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RobertBarnes
Member
Username: Robertbarnes

Post Number: 1
Registered: 06-2013
Posted on Thursday, June 06, 2013 - 05:12 pm:   Edit Post Delete Post Print Post

HI my name is Robert.
I had a heart transplant 7 years ago. Since then, I've tried several times to motivate myself to begin exercising. I am able to exercise for a few minutes, and then I lose my energy. If I am weight lifting I can barely bench the 45lb bar 10 times. If I am running, I will be able to run about 1 mile. After that I feel like I am about to pass out.

My normal resting heart rate after surgery is 100bpm. When I exercise, it increases to 150-160bpm. I spoke with doctors about it and they said it was normal. They told me that it will slowly start getting better, but I can't over work myself.

The medications I am on are as follows:
Anti-rejection - Tacrolimus, Sirolomis
Blood Pressure - Lisinopril
Anti-Cholesterol - Prevastatin
Preventative - Bactrim

Supplements and minerals:
Magnesium oxide
Iron
Multivitamin
Vitamin B12 complex
Fish oil
CQB
Flaxseed oil

Does(Did) anyone else have this issue? A lack of energy?
If so, what kind of supplements and vitamins can I take to help?
What kind of diet should I start?
How do I start exercising without over exerting myself?

Thanks.}
Hostess Risé
Board Administrator
Username: Rise

Post Number: 17720
Registered: 05-2003


Posted on Thursday, June 06, 2013 - 05:23 pm:   Edit Post Delete Post Print Post

Hi Robert:-)
Welcome! You are blessed to have received your new heart.
Just like waiting for your new heart it takes time to recover.

If you are following a healthy diet and exercise, just keep at it. Don't think about how you can improve just do your best each day.

Instead of trying to run for one minute try jogging for thirty seconds, then walk, jog again, walk until you feel the energy to run. This can take a few weeks or maybe longer. You will know when the time is right. If you push too quickly you just might hurt yourself or cause injury to your joints and muscles.
Try and go for endurance.

About your supplements, they sound good to me. Do you mean CQ10?

Do you consume sugary foods? If so, this might be the cause of your lack of energy.

share more...

I follow a high protein, low carb, moderate healthy fat diet. I am gluten free which I feel lowers inflammation within the body.

Cisco who is also a member of our sister site can probably help you with your questions. I will tell him to visit this site.

Take care and never quit- just keep up the good work
CF- dx at 2yrs. 2nd double lung tx-05 JMH
My Photos on Transplant Friends

Facebook-TransplantBuddiesfriends

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Contact: transplantbuddies@gmail.com
RobertBarnes
Member
Username: Robertbarnes

Post Number: 2
Registered: 06-2013
Posted on Thursday, June 06, 2013 - 05:35 pm:   Edit Post Delete Post Print Post

THanks for replying. I don't have a lot of sugar, mostly just the natural fruits. I allow myself to have the "unhealthy" food on sundays which is my cheat day. Would you be willing to share your diet? I have been thinking about cutting out gluten, but I don't know what types of meals to eat then.
RobertBarnes
Member
Username: Robertbarnes

Post Number: 3
Registered: 06-2013
Posted on Thursday, June 06, 2013 - 05:35 pm:   Edit Post Delete Post Print Post

THanks for replying. I don't have a lot of sugar, mostly just the natural fruits. I allow myself to have the "unhealthy" food on sundays which is my cheat day. Would you be willing to share your diet? I have been thinking about cutting out gluten, but I don't know what types of meals to eat then.
Tamara
Member
Username: Heppygirl

Post Number: 105
Registered: 05-2011


Posted on Friday, June 07, 2013 - 04:26 am:   Edit Post Delete Post Print Post

One Question: You bpm in rest is 100? And the doctors find that normal? I find that very high.. My bpm in rest is 60... When I work out I reach 120-130 but I can't get higher... But maybe I'm not normal haha.

