoms you mentioned although I am sorry that you are. I hope you may fare much better with the other medication. I will keep you in my thoughts and prayers. Best of wishes.
Bobbiejo
Forum Leader-Multivisceral
dx: GERD 1995, gastroparesis 2002, pseudo-obstruction of the bowel 2004
multivisceral transplant, 6 organs, 10/06/05
University of Miami/Jackson Memorial Hospital
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Bernie
Member
Username: Bernie9339
Post Number: 3
Registered: 03-2008
| | Posted on Sunday, August 22, 2010 - 12:58 pm: |
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I too have been on Prograf since my transplant. I've never experienced any of those problems. Now my insurance company wants me to change to generic tacrolimus, but my transplant doctors say, "why take the chance"! I have to agree with them, I mean, they have been "dead right" on everything since my transplant.
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Hostess Rise
Board Administrator
Username: Rise
Post Number: 14166
Registered: 05-2003
| | Posted on Sunday, August 22, 2010 - 01:03 pm: |
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Hello Bernie,
I agree with you on this. Why mess with success?
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05
Debra Fertel MD- Med. Dir. Lung Transplant/Pulmonary Hypertension Programs
Jackson Memorial Hospital
Si Pham MD, Professor of Surgery, Dir. of Thoracic Transplant & Artificial Heart Program-Miam Transplant Institute
Anas Hadeh MD, Cleveland Clinic, Weston, Florida
CF consultant- Critical Care and Sleep Medicine
Sharing Knowledge is an Invaluable Experience
Transplant Friends & Chat
Questions- Contact Hostess Rise' |
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Mohan
Forum Leader
Username: Mraghavan
Post Number: 137
Registered: 12-2009
| | Posted on Thursday, September 02, 2010 - 11:17 pm: |
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Agreed. I have had the same problem with insurance companies, but I have made my doctors call them regarding this. It is best to stay with Prograf.
Mohan
Liver Transplant 04/18/2009
University of Colorado Hospital |
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