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Message |
Hostess Risa
Member
Username: risa
Post Number: 6636
Registered: 05-2003
| | Posted on Wednesday, October 08, 2008 - 08:22 am: | 
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Hi all !
I am so excited to have our own Blogs, forum style. I will be back to blogging very soon. I am trying to rest as I have been feeling under the weather lately. I will be back in action in no time at all.
If you have your own personal blog on another Blog site feel free to copy some of your content here, I am sure this will be appreciated by our members. Take care and have Great Day!
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Hostess Risa
Member
Username: risa
Post Number: 6644
Registered: 05-2003
| | Posted on Wednesday, October 08, 2008 - 07:16 pm: |
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http://www.stevepavlina.com/
This is a very interesting and super popular Blog. Steve Pavlina writes about Personal Development. His insights are inspiring.
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Hostess Risa
Member
Username: risa
Post Number: 6645
Registered: 05-2003
| | Posted on Wednesday, October 08, 2008 - 07:21 pm: |
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http://blogs.cysticfibrosis.com/index.cfm?forumid=8&CFID=4396705&CFTOKEN=9703334 8
Here is a blog I started a year ago on the Cysticfibrosis.com website. I do not have the time go and visit as often as I like. I am going to use this thread as my blog instead and keep my CF blog for times I want to spread the word about CF related news.
Feel free to comment and ask questions on my TREAD THREAD here
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Hostess Risa
Member
Username: risa
Post Number: 6648
Registered: 05-2003
| | Posted on Wednesday, October 08, 2008 - 07:39 pm: |
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http://howto.wired.com/wiki/Cheat_on_the_Need_to_Sleep
Cheat on the Need to Sleep
Very interesting read.
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Hostess Risa
Member
Username: risa
Post Number: 6659
Registered: 05-2003
| | Posted on Thursday, October 09, 2008 - 01:49 pm: |
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I wrote a children's story called "What is the Mad Dog" in 1991. A few months later, I went to a CF camp and performed during talent nite. I had all the little kids sitting in a circle. I bought them all hand held mirrors and they would look into the mirror at the appropriate times during the story and repeat some of the phrases below. I have this on a VHS tape. This story is dedicated to anyone who thinks like a Mad Dog. Back in the nineties, Rap was big as you all know and I wrote a song called "The Mad Dog Fight Back"
Let me introduce myself. My name is Mad Dog. Not a Bad Dog, a real live fighting Mad Dog. A dog who loves life and doesn't give up, no matter how the times might seem rough. The Mad Dog doesn't bite, he has keen insight. He just fights with all his might. He fights everyday with all his jive with the main purpose, to stay alive.
He keeps on fighting then he says…(children look in the mirror)
I am the Mad Dog, that sounds good
I have the Mad Dog, and it feels good
I do like the Mad Dog, he knows what to do.
Listen children lets go to the Mad Dog School. You know what to do so act real cool. Study real hard and remember my golden rule. Hold your head up high, you know who you are, believe in yourself for you will feel a million miles in the sky. The Mad Dog will always help us around. Don't worry you can't end up in the lost and found. Remember! Things may not go your way, it doesn't mean your thoughts should turn to gray.
We keep on fighting then we say...(Just look in the mirror)
I am the Mad Dog, that sounds good
I have the Mad Dog, and it feels good
I do like the Mad Dog, he knows what to do.
Sometimes people say you can't do it , you are crazy, then we feel bad and sometimes lazy. When we feel that people are mean, we must remember that they have problems with their steam. So keep a positive attitude, you can be shrewd but the Mad Dog doesn't get rude. He is just always in a cool mood.
We keep on fighting then we say...
I am the Mad Dog, that sounds good
I have the Mad Dog, and it feels good
I do like the Mad Dog, he knows what to do.
When we get together, we have so much fun. At times we may feel different, we know we can be Number 1! Look in the mirror and say I want to be who I am and accomplish everything that I can. Our future looks bright, one day the Mad Dog won't even have to fight. We will feel so healthy, we will say everything is going to be all right.
Mirror, Mirror on the wall who is the GREATEST MAD DOG of them all?...(look in the mirror).
The Mad Dog is Back, Fight Back
You know just what you have to do
You've got to fight it before it gets to you
If you do your therapy just the right way
It will help you get through each and every day
You can have the Mad Dog too
Don't be a fool it might sneak up on you
So work real hard and minimize the pain
You've got to believe to maximize your gain
After you let go of the negative thought
Think of the difficult battle you just fought
You all have got to have a goal
And when you achieve it, it will fulfill your soul
Fighting can be fun if you allow your days to have a short run
The Mad Dog isn't wrong
He takes his pills with his meals so he can grow to be strong
He takes his meds to fight the bugs, and when he feels better,
he gives more hugs
There may be a time when we all feel down
Just remember to smile and not to frown
Because the Mad Dog - He won't leave town.