What IS normal actually? What is the average here on this forum?
Tamara
26y/o, from the Netherlands
Cystic Fibrosis, Dxed at birth
Bilateral lungtransplant, September 2010
http://muffinmeetsworld.blogspot.com

Anywhoo...
CiscoKidney07
Forum Leader
Username: Gregg

Post Number: 5523
Registered: 03-2008
Posted on Friday, June 07, 2013 - 08:24 am:   Edit Post Delete Post Print Post

Robert, the first thing I will tell you is that maybe you need to do brisk walking instead of running. Are you doing your cardio outside or do you have access to a treadmill? You can vary speed and incline if you do. If not, I would try walking and increasing speed as time goes on. The first thing that I would do though is to slowly increase the distance as this will build endurance. If you send me a pm with a friend option, I would be happy to give you some more advice. Good luck! My bpm at rest is 61, but I have had a bpm well into the 150's when on the treadmill. I think "normal" depends on the person. But I am anything but "normal". LOL!!
Never underestimate what you can do if you believe

Check out my daily fitness blog postings
Russ
Member
Username: Rjwitte

Post Number: 149
Registered: 06-2009


Posted on Friday, June 07, 2013 - 10:21 am:   Edit Post Delete Post Print Post

Robert,

Thanks for joining. I am 14 years post transplant and in my 40's and exercise quite vigorously. During a heart transplant the parasympathic nerve is cut to the heart, I think of it like the 'throttle' so normal is definitely 95-105 at rest. Mine sits there when I'm awake. It'll drop to high 80's when I'm sleeping. If I intentionally slow down my breathing (meditation) I can drop it into the low 90's when awake.

I aim for 135-145 BPM for a typical exercise session. It takes longer to get there than normal, again because the nerves are gone, and longer to recover after I slow down. Make sure you give yourself a good 15-20 minute warm up (walking!) before you try heavy lifting or running. Rise and Ciscokidney have good advice ... don't try to do everything at once, build up endurance over time. Ask your cardiologist if a prescription to cardiac rehab may be appropriate. Sometimes 5-10 sessions with a trainer can give you ideas on how to build up to more intense activities.

This weekend I'm doing a 5K with my family to benefit the local schools. Life is good and we enjoy every moment of it!

Take care.

Russ
Russ - Heart Txp, 1-1-1999
Univ. of Michigan
Russ
Member
Username: Rjwitte

Post Number: 150
Registered: 06-2009


Posted on Friday, June 07, 2013 - 11:34 am:   Edit Post Delete Post Print Post

Robert,

One other point ... if I try to begin exercise without a warm-up, or stop very abruptly without a cool down, my blood pressure drops very fast because the heart can't compensate that quickly. My muscles feel like lead and sometimes I even get light headed. This may be what you are experiencing. Giving yourself enough time for your heart to recognize its demands is very important. You can do hard work, just recognize that it will take some time to prep yourself for it.

Russ
Russ - Heart Txp, 1-1-1999
Univ. of Michigan
Abbott
Member
Username: Abbott

Post Number: 1
Registered: 01-2014
Posted on Wednesday, January 08, 2014 - 05:53 am:   Edit Post Delete Post Print Post

You can do some light cardio exercises for your fitness purposes.
Walking, jogging, and sits ups can be more suitable workouts for your to improve your heart health and maintain your fitness level.

Abbott
Member
Username: Abbott

Post Number: 6
Registered: 01-2014
Posted on Saturday, January 11, 2014 - 02:52 am:   Edit Post Delete Post Print Post

You can do some light cardio exercises for your fitness purposes.
Walking, jogging, and sits ups can be more suitable workouts for your to improve your heart health and maintain your fitness level.

http://www.pinterest.com/adambootcamp/maitland-boot-camp/
Adam Prowse Personal Trainer,
2/539 High Street Maitland,
New South Wales 2320, Australia

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