| Author |
Message |
Jo
Member
Username: Oxygirl
Post Number: 227
Registered: 05-2009
| | Posted on Friday, December 24, 2010 - 12:59 am: | 
|
Well, I just had the 24 hour ph monitoring, and let me just say that was full of kicks and giggles. I couldn't believe how miserable that was!! Anyway, my docs are suspicious of acid aspirating into my lungs, but we'll know more once the readings are interpreted from the test. Has anyone had fundoplication to correct this problem? I am 3 months out, so I'm not looking forward to recovering from something else, but I know I've got to protect these new lungs. Be straight and lay it out for me... how bad/good was the experience?
Dx with BOOP/IPF Nov 2004
Listed Dbl Lung Tx Jan 13 2010
Double Lung tx Sept. 17, 2010
Emory Hospital Atlanta
|
|
Jack R
Member
Username: Jack_r
Post Number: 200
Registered: 08-2010
| | Posted on Friday, December 24, 2010 - 07:34 am: |
|
Hello Jo.
Sorry to see you up so early in the morning. Never heard of Fundoplication so I went up to page top and used the search box, entered it, and GERD (my daughter has that) appears. Also, there are three different threads within Transplant buddies, on this subject.
I hope you get rid of this monkey and wish you well.
Keep us posted.
| Cardiac history going back to 1993. Heart Transplant received in Oct. 2004. Interesting first year and have been very physically active ever since. I currently am pro-active with the SE PA. Gift of Life and a member of Johns Hopkins patient administered Heart Transplant Foundation. |
|
LynnJ
Member
Username: Lynnj
Post Number: 31
Registered: 09-2010
| | Posted on Friday, December 24, 2010 - 06:24 pm: |
|
Jo,
My hubby is going to have this done as soon as he gets better from pneumonia. He has a large hiatal hernia that is causing aspiration and pneumonia. His PFT's have been going down each week and when we saw the doc in the clinic last Monday hubby was admitted to the hospital. He is on 3 different IV antibiotics and just finished 3 days of IV steroids. His doc said he can't leave the hospital until everything is fixed. Also when he was first admitted they did a cat scan with contrast and he has a small blood clot in his lung. They then did an ultrasound of his legs and found one in his leg. They put a filter in yesterday to prevent any clots from traveling from the leg.
They are going to try and fix the hiatal hernia either this coming week or next but he will be in the hospital until that is done. They are also going to do the nissen fundo something. I'm not sure of the exact name. It will be done laparascopically.
So hubby will be in the hospital all through the holidays. I just came home to feed our dogs. Thanks God that we live close to the hospital. Please pray for him. He is going through a lot.
Lynn
Lynn J
hubby with double lung TX 10/2/10 |
|
Hostess Rise'
Board Administrator
Username: Rise
Post Number: 15248
Registered: 05-2003
| | Posted on Friday, December 24, 2010 - 06:31 pm: |
|
Dear Lynn,
I will pray for your husband of course and for your peace of mind. It must be really hard on you in every way to see so much happening with your husband. Sounds like once they can do this wrap, his lungs will greatly improve.
|
papillonbleu
Forum Leader
Username: Papillonbleu
Post Number: 1829
Registered: 10-2007
| | Posted on Monday, December 27, 2010 - 08:58 am: |
|
Dear Jo,
I had a full nissen fundoplication in 1995 to treat what was thought to be acid reflux at the time. I had mine performed through an open procedure. It did help to prevent the refluxing for me, although I noticed I had more trouble with belching afterward, meaning it happened more often which would embarrass me. I did fairly well afterward until about 2000-01 or so when I began to have trouble swallowing. This gradually got worse. It was finally decided to take down my nissen fundoplication and during this open procedure, a build up of a lot of scar tissue was discovered that had to be removed. The swallowing then improved, although my reflux did come back, and I developed other symptoms that lead me to be diagnosed with gastroparesis, or a delay in stomach emptying. I do not know for certain if this latter was caused by the surgeries or something else as the doctor who first diagnosed me with gastroparesis thinks I may have had it before my first surgery and may have been misdiagnosed by the doctors that were seeing me at the time. Having both procedures done openly rather than through a minimally invasive procedure may have also made a difference, but I am not sure. I hope that if this is the route you need to go, you will have a much better experience with this than I did. Much time has passed since my first procedure, so hopefully doctors have more knowledge about how to better go about it. I will be sure to keep you in my thoughts and prayers, and I wish you only the best. Many hugs.
Bobbiejo
Forum Leader-Multivisceral
dx: GERD 1995, gastroparesis 2002, pseudo-obstruction of the bowel 2004
multivisceral transplant, 6 organs, 10/06/05
University of Miami/Jackson Memorial Hospital
|
|
papillonbleu
Forum Leader
Username: Papillonbleu
Post Number: 1830
Registered: 10-2007
| | Posted on Monday, December 27, 2010 - 09:00 am: |
|
Dear Lynn,
I hope that your husband's surgery will go well and he will be able to recover and heal as swiftly as possible. I will keep you both in my thoughts and prayers. Many hugs are being sent your way on the wings of hope.
Bobbiejo
Forum Leader-Multivisceral
dx: GERD 1995, gastroparesis 2002, pseudo-obstruction of the bowel 2004
multivisceral transplant, 6 organs, 10/06/05
University of Miami/Jackson Memorial Hospital
|
|
Jo
Member
Username: Oxygirl
Post Number: 238
Registered: 05-2009
| | Posted on Tuesday, February 01, 2011 - 10:14 pm: |
|
Thanks for your great information. I met with my transplant surgeon, and he will be doing a partial wrap(variation of the fundoplication) next week. I have the reflux issue as well as poor espohagus motility, so he will be working to fix both. I also have a large gallstone, which I didn't know I had, so another gastro surgeon will be coming in to remove that before my surgeon fixes the other. The hope is that by fixing my acid reflux, which is pretty severe, my lung function will improve. I'm dreading surgery again, as I am only 20 weeks out of my transplant. But, if it corrects the problem and protects these precious lungs, then I'm game. Dreading the pain again, though....
Dx with BOOP/IPF Nov 2004
Listed Dbl Lung Tx Jan 13 2010
Double Lung tx Sept. 17, 2010
Emory Hospital Atlanta
|
|
Karen R.
Forum Leader
Username: Relivkaren
Post Number: 5204
Registered: 07-2007
| | Posted on Friday, February 04, 2011 - 10:37 pm: |
|
Jo:
I hope all goes well. I am sure having surgery again is not what you wanted to do, but like you said - getting all that fixed will help keep those new lungs healthy.
I am sure you will get good pain meds, so just take them so you can heal quickly and get back to loving life!!
Let us know how things go!
God Bless!
Karen
Dx: BOOP - May 2006. Rediagnosed with Bronchiolitis Obliterans Nov. 2006
Double lung transplant on Dec. 1st, 2009
Cleveland Clinic
Ohio, USA
Be kinder than necessary because everyone you meet is fighting some kind of battle. |
|
Hostess Rise'
Board Administrator
Username: Rise
Post Number: 15638
Registered: 05-2003
| | Posted on Friday, February 04, 2011 - 11:00 pm: |
|
Hi Jo
Wishing you a successful surgery to keep you as healthy as can be.  Please write in when you are able to.
|
|
