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ott13979
Member
Username: Ott13979

Post Number: 1
Registered: 08-2009
Posted on Saturday, August 29, 2009 - 11:02 am:   Edit Post Delete Post Print Post

Hi my name is Eric and received my kidney from my bro about 5 weeks ago (What do I get the guy for his b-day? "hey bro thanks for saving my life.... I got a star named after you....") it has been a great experience but now I am feeling good and I wanna get back out there!!!!

Just a little background: prior to kidney failure I was your typical 30-50 mile per week runner.... 2 days after surgery I walked a few miles on the floor.... now that I've been home for about 4 weeks I've been walking 4 miles per day (every day like clock work)

Now I wanna start running!!!!! How weeks did you guys wait post-op to start running?

Eric
CiscoKidney07
Member
Username: Gregg

Post Number: 2496
Registered: 03-2008
Posted on Saturday, August 29, 2009 - 04:39 pm:   Edit Post Delete Post Print Post

I think I would still consult with the doctors. The main thing they don't want you to do is to rip yourself open or give yourself a hernia. Walking is a little different than running. If I were you, I would work into it. JMO
Just do what the directions tell you. Take two tylenol and keep away from children
Hostess Rise'
Board Administrator
Username: Risa

Post Number: 10203
Registered: 05-2003
Posted on Saturday, August 29, 2009 - 04:42 pm:   Edit Post Delete Post Print Post

Welcome Eric to Transplant Buddies:-)

You and Cisco have so much to share.. Check out his blog. Perhaps you can start one too on this site.

The more avid fit people around, the more others will join you. It is contagious.

You are one blessed young man to have such a wonderful brother. I am sure when he sees you run, he feels so great inside.
Founder of TransplantBuddies

Contact transplantbuddies@gmail.com

History-
Cystic Fibrosis- diagnosed at 2 years old
Florida, USA
1st Tx - 96 LUMC
2nd double lung tx-05 JMH

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Karen R.
Member
Username: Relivkaren

Post Number: 3465
Registered: 07-2007
Posted on Saturday, August 29, 2009 - 08:27 pm:   Edit Post Delete Post Print Post

Eric:

Welcome to Transplant Buddies! Congratulations on your new kidney transplant. It sounds as if you are doing terrific! I am still waiting for my double lung transplant, but wanted to welcome you to the site.

I hope you continue to visit. We look forward to getting to know you!

God Bless!
Karen
Dx: BOOP - May 2006. Rediagnosed with Bronchiolitis Obliterans Nov. 2006
Listed Feb 2008 - Waiting on double lung transplant at Cleveland Clinic

Ohio, USA

Be kinder than necessary because everyone you meet is fighting some kind of battle.
ott13979
Member
Username: Ott13979

Post Number: 2
Registered: 08-2009
Posted on Sunday, August 30, 2009 - 07:59 pm:   Edit Post Delete Post Print Post

hey guys & gals.... thanks so much for the info.... I will consult my doc's before I start running.... I do have a fast pace walking :-) I fill a little odd swinging my hips/arms...

I've also been doing a ton of research on my diet..... in my past I never watched my diet (cholesterol, calcium intake, BP, etc..)... now that I got the new kidney I am on a mission to eat better

btw... how do you see blogs?

Eric

p.s. hang in there Karen
Bree
Member
Username: Brianne

Post Number: 15
Registered: 04-2009
Posted on Sunday, September 20, 2009 - 10:39 pm:   Edit Post Delete Post Print Post

Hey Eric..Im a runner too and I had a liver transplant in April..my doctor gave me the okay to start running again around the middle of june!! just take it easy..the first few weeks back are rough so dont get frustrated if you're not up to par right away..im a lil over 5 months out now..back and school and running on my cross country team again..i feel great..no aches or pains! :-) so best of luck!
Mashka
Member
Username: Mashka

Post Number: 20
Registered: 11-2009
Posted on Tuesday, November 10, 2009 - 03:50 pm:   Edit Post Delete Post Print Post

Hey Eric,

how is it going? Did you start running yet?