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Hostess Risa
Member
Username: risa
Post Number: 6660
Registered: 05-2003
| | Posted on Thursday, October 09, 2008 - 01:55 pm: |
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Fast forward to 2000, one of our members named Don introduced me to Bobby Seeback (heaart tx recipient). We chatted and I shared my above Mad Dog story with him. He was inspired to write his own version of Mad Dog. When I was very sick a year before my second transplant, he sent me a copy on tape to where I was staying in chicago. I cannot tell you how much this meant to me especially when I was sick.
Bobby just emailed me today with his final recorded version Mad. You can listen to it on his Myspace account.
http://profile.myspace.com/index.cfm?fuseaction=user.viewprofile&friendid=127784 911
After you listen to "Mad" click on "Transplant"
He wrote a great song about his heart Transplant.
Thank you Bobby
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Hostess Risa
Member
Username: risa
Post Number: 6714
Registered: 05-2003
| | Posted on Saturday, October 11, 2008 - 04:43 pm: |
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Here are the page requests for one week here. Since Jan of 08 there have been over 6 million page requests. I am checking my traffic facts weekly and this past thursday was one of the busiest days. We have a lot of material to read. Today was a very slow day.
Oct 04, 2008 3,704 11.78
Oct 05, 2008 3,609 11.47
Oct 06, 2008 3,862 12.28
Oct 07, 2008 4,334 13.78
Oct 08, 2008 3,913 12.44
Oct 09, 2008 7,747 24.63
Oct 10, 2008 4,284 13.62
Total 31,453
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Heather
Member
Username: heather
Post Number: 1431
Registered: 05-2003
| | Posted on Saturday, October 11, 2008 - 10:58 pm: |
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page request? what is that?
Heather
Forum Leader - Living Organ Donation
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
DONATE LIFE |
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Hostess Risa
Member
Username: risa
Post Number: 6728
Registered: 05-2003
| | Posted on Sunday, October 12, 2008 - 10:18 am: |
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Hi Heather
When we have a visitor, each visitor that clicks on a link counts as one page request. It could be page requests from all the various links like they library, arts and I believe our forum as well. I had no clue as to how many people were clicking.
We could have one thousand visitors for the day and have seven or more thousand page requests. Some hit counters just count page requests. Our hit counter only calculates visitors. I get all my traffic facts from my hosting account.
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DAP1122
Member
Username: dap1122
Post Number: 279
Registered: 05-2008
| | Posted on Sunday, October 12, 2008 - 07:25 pm: |
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Risa,
I think your site statistics are working well. My more manual effort shows that this past Thursday was the highest day this month for "hits" on the site, and also the highest day for number of posts. It was also second for best "posts vs hits" ratio.
I know yours are more accurate, due to timing, since I take a snap shot each morning between 730-800am Eastern time.
It's kind of amazing that we have an approximate 90% "lurker rate" .... in other words, lots of people reading ..... just not posting, for one reason or another.
DAP
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Hostess Risa
Member
Username: risa
Post Number: 6742
Registered: 05-2003
| | Posted on Sunday, October 12, 2008 - 08:10 pm: |
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Thank you Don
Yes Thursday's are the most popular day by far. I find this very interesting news and wonder what it could be? Maybe people access this site from work and those might have friday off  I have no clue I will have to look at the times and get back to you.
For all those who are reading, We party out on Thursday's at Buddies. BYOB and puter!
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Heather
Member
Username: heather
Post Number: 1445
Registered: 05-2003
| | Posted on Monday, October 13, 2008 - 08:17 am: |
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The Thursday thing is odd. I wonder also why it is more popular. Dap...you and your statistics amaze me.
Gotcha, Risa. ..I understand now.
Heather
Forum Leader - Living Organ Donation
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
DONATE LIFE |
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Jeff
Member
Username: jeff
Post Number: 1280
Registered: 07-2007
| | Posted on Monday, October 13, 2008 - 08:35 am: |
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Could the lurkers be our own members? I know that there are many times when I just get on and read the posts and don't always post a remark or comment. This is probably the case for me more often than not. Does your counter go by IP addresses? Mine is fixed at work, but at home my IP address is random for each time I log on to the internet being that my laptop is a mobile device with a mobile wireless internet card. Just curious.
Jeff W.
Forum Leader-Kidney
Kidney transplant Oct. 26,2007
Living donor, my sister Patty
email: unclemud@gmail.com
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Hostess Risa
Member
Username: risa
Post Number: 6754
Registered: 05-2003
| | Posted on Monday, October 13, 2008 - 08:43 am: |
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I will post some logs for you to see. Every single day we have unique visitors and loyal visitors. I would say on average that the unique vistors are half of the total amount which is a large population. I had no idea that we were attracting so many new people. About 2000 of the people return that were unique. I will post some more graphs. Dap is right on the money.
