Post Number: 2
|Posted on Wednesday, May 05, 2010 - 09:49 pm: ||
HI I am Gene,I got hep c from a tatoo at age 17 over seas in the USMC. I did not know until 2002 when my liver was at a point of no return at Cleaveland clinic,they gave no hope,by2004 I was at UPMC in Pittsburg, I had pulmanary hyper tension they not able to approve me because i also needed lungs they sent me to a cartiologest,but to no avail,then in1-9-09the doctor talked about a double lung liver transplant,after being terminal since 2004 I did not know how to react there was a 40 percent chance I even wake up.not even about rejection,just to waik up.It was 22 hours for both lungs and liver to be done,thier were some complications,but I am alive and well .I pray i never ever need to do it again.it was by far the hardest thing I ever did.I still waik and every day still feel like a miracal and am I am thank full to my donner and all the medical people.I still believe I had to almost die to really learn how to live.Thank you,my friends.
Post Number: 9
|Posted on Wednesday, May 05, 2010 - 10:32 pm: ||
Wow, amazing story Gene! Glad you were blessed with your trasnplants and recovery!
I can't imagine needing to get a liver and a double lung transplant.
My boyfriend has been awaiting a liver transplant due to HEP C- HOwever everything is on hold now, since he contracted a bad lung infection (MRSA)- now I'm worried about his pulmonary condition now, and hoping he gets rid of this lung condition too...He's hospitalized and on heavy antibiotics.
Thanks for your inspiring words,
Post Number: 13010
|Posted on Thursday, May 06, 2010 - 10:32 am: ||
Welcome to transplantbuddies Do you know Patti Prince? She is a member here who had the first double lung and liver transplant at Cleveland Clinic in Ohio.
I hope you can chat one day soon. I am going to send your story to a friend.
Post Number: 4441
|Posted on Wednesday, May 12, 2010 - 09:42 pm: ||
Welcome to Transplant Buddies! Goodness! You have an incredible story. I am so glad to know that your lung and liver transplant was successful and you are a walking miracle. That is so awesome!
I hope you continue to visit. We look forward to getting to know you!
Dx: BOOP - May 2006. Rediagnosed with Bronchiolitis Obliterans Nov. 2006
Double lung transplant on Dec. 1st, 2009
Be kinder than necessary because everyone you meet is fighting some kind of battle.
Post Number: 1
|Posted on Thursday, December 09, 2010 - 05:49 pm: ||
Does anyone know how often lung / liver transplant have been done? I had a bilateral lung tx in 2006 but now have chronic rejection and down to 23% function. The docs say I needed a lung/liver the first time but they missed the dx. They say if I get a 2nd tx I need a liver as well. thank you.
Post Number: 114
|Posted on Thursday, December 09, 2010 - 06:47 pm: ||
I do not know myself but i would suggest you look on the UNOS site-and, if it does not have the info you are looking for available, you could send an email them to ask.
Whatever the answer is I am wishing you a short wait and a long life with new and healthy lungs and liver. May your new journey be blessed with comfort, hope, success and LIFE.
I will be keeping you in my thoughts and prayers, and look forward to hearing your new success very soon
Author of "The Seven Letters That Saved My Life"
Coach, Athlete and Mom to Liam
Cystic Fibrosis, Double lung transplant 94, Kidney transplant, 02
Post Number: 15107
|Posted on Thursday, December 09, 2010 - 08:06 pm: ||
Welcome to TransplantBuddies! There are several folks on this site who had a double lung and liver transplant. Would you like for someone who had a lung.liver transplant contact you?
Wishing you well,