Im amazed you were covering that many miles so soon after transplant, thats awesome!
Liver transplant 8.14.09
Mount Sinai, NY
ott13979
Member
Username: Ott13979

Post Number: 5
Registered: 08-2009
Posted on Sunday, December 27, 2009 - 11:08 pm:   Edit Post Delete Post Print Post

Hey Mashka,

Yeah I am back running 3 - 4 times per week outdoors..... It's been really nice to strap on the shoes

Eric
CiscoKidney07
Forum Leader
Username: Gregg

Post Number: 2951
Registered: 03-2008
Posted on Thursday, December 31, 2009 - 08:26 pm:   Edit Post Delete Post Print Post

Eric, ain't it a little on the chilly side to run outdoors? I run on a treadmill inside so I don't fweeze my wittow tush. Too darned cold outside here!!
There are not too many things in life worth working my butt off for, but my health is one of them
Marathon Man
Member
Username: Donald_arthur

Post Number: 2
Registered: 02-2009
Posted on Sunday, January 03, 2010 - 04:39 pm:   Edit Post Delete Post Print Post

It's a new year and I am looking forward to participating in TB. As a racewalker/walker I am looking forward to getting back into action. Since my last marathon in April, Lumbar Spinal Stenosis has kept me on the sidelines. Unable, to walk without pain or intense discomfort has really taken a toll on my life style so on December 16, I underwent a successful lumbar laminectomy and now I am able to walk without pain. Yesterday, I went to Central Park in the freezing cold with high wind just and did 3 miles and it felt so good.
Hostess Rise'
Forum Leader
Username: Risa

Post Number: 11980
Registered: 05-2003
Posted on Monday, January 04, 2010 - 11:54 am:   Edit Post Delete Post Print Post

Hi Marathon Man

Welcome! Sounds like you will be back in action in no time. Tell us more about yourself.
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05 JMH
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Marathon Man
Member
Username: Donald_arthur

Post Number: 3
Registered: 02-2009
Posted on Tuesday, January 05, 2010 - 06:14 pm:   Edit Post Delete Post Print Post

Hello Risa, as you know I have been doing marathons since my heart transplant a total of 41 and that dosen't include 1/2 marathons and everything in between to promote organ donation. I live in the borough of the Bronx, New York.
CiscoKidney07
Forum Leader
Username: Gregg

Post Number: 2970
Registered: 03-2008
Posted on Tuesday, January 05, 2010 - 07:37 pm:   Edit Post Delete Post Print Post

I guess I am just a sissy from the midwest. I have no desire to run outside and get my foot permanently stuck to the ground due to the inclement weather we are having. I could get mistaken by folks for an ice sculpture. And I would be praying that there were no neighborhood dogs. LOL!! I have, however, been running my mini marathons on a treadmill. People are inspired by me when they see that even an organ recipient can run. I exercise more than most of them do.
There are not too many things in life worth working my butt off for, but my health is one of them
kristi
Member
Username: Kristi

Post Number: 4
Registered: 02-2010
Posted on Thursday, February 04, 2010 - 07:05 pm:   Edit Post Delete Post Print Post

Hi everyone! I am new to the forums but I am so glad I found this place. It is nice to have people really know how you are feeling because they are going thru or have been thru the same challenges and obstacles and have experienced another chance at life.

I was also a very avid runner and cyclist before transplant and during PD, much to the dismay of my nurse at times. My kidney transplant was on Dec. 14, 2009 and my doctors told me to wait 6 months to run. I just recently had my stint removed. Has anyone that has started running seen any difference in their creatnine or the way the antirejection meds are being absorbed because of their running or intense exercise?

I took spin class and was jogging and I noticed blood in my urine while the stint was in but now that the stint is out there has been no blood in the urine. Also, it seems if I run on the days prior to my lab work my creatnine is about a 1.3 but I didn't work out yesterday and my creatnine jumped to 1.7. Has anyone else experienced any of these things?
Mashka
Member
Username: Mashka

Post Number: 76
Registered: 11-2009
Posted on Thursday, February 04, 2010 - 10:19 pm:   Edit Post Delete Post Print Post

Hi Kristi!

Congratulations on your transplant! :-)

I too was very happy to find this website after my transplant. Its hard for people that did not go through what we are going through to understand us sometimes. But here, you always find someone who is on the same page as you are.

I am a liver recepient so for me its a bit different. My drs only rule was not to lift anything over 15lbs. But walking and ruinning theyr were all in favor.
I am not aware of my creatine levels but all test results would not change due to my work outs. Again maybe kidney it is differe
nt.
Liver transplant 8.14.09
Mount Sinai, NY
CiscoKidney07
Forum Leader
Username: Gregg

Post Number: 3131
Registered: 03-2008
Posted on Friday, February 05, 2010 - 07:03 am:   Edit Post Delete Post Print Post

kristi, just remember that creatnine levels can be affected by how well hydrated you are, so keep yourself well hydrated and see what happens to your levels.