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DAP1122
Member
Username: dap1122
Post Number: 283
Registered: 05-2008
| | Posted on Monday, October 13, 2008 - 09:00 am: |
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Jeff ~ I do the same thing at times ...... I'll get on the site and read, but maybe don't post at that time. So, yes, there are some members lurking as well. :-) There's nothing wrong with it, but if there are more posts, that can lead to more questions, which can lead to more information, more conversations.
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Happy2Bhere
Member
Username: happy2bhere
Post Number: 1237
Registered: 02-2008
| | Posted on Monday, October 13, 2008 - 09:11 am: |
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Risa, I know nothing about being a Webmaster, but a few sites that I am a member of, post Viewer Counters above each individual post such as this:
View * Edit * Delete * Viewers
This way each visitor can see who visited earlier. All they need to do is click onto the * Viewers * button.
Example:
John Doe__ Oct 12 2008 at 10:59am
John Doe Jr__ Oct 12 2008 at 10:32am
Jane Doe __ Oct 12 2008 at 8:30am
Joe Blow__ Oct 11 2008 at 6:30am
Ol' Bob
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Hostess Risa
Member
Username: risa
Post Number: 6766
Registered: 05-2003
| | Posted on Monday, October 13, 2008 - 06:51 pm: |
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Hi Bob
I know another website who has this feature. I really do not care for it. I will see if we have this option. Many options on this site are turned off.
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Hostess Risa
Member
Username: risa
Post Number: 6767
Registered: 05-2003
| | Posted on Monday, October 13, 2008 - 06:54 pm: |
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I finally have some pictures that up to date. My husband lost many pictures on his old computer. oh well. here I am today
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BreathinSteven
Member
Username: breathinsteven
Post Number: 1307
Registered: 11-2004
| | Posted on Monday, October 13, 2008 - 07:17 pm: |
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You're beautiful, Risa!!!
Hey -- I don't know if it's possible with your web techies -- and maybe everyone won't agree -- but all of the threads on these forums start with the first post at the top, and the most recent post at the bottom... I think that is a logical order when you are posting a question and looking for answers/comments - and that is a logical order when one is commenting on a blog post...
But most blogs seem to have the most recent posting at the top -- and older posts as you scroll down... On a blog, you can open it up and see immediately what the person is posting about -- and if you need more information, scroll down to earlier stories... Here, you need to scroll all the way down to the bottom to see the latest updates...
Can your techies reverse the sort when it comes to the blog forum? I'm not 100% sure where they would put the "add your message here" box -- if they reversed everything, that would end up at the top so that someone could respond to the most current post...
I contribute to one -- and I follow a bunch -- and I'm no blog expert... But I think the layout here might disuade people from regularly following...
Hope you're doing well!!!
Love,
Steve
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Hostess Risa
Member
Username: risa
Post Number: 6770
Registered: 05-2003
| | Posted on Monday, October 13, 2008 - 07:23 pm: |
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Thank you Steve
Yes my webmaster is trying to fix this problem.
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Happy2Bhere
Member
Username: happy2bhere
Post Number: 1242
Registered: 02-2008
| | Posted on Monday, October 13, 2008 - 07:25 pm: |
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Risa, you are a foxy lit'l lady with a heart as big as Montana. God Bless
Ol' Bob
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Hostess Risa
Member
Username: risa
Post Number: 6773
Registered: 05-2003
| | Posted on Monday, October 13, 2008 - 07:30 pm: |
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Blush Blush
Thank you Bob
I remember the term Foxy when I was growing up. I use to have a CB radio and I knew a lady who called herself Foxy Mama.
I was buttercup baby LOL
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Karen R.
Member
Username: relivkaren
Post Number: 1892
Registered: 07-2007
| | Posted on Monday, October 13, 2008 - 08:41 pm: |
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Risa:
This is a beautiful picture too! You are very photogenic (sp?) It's so good to see what you look like today. I love your smile and your eyes. Tell Cary not to lose anymore pictures of you?!?! Hee! Hee! I'd like to see more! It just makes me feel closer to you!
I love you!
Karen
Dx: Bronchiolitis Obliterans
Waiting for dbl lung tx at Cleveland Clinic
Be kinder than necessary because everyone you meet is fighting some kind of battle. |
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Hostess Risa
Member
Username: risa
Post Number: 6779
Registered: 05-2003
| | Posted on Monday, October 13, 2008 - 09:33 pm: |
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I love you too Karen!
How sweet of you. Post pictures of you and Sammy. I want to see the new Karen.
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Karen R.
Member
Username: relivkaren
Post Number: 1894
Registered: 07-2007
| | Posted on Monday, October 13, 2008 - 10:12 pm: |
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Risa:
Is your hair naturally that curly? I love it!! I have wanted hair like that all my life. I used to pay lots of money for perms, but I never got waves and curls like that.
