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Hostess Rise'
Board Administrator
Username: Rise

Post Number: 17343
Registered: 05-2003
Posted on Wednesday, April 18, 2012 - 12:12 pm:   Edit Post Delete Post Print Post

Just curious

After taking your prograf, Rapamune ,Cyclosporine and other anti-rejection medications do you feel your side effects appear within one hour of administration or throughout the day?

Sometimes I feel a bit tired after taking Cellcept but then it subsides after eating a healthy meal.
CF- dx at 2yrs. 2nd double lung tx-05 JMH
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papillonbleu
Forum Leader
Username: Papillonbleu

Post Number: 2212
Registered: 10-2007
Posted on Friday, April 20, 2012 - 12:59 pm:   Edit Post Delete Post Print Post

I notice the effect of tremor in my hands caused by Prograf more often in the evening or in the morning. It does not seem to bother me so much throughout the day unless I am stressed about something and that can bring out the tremor any time of the day. The tremor though is not really that bad overall.
Bobbiejo
Forum Leader-Multivisceral
dx: GERD 1995, gastroparesis 2002, pseudo-obstruction of the bowel 2004
multivisceral transplant, 6 organs, 10/06/05
University of Miami/Jackson Memorial Hospital

DenisePA
Member
Username: Denisepa

Post Number: 4
Registered: 02-2012
Posted on Wednesday, April 25, 2012 - 01:08 pm:   Edit Post Delete Post Print Post

Yes I do feel side effects about an hour after taking my meds.. in fact, I took my AM pills very late one AM, so I had to adjust the PM dose, I actually awoke with the typical symptoms after falling asleep.. talk about clockwork side effects!!

My tremors are getting a tad better, but mainly most annoying when trying to perform fine motor skills, ie: plucking eyebrows, makeup application, never mind threading a needle.. and never ever eat soup in public.. ;)
Hostess Rise'
Board Administrator
Username: Rise

Post Number: 17358
Registered: 05-2003
Posted on Monday, April 30, 2012 - 12:46 pm:   Edit Post Delete Post Print Post

Hi Denise and Bobbiejo


I often feel sleepy after taking my medications.
Glad to hear that both of your side effect are improving.
CF- dx at 2yrs. 2nd double lung tx-05 JMH
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ed
Forum Leader
Username: Ed2001

Post Number: 317
Registered: 03-2010
Posted on Tuesday, May 15, 2012 - 09:26 pm:   Edit Post Delete Post Print Post

When my drugs are on the high side, I did often feel then between 1 to 2 hours after taking.
Kidney Transplant
April 2001
Hostess Rise'
Board Administrator
Username: Rise

Post Number: 17384
Registered: 05-2003
Posted on Wednesday, May 16, 2012 - 05:13 pm:   Edit Post Delete Post Print Post

Thank you Ed!

Now that I think about it, I tend to have anxious thoughts when my serum levels goes up.
CF- dx at 2yrs. 2nd double lung tx-05 JMH
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DenisePA
Member
Username: Denisepa

Post Number: 6
Registered: 02-2012
Posted on Saturday, June 02, 2012 - 12:43 pm:   Edit Post Delete Post Print Post

This medication regime is by far one of the most complex. I suppose journaling symptoms could shed some light on what levels do to ones symptoms..
Heart Transplant 8.30.2012
Hahnemann Hosp,Phila,PA
Starla
Member
Username: Starla_sagehotmailcom

Post Number: 82
Registered: 01-2010
Posted on Friday, June 08, 2012 - 09:21 am:   Edit Post Delete Post Print Post

Rise
After taking morning meds with food, I often feel tired about an hour and a half later. For a long time I didn't realize it was the drugs until my doctor mentioned it. It's the Myfortic or tac. I used to just lay down for a while. But it seems to be getting better, I have been in training to walk a half marathon in 3 weeks so maybe that is helping......I will know after the race.....

Starla
Loving and living life to the fullest!
Bilateral Lung Tx 2/12//11
Sarcoidosis 6/04/04
UW Med Center Seattle
Hostess Rise'
Board Administrator
Username: Rise

Post Number: 17431
Registered: 05-2003
Posted on Friday, June 08, 2012 - 09:38 am:   Edit Post Delete Post Print Post

Good for you Starla training for a marathon. We must see some pictures. Enjoy!

I have found that when I watch my carbs during my medications time, the tired feeling does not seem so bad.

Some do take their medications on an empty stomach. Perhaps pay attention to adding a balanced meal a few hours before taking your drugs and a good balanced meal after one hour of taking your meds.

Just suggesting.
CF- dx at 2yrs. 2nd double lung tx-05 JMH
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