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Share Your Heart Transplant Story
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Hostess Rise'
Forum Leader
Username: Risa
Post Number: 10557
Registered: 05-2003
| | Posted on Monday, October 12, 2009 - 02:21 pm: | 
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The year was 1979 and my mom gave birth to her youngest child and that was me. Their beautiful (so they say) blue eyed blond little bundle of joy was born with a congenital heart defect, known in layman terms as a single ventricle. As a baby, I had my first catheter to determine if any surgical procedures would be necessary in the near future. They determined at the time that I can live a near to normal life for the time being as long as I was being monitored once a year. I would eventually need a simple routine surgery with a 97% success rate to correct the problem. Aside from being cyanotic, my childhood was pretty normal. I attended school and sleep away camp. I had a difficult time playing sports because I would get out short of breath thirty seconds into all my games. When anyone would ask as to why my lips were always blue, my response would be that’s, “ the style, get with the program!” Aside from sports I was usually the life of the party always having a good time.
I had one or two minor heart episodes consisting of heart palpitations in the first fifteen years of my life. My amazing doctor, who we loved and still love, recommended I go for the routine 97% success rate surgery. It was not a rush and there was no need to worry, but I would need it eventually so why not do it when I was young and healthy. Since she was retiring at the time, she recommended me to another doctor in a different hospital. She only wanted the best for her patients. After meeting my new doctor and surgeon and having my third catheter just three weeks after my second, I would be out of the hospital within ten days. I fell into the three percent category. Four months, three surgeries, a catheter, numerous intubations, a couple of chest tubes, my sixteeth birthday, thousands of prayers, hundreds of Intravenous, blood tests, and tears that could have flooded NYC,I walked out with a new heart.
I can literally write a book on my experience which I summed up in one run-on sentence above.
However, to give some encouragement to all of you waiting or who have had your transplants, I will tell you this: I could not wait to get back to school and start having a good time again. This happened! College was fun. I got married to the most beautiful and amazing person ever (I still wonder why she married me). My baby just turned two years old and is the cutest, funniest, most gorgeous little girl in the world!
(My brother still wants to know why it’s taking me so long to fall into the three percent category of people who win the lotto!)
-written by Heartman
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Happy2Bhere
Forum Leader
Username: Happy2bhere
Post Number: 4332
Registered: 02-2008
| | Posted on Saturday, October 22, 2011 - 12:17 pm: |
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Don't really know where to post this great news....
Most recent update on my young heart pal Alex Wood of Florida, the young man who relied on the Berlin Heart Pump several years ago whilst waiting on his donated heart transplant.
Alex is doing very well and is going to a private church school this year. He likes it and since it is small classrooms he gets the help he so badly needed in some subjects. I also like it as they don’t teach religion but do teach the bible and of course have prayer everyday and that is a plus. He was allowed to pick a sport and his doctors gave him permission to take a Karate class and is enjoying it. He did come home the other day though and said he was in pain….those kicks are killing his legs but I’m sure as he progresses he will build up those muscles. He also belongs to a bowling group now that he goes to every Saturday morning.
It was important for him to get into some kind of activities since most of his friend play either football or baseball and his doctors said no they didn’t want him involved in any contact sport. Haven’t asked about basketball. He is growing so tall he would be a good candidate for it I’m sure. He does play with the kids around here that have hoops in their yards. We had one here but the weather took a toll on it and have not replaced it as there is a park down the way from us that has a basketball court. Alex eats constantly and is “growing like a weed” He is into a size 18 now because of his height. Wears a 12 ½ shoe so if he grows into his feet he should be a big boy. His father is 6 foot tall but his Mother is only 5ft. 2 inches. They predict that he will be at least 6 feet tall. All is all Alex is doing great and his heart is going strong. Sarah was a black belt in Karate so maybe there is a connection there.
Sarah(mentioned in the last sentence), was Alex's heart donor.
 in 2007
Ol' Bob
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Hostess Rise'
Board Administrator
Username: Rise
Post Number: 16789
Registered: 05-2003
| | Posted on Saturday, October 22, 2011 - 01:33 pm: |
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Thank You Bob
You chose a fine spot for sharing this wonderful news today about Alex.
Thank you for adding the last sentence about Sarah. Sarah was on my mind the entire time I read Alex's update.
If you would like to create a private page about Alex with photos etc. with permission of course click on this special link
http://www.transplantbuddies.org/cgi/tbx/board-post.cgi?HTTP_REFERER=/28633/82504.html&action=form Located bottom of the blog list on this thread.
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Hostess Rise'
Board Administrator
Username: Rise
Post Number: 16974
Registered: 05-2003
| | Posted on Friday, December 23, 2011 - 01:55 pm: |
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Just wanted to say Happy Hoildays to all
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Hostess Rise'
Board Administrator
Username: Rise
Post Number: 16999
Registered: 05-2003
| | Posted on Thursday, December 29, 2011 - 04:54 am: |
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wishing you all a Wonderful Holiday
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rsmicromax
Member
Username: Rsmicromax
Post Number: 1
Registered: 01-2012
| | Posted on Saturday, January 14, 2012 - 04:42 am: |
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