I don't know if I have any new pictures of us. I posted Sammy's birthday pictures from March with me in them. I also posted the 4th of July pictures. We will have to take some more soon.
This picture is beautiful too. You look so healthy and vibrant!! It just makes me so happy to see you with that wonderful smile!!
God Bless!
Karen
Dx: Bronchiolitis Obliterans
Waiting for dbl lung tx at Cleveland Clinic
Be kinder than necessary because everyone you meet is fighting some kind of battle. |
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Hostess Risa
Member
Username: risa
Post Number: 6784
Registered: 05-2003
| | Posted on Monday, October 13, 2008 - 10:17 pm: |
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Hi Karen
Yes my hair is curly wavy. The longer it gets the better it looks. I always had long layers and I found that my hair looks better with long layers only along the side. The back needs to be all one length. My goal is to have my hair another three inches tops.
I thought your hair is wavy?
love ya
Risa
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nicola j
Member
Username: nicola_j
Post Number: 33
Registered: 08-2008
| | Posted on Tuesday, October 14, 2008 - 06:22 pm: |
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GREAT PICTURE RISA! Ive only ever seen one other photo of you before.Nice to see a different one. Believe it or not,my hair is naturally curly like yours. You wouldnt think so looking at my pictures though!
Nic x
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Hostess Risa
Member
Username: risa
Post Number: 6799
Registered: 05-2003
| | Posted on Tuesday, October 14, 2008 - 07:31 pm: |
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Hi Nicola
Thank you
Let us see a picture of your curls.
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Hostess Risa
Member
Username: risa
Post Number: 6837
Registered: 05-2003
| | Posted on Thursday, October 16, 2008 - 10:45 pm: |
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Check out this bracelet. I am thinking of selling and designing many different organ donor awareness pieces. They are all hand crafted and they only use genuine stones. Necklaces, earrings, bracelets, belt buckles etc... First I will design a few pieces and see if they sell. It will be good pocket money as I will be the middleman. Do you think I should go for it? The piece around my neck is something that was made from this company. I designed it. It is a one of a kind. I drew out the piece and told them what stones I wanted used.
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Hostess Risa
Member
Username: risa
Post Number: 6838
Registered: 05-2003
| | Posted on Thursday, October 16, 2008 - 10:48 pm: |
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Here is another beautiful piece
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Hostess Risa
Member
Username: risa
Post Number: 6839
Registered: 05-2003
| | Posted on Thursday, October 16, 2008 - 10:59 pm: |
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eccoblue
Member
Username: eccoblue
Post Number: 484
Registered: 05-2008
| | Posted on Thursday, October 16, 2008 - 11:24 pm: |
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OMG! Risa, these pieces are awesome! I just love the designs!!
WOW!
Love, Kelli
P.S. As Steve mentioned, having the most recent posts at the bottom of a long thread does make it difficult to keep up and keep track. I think I end up missing a lot since scrolling sort of messes me up. It is better to have the most recent posts at the top (the common format) like reverse chronological order, IMHO.
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Hostess Risa
Member
Username: risa
Post Number: 6842
Registered: 05-2003
| | Posted on Thursday, October 16, 2008 - 11:36 pm: |
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This forum is now set correctly. All new messages appear at the top. Thankfully that was fixed.
I wish I could take credit for the art. Wouldn't that be nice?
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Karen R.
Member
Username: relivkaren
Post Number: 1922
Registered: 07-2007
| | Posted on Friday, October 17, 2008 - 06:06 pm: |
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Risa:
I love the jewelry. I had no idea that you could make a design and have someone make the jewelry for you. That's really cool. I really liked the necklace you have on in the picture. It really compliments you well.
I think your idea of designing organ donation jewelry is a great idea!
God Bless!
Karen
Dx: Bronchiolitis Obliterans
Waiting for dbl lung tx at Cleveland Clinic
Be kinder than necessary because everyone you meet is fighting some kind of battle. |
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Hostess Risa
Member
Username: risa
Post Number: 6866
Registered: 05-2003
| | Posted on Saturday, October 18, 2008 - 09:09 am: |
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Thank you Karen
I will only make a few pieces and if nothing sells I will keep them all.
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Boop
Member
Username: betty
Post Number: 12
Registered: 08-2008
| | Posted on Saturday, October 18, 2008 - 12:20 pm: |
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Butterflies! My living donor loves them, Just the perfect gift for her. Such a warm an loving idea. Please let us know where and when they will be available
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Hostess Risa
Member
Username: risa
Post Number: 6881
Registered: 05-2003
| | Posted on Saturday, October 18, 2008 - 01:03 pm: |
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Thank you Betty
If she wants a cuff butterfly bracelet what is her size wrist?