~Cisco
There are not too many things in life worth working my butt off for, but my health is one of them
Hilary
Member
Username: Cowgirlhilary301

Post Number: 23
Registered: 05-2009
Posted on Monday, February 22, 2010 - 11:20 am:   Edit Post Delete Post Print Post

I am also a liver recipient, so things may be different. After my transplant I had no restrictions on activity--it was take it slow and listen to my body and do whatever I felt up to doing. I do know that creatinine levels can be affected by hydration, and if you exercise and don't drink enough you could be dehydrated. I also think exercise may affect the levels of the antirejection meds or how they are absorbed but am not positive on that. Exercise is healthy though, so I wouldn't stop doing it, but maybe your meds need to be adjusted if you are more active? Also I think that weight lifting can impact creatinine because of something to do with creatine which is a substance muscles create when you do muscle building work and which turns into creatinine, or something?? I do not think things like running or cycling or swimming impact levels but maybe depending the amount of muscle activity can affect it.

I am an avid exerciser and strongly encourage exercise, think it is healthy in many ways. I would just say mention these questions to your coordinator and get their advise on how to best work into an exercise program.
~Hilary~
2-time liver recipient 07.20.1996 and 03.01.2001 Dallas, TX
Transplant Games Athlete, Tennis/Swimming
Team Maryland
james57
Member
Username: James57

Post Number: 2
Registered: 04-2010
Posted on Wednesday, April 07, 2010 - 12:49 pm:   Edit Post Delete Post Print Post

Congrats on the TX ..

I was running (well 200m and rest and 200 ...) 3 wks after TX. Its now a year and am back to longer distances ie: 15km but always have some kind of discomfort mostly in the abs.. nothing preventing me from running or cycling but slows me down a bit. After almost 2 yrs of sitting on a couch, I just can't say enough how much I happy to suffer a bit. Cycling seems easier as it puts less strain on the abs. I thought a TT position would be more difficult but so far so good.
JC
Member
Username: Jcab

Post Number: 11
Registered: 12-2010
Posted on Monday, January 24, 2011 - 01:48 pm:   Edit Post Delete Post Print Post

I have been looking for this post for like 2 weeks now! I just received a kidney recently and I remember the doctor told me to stay away from contact sports and marathons. But since I got my new kidney I feel like I am my old self and I can run one and play paintball again. Contact Sports is self explanatory but why are they against marathons? Can it hurt the kidney?
John C.
Hypertensive Nephropathy
Kidney Transplant December 2010
"http://ijohn4.blogspot.com/"\
Dottie Lessard
Forum Leader
Username: Dottie_lessard

Post Number: 138
Registered: 03-2009
Posted on Monday, January 24, 2011 - 02:55 pm:   Edit Post Delete Post Print Post

Hi John, I would take the advice...and motivation...of all these posts above and suggest you talk to them at your next visit.

I am assuming they mean stay away from marathons until you are further out but who knows. Every med team has their own opinion but I think more communication with the doctor will help.

let him know your goals (never limit yourself!) and ask him for advice on how to safely go about them. I wouldnt say marathons can hurt your kidney however, anything too excessive or done without the best care can be harmful. Spread your wings and enjoy this new journey..

Good luck and I look forward to hearing how you soar....

Dottie
Dottie,
Author of "The Seven Letters That Saved My Life"
Coach, Athlete and Mom to Liam
Survivor of
Cystic Fibrosis, Double lung transplant 94, Kidney transplant, 02
www.dottielessard.com
WholeBodyWellbeing.com
ASK DOTTIE...
Dottie's Lessard TransplantBuddies Blog
BOBBY
Member
Username: Trackman

Post Number: 23
Registered: 06-2010
Posted on Monday, January 24, 2011 - 06:26 pm:   Edit Post Delete Post Print Post

I had a liver transplant July 25th 2010 just one month after finishing my 2nd Marathon.
Doctors said to run when I felt like it but not to push to hard. I was running slowly again in 4 weeks and completed a 5K at 4 months post transplant. Then I contacted Valley Fever due to weak immune system, nothing to do with running but I knew early that something was wrong because I could not go 2 miles after finishing a 7 mile run a week earlier. it's been about 6 weeks now and Valley Fever seems to be under control so am back on a treadmill for 2 miles a few times a week. Doctor still says running is good just go slow and build miles very slowly. Still think I have at least a half Marathon inside me somewhere.
on the list.
Phoenix Mayo Hospital

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