Tell me exactly what she likes. Any type of butterfly? Does she want a ribbon in the mix? What colors because you can select your stones. You can have a flower, butterfly and a ribbon but this design will be extremely big.
Most of their work is bold; however, you can order a small pendant either an organ donor ribbon in malachite or a butterfly inside of a heart. and the width would be around 1/3/4 or you can have it slightly smaller.
If you want a pendant what size length and height. An average is fine. I will then call them and send in your request and find out how much it will cost etc and then you decide if you want to buy it.
If you have something in mind maybe it is already created. Please explain what you are looking for.
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Boop
Member
Username: betty
Post Number: 19
Registered: 08-2008
| | Posted on Saturday, October 18, 2008 - 01:49 pm: |
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Risa let me check with my brother and see what she would wear most often I'm thinking of this as a suprise for her. I like the idea of a braclet the one on the top is my favorite. She's my sister-in-law She stepped up when my brother was found to be an unsuitable doner. God I love her! To include a donor ribbon would be awesome
Boop
polycystic kidney disease
living organ recipient 9/30/04
Lifelink/ Tampa General Hospital |
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Boop
Member
Username: Betty
Post Number: 23
Registered: 08-2008
| | Posted on Monday, October 20, 2008 - 02:15 pm: |
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My brother said a pendant over a bracelet for a 16 inch chain She likes the monarch butterfly so yellow/orange and black with a small donor ribbon in one of the wings or where the little circle thingies are on the post of the one with the flowers (or in-between the wings) She's 5 foot 1 and all heart. If you're thinking this might be too big then maybe a bracelet. Could you e-mail me approximate estimate/timeline. We are not permitted to use the internet for personal reasons  at work so it may be a few days before I can get back Thanks Betty
Boop
polycystic kidney disease
living organ recipient 9/30/04
Lifelink/ Tampa General Hospital |
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Liver Giver
Member
Username: Beteboop
Post Number: 419
Registered: 10-2007
| | Posted on Monday, October 20, 2008 - 08:17 pm: |
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Risa,
I think you are an absolutely beautiful woman both inside and out. I think that everything you touch turns to gold, in a matter of speaking, and that you should take a shot with the jewelry.
You are an inspiration to so many. Oh and I lOVE the story. You truly are a talented woman.
Love ya.
Dawn
Forum Leader Living Organ Donation
Liver Donor 11/19/07 to brother Anthony
Good and bad things happen in life, but what matters, what defines us, is how we handle them |
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Hostess Risa
Member
Username: Risa
Post Number: 6914
Registered: 05-2003
| | Posted on Monday, October 20, 2008 - 08:50 pm: |
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Thank you Dawn. What do you mean I love the story?
Thank you so much for the compliments! If only I had half the amount of confidence that you have in me.
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Happy2Bhere
Member
Username: Happy2bhere
Post Number: 1292
Registered: 02-2008
| | Posted on Tuesday, October 21, 2008 - 07:18 am: |
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Risa, I am just trying to help you, lit'l lady.
Ol' Bob
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Hostess Risa
Member
Username: Risa
Post Number: 6921
Registered: 05-2003
| | Posted on Tuesday, October 21, 2008 - 10:04 am: |
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Thank you Bob
Gary Klausner is my friend and I asked him to send me his news articles. I remember I was very sick when he was interviewed for The Queer Eye show. What a great experience he had with his friends and his family. Boomer Esiason made a 40th birthday party for him.
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Happy2Bhere
Member
Username: Happy2bhere
Post Number: 1294
Registered: 02-2008
| | Posted on Tuesday, October 21, 2008 - 04:18 pm: |
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Risa, here's your wonderful Gary Klausner story in a different fomat. OK?
Just click onto it and it should open alright.
Ol' Bob
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Hostess Risa
Member
Username: Risa
Post Number: 6924
Registered: 05-2003
| | Posted on Tuesday, October 21, 2008 - 05:22 pm: |
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Hi Bob
Did you click on image (save as) if not, please share your secret how you were able to upload a pdf file. Inquiring minds would like to know.
Many Thanks!
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Happy2Bhere
Member
Username: Happy2bhere
Post Number: 1296
Registered: 02-2008
| | Posted on Tuesday, October 21, 2008 - 09:06 pm: |
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Yes, I just simply click the "Save As" button and save as if the PDF file is a pic, then after the file is pulled up, it can be magnified for easier reading.
Ol' Bob
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Hostess Risa
Member
Username: Risa
Post Number: 6940
Registered: 05-2003
| | Posted on Tuesday, October 21, 2008 - 09:44 pm: |
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Thank You Very much!
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Hostess Risa
Board Administrator
Username: Risa
Post Number: 6984
Registered: 05-2003
| | Posted on Thursday, October 23, 2008 - 08:38 am: |
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Today is Thursday and I have tons and tons of things to do. I will be around but will not be posting too often. If anyone needs me, please email me.
There are hundreds of registered members who are not able for some reason to log on and post. I am going to concentrate on writing to these people to see what is up on their end. Those who really want to join usually write and ask for help. I will see what happens when I write to them.
I know I have very dedicated Forum Leaders and since I am blessed, I am going to take this time to value this opportunity and spend my time behind the scenes for a few weeks until all my tasks are complete.
A big Thank you for all your help
Love
Risa
PS: Looking for a volunteer who knows how to upload a VHS tape onto the internet. I have two independent videos in VHS. One is a production that I worked for months in 1993 and the other one was taped in 1991. They are children videos with the theme about CF. They are worthwhile seeing IMHO (in my humble opinion). If you are a member and know me, please email me and we will talk.
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Jeff
Member
Username: Jeff
Post Number: 1337
Registered: 07-2007
| | Posted on Thursday, October 23, 2008 - 02:30 pm: |
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Risa, as far as converting your VHS tape to digital, you should be able to find some place in your area that can take the tapes and burn them on to DVD's. Just tell them that you need the proper file format so that you can then transfer from DVD to your computer and then upload to a site such as YouTube.
Jeff W.
Forum Leader-Kidney
dx: kidney failure, reason unknown JUN2007
Kidney transplant Oct. 26,2007
Living donor, my sister Patty
email: unclemud@gmail.com
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Happy2Bhere
Member
Username: Happy2bhere
Post Number: 1310
Registered: 02-2008
| | Posted on Thursday, October 23, 2008 - 05:31 pm: |
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Risa, Jeff is absolutely correct about transferring contents from a VHS to DVD's. There is a difference in the DVD's, so be sure to tell them that you want to upload on the Internet. I had some keepsake VHS tapes done very recently, very inexpensive.
This is the website for our local PhotoSource. http://www.photosourcetx.com/ I know this doesn't help you there in Florida, but it gives you an idea about these companies.
Ol' Bob
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CiscoKidney07
Member
Username: Gregg
Post Number: 1516
Registered: 03-2008
| | Posted on Saturday, October 25, 2008 - 10:52 am: |
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Just in case you needed to be reminded, Karen is very close to 2,000 posts.
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Hostess Risa
Board Administrator
Username: Risa
Post Number: 7003
Registered: 05-2003
| | Posted on Saturday, October 25, 2008 - 09:10 pm: |
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Thank you Cisco! I greatly appreciate that.
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Boop
Member
Username: Betty
Post Number: 34
Registered: 08-2008
| | Posted on Wednesday, October 29, 2008 - 10:42 am: |
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Risa, did you get my reply to your e-mail?
Boop
polycystic kidney disease
living organ recipient 9/30/04
Lifelink/ Tampa General Hospital |
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Hostess Risa
Board Administrator
Username: Risa
Post Number: 7028
Registered: 05-2003
| | Posted on Wednesday, October 29, 2008 - 08:08 pm: |
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Hi Betty
No I did not get your email. Please write me again. I need to let you know the price for all the details you request and I will get back to you and let you know what the designers say after you send me the details of what you want. Please be as clear as possible.
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Hostess Risa
Board Administrator
Username: Risa
Post Number: 7103
Registered: 05-2003
| | Posted on Thursday, November 06, 2008 - 08:36 pm: |
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I had many appointments at my tx clinic yesterday. I met two very interesting people who I will never forget and for this experience alone, I did not mind waiting two hours for my CT scan.
I was sitting and talking to a young man named Romaine about the election and after a half hour, I asked him why he needed a CT scan. I told him why I was there. He told me he was hoping to have his tracheostomy repaired. He was a gun shot victim and was living with a trach for six years. He looked very healthy and I was amazed when he lifted his scarf to show me his trach collar. He said he cleans his trach himself and also works out. I told him to tell his story online. Even though he is not a transplant patient or lung patient, his story would inspire many. If he creates a blog, I will post his website. He was shot in the neck and then had trouble breathing. He was not on a respirator for long but required a trach. There is a lot more to this story and if Romaine decides to tell his story, then you will all hear it too. For now, I ask you all to pray for him.
Then after he left, I met a much older lady who use to smoke and recently developed throat cancer. She said she had to have all her teeth removed in order to have radiation and chemo. I enjoyed talking to her.
Then after she left, I was all alone. I decided to stand in the hall and wait. I saw a nurse and asked her if she could find out why I had to wait so long. When she spoke, I recognized her voice and asked her if she worked in the ICU. She took care of me on the night shift. She then recognized me and we chatted and then she called all the other nurses out that knew me. We talked and talked.
So all in all, waiting for almost three hours was not so bad. Hopefully next year, I will find another place where I will not have to wait so long. CT is the only place that has a long wait because they are repairing a machine. I had a choice to go to another center with no wait but was not sure how to get there. OH well, no regrets at all. Cool people means precious time spent.
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DAP1122
Member
Username: Dap1122
Post Number: 374
Registered: 05-2008
| | Posted on Friday, November 07, 2008 - 09:04 am: |
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Risa,
I maintain that you meet the nicest people under the more stressful situations ..... like hospitals. Sounds like you met a couple of very nice folks.
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Jeff
Member
Username: Jeff
Post Number: 1413
Registered: 07-2007
| | Posted on Friday, November 07, 2008 - 12:28 pm: |
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I agree DAP, the only part of the twice weekly, once a week, etc. tx clinic visits that I miss was visiting with the other patients. We all came from different backgrounds, but we all had something in common to talk about. I used to play catch in the hallway with a little boy named Jose, age 4, who had a kidney tx about a week before me and I loved this black lab that one of the patients had for a service dog. Every now and then I wonder how the people I met in clinic are doing today.
Jeff W.
Forum Leader-Kidney
dx: kidney failure, reason unknown JUN2007
Kidney transplant Oct. 26,2007
Living donor, my sister Patty
email: unclemud@gmail.com
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Deb
Member
Username: Deb
Post Number: 429
Registered: 06-2003
| | Posted on Thursday, November 27, 2008 - 09:35 pm: |
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Risa, you have a lot of thick lushy curly hair. You look great! I love your butterfly pendant that goes onto a necklace. How much are you going to sell them for? I really like to get that 4th one down in the middle. the colors are so cheerful and bright. I love baby blue two tone color on it.
| Kidney transplant 6/22/2002 |
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Hostess Risa
Board Administrator
Username: Risa
Post Number: 7640
Registered: 05-2003
| | Posted on Thursday, January 15, 2009 - 03:10 pm: |
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I cannot believe myself. Here I create a blog section and never post on my blog.
Oh well,
here goes
The past few weeks have been quite emotional for me on this website. TransplantBuddies always brings me joy. When I want to feel a grounding in life, I tune in. YES there are sad times when I read stories when one of my buddies is not well. Knowing that I can pray and think about them helps me feel better.
Supporting one another is what we all do and do it well. Without all of you, I could not feel as good as I do feel. If you do not believe me, come over and take my computer away and then call me a few days later.
Just wanted to say that I enjoyed talking on the Radio show with Rosemarie. That was a complete shock that Roe plugged Transplantbuddies so much and with love. I think I got carried away with excitement but I needed that. I was in need to really FEEL. You know sometimes we have to shout with joy or cry or scream. I was able to FEEL. Did Frampton have a song about that? Now I know I am getting old. LOL
I have received many gifts of thanks from the members. I do not need thank you's but I sure do get them often and let me say this, If I died tomorrow, I will be a very fulfilled lady. I almost said young lady but I will be fifty next year lol
Ok, I can be called a young older lady.
LOVE All my BUDDIES
You all ROCK
PS: I had my webmaster post some new photos, life stories, and we added some more sponsors to our Thanks page. He is now working on my Chat Software.
I better go and eat lunch. I am spending too much time online.
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Rosemarie
Member
Username: Rosemarie
Post Number: 66
Registered: 08-2007
| | Posted on Thursday, January 15, 2009 - 05:01 pm: |
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RISA,
THANK YOU SO MUCH FOR CALLING IN , I LOVE THIS WEBSITE AND I FELT ITS VERY IMPORTANT THAT EVERY ONE KNOWS ABOUT IT. EVEN MORE I LOVED CONNECTING TO YOU ON THE PHONE.
YOU HAVE CREATED SUCH AN IMPORTANT SITE, AND IT WAS MY GOOD FORTUNE TO FIND IT. DR WODKA WANTS TO DO ANOTHER SHOW AND HOPEFULLY WE CAN HAVE MORE PARTICIPANTS FROM TRANSPLANT BUDDIES, LOVE YOU
ROE
Roe
Heart Transplant 10/26/05
Mount Sinai Hospital, New York |
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Hostess Risa
Board Administrator
Username: Risa
Post Number: 7649
Registered: 05-2003
| | Posted on Thursday, January 15, 2009 - 05:12 pm: |
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Hi Roe
That is great to hear. I am grateful to you for promoting us and feel free to mention us wherever you speak. If you send me your address, I will mail you a few hard copies of our flyers or you can print out our flyer on our About us page.
I look forward to doing more interviews with you. You are a pro when it comes to speaking engagements. You covered all the bases.
I am sure you touched many viewers with your story. Like you said, we would not be here if it was not for our Organ Donors. God Bless them all.
It was a great show and your doctor could make relaxing tapes. He has a wonderful speaking voice.
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Hostess Risa
Board Administrator
Username: Risa
Post Number: 7777
Registered: 05-2003
| | Posted on Wednesday, January 21, 2009 - 08:41 pm: |
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Jan 21 1996 was the day I had my first double lung tx. This is a date, I will always treasure. I have two battered operated candles that I turned on and they will stay lite all evening. I said a prayer of thanks to my first Donor family. Even though I no longer carry the lungs from my first Donor, I am here today because of him. God Bless my First Donor and his Family.
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Karen R.
Member
Username: Relivkaren
Post Number: 2427
Registered: 07-2007
| | Posted on Wednesday, January 21, 2009 - 09:23 pm: |
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Risa:
What a wonderful way to remember your first donor family. I will say of prayer of thanks with you. Because of your first donor you have been able to help so many people. God bless that donor. God bless you for all that you have done to create a wonderful place for all of us to gather.
God Bless!
Karen
Dx: BOOP - May 2006. Rediagnosed with Bronchiolitis Obliterans Nov. 2006
Listed Feb 2008 - Double Lung at Cleveland Clinic
Ohio, USA
Be kinder than necessary because everyone you meet is fighting some kind of battle. |
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Christena's Dad
Member
Username: Christenas_dad
Post Number: 34
Registered: 01-2009
| | Posted on Thursday, January 22, 2009 - 10:13 am: |
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Risa,
I missed this on Wednesday, but will today honor your first donor and all donors and their families. You have certainly taken the precious gifts that you have received and made the world a better place -- not only for everyone here but the many other people that you touch.
Have a great day and many, many more.
Christenas Dad
Father of Double Lung Recipient at St. Louis Childrens Hospital June 2005
Kentucky, USA
Christenas Journey is at www.geocities.com/debgabehart |
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Hostess Risa
Board Administrator
Username: Risa
Post Number: 7784
Registered: 05-2003
| | Posted on Thursday, January 22, 2009 - 10:20 am: |
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Thank you so much Christena's Dad
Here is a Gigantic Hug for you
(((((((((((((((((((((((((((((((Christena's Dad)))))))))))))))))))))))))))))))))
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Hostess Risa
Board Administrator
Username: Risa
Post Number: 8231
Registered: 05-2003
| | Posted on Monday, February 23, 2009 - 08:37 am: |
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Hi all
If you are interested in becoming a part of our Chat room please email me at transplantbuddies@gmail.com with topic suggestions and times you are available.
I will contact you once our Chat times are set.
I know the forum is the best way to communicate and that is a great thing. Let us bring our Chat room some visitors.
So far, I had a few chat room fun times. I was laughing my head off with Trisha and Heather yesterday.
Don't miss out! Contact me if you are a Chatter.
==============================
I recently joined Face Book and love it.
You can visit us on FaceBook just type in Transplant Buddies to find us. There will be a link to Face Book on our home page soon.
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Janet
Member
Username: Jan
Post Number: 314
Registered: 05-2003
| | Posted on Monday, February 23, 2009 - 09:41 pm: |
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Risa, I wish I could join you for a chat time....but my schedule is so insane right now...maybe after the tax season is over I will be able to join in on one or two of them....hope they are going well.
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Hostess Risa
Board Administrator
Username: Risa
Post Number: 8250
Registered: 05-2003
| | Posted on Tuesday, February 24, 2009 - 05:46 pm: |
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thank you Janet
I will include your email address when I send out announcements. I am testing out a private chat schedule. Anyone else who is interested you need to sign up and tell me your username. simply write to me at transplantbuddies@gmail.com
thank you
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Hostess Risa
Board Administrator
Username: Risa
Post Number: 8361
Registered: 05-2003
| | Posted on Friday, March 06, 2009 - 08:29 am: |
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I am having computer issues need to bring my computer to see a doctor. I will not be able to answer any emails. I hope all those who write to me see this message.
It will be a few days until I either fix my computer or I will have to buy another one.
My communication time will be limited.
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Hostess Risa
Board Administrator
Username: Risa
Post Number: 8497
Registered: 05-2003
| | Posted on Wednesday, April 08, 2009 - 07:06 pm: |
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Well Well Buddies Blog how are you?
I am fine
It is nice to type using my new computer. I am just getting use to typing on this new keyboard. I would say that this is very similar to learning how to drive a car LOL
time to go because I cannot see the keyboard. There is no light in the roomLOL
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DAP1122
Member
Username: Dap1122
Post Number: 761
Registered: 05-2008
| | Posted on Wednesday, April 08, 2009 - 07:12 pm: |
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Ahhhh, sold the light to buy the PC?
Glad to have you back!!!! You have been missed.
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Hostess Risa
Board Administrator
Username: Risa
Post Number: 8500
Registered: 05-2003
| | Posted on Wednesday, April 08, 2009 - 07:21 pm: |
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LOL very cute!
I now have a new desk and I did not buy a light yet. I also need to buy a backup drive and a few more goodies.
Time for dinner but had to reply.
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