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  04-16-16  08:23 am
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Rosemarie
Member
Username: Rosemarie

Post Number: 57
Registered: 08-2007
Posted on Friday, November 07, 2008 - 04:53 pm:   Edit Post Delete Post Print Post

In honor of my transplant anniversary on 10/26/05, I felt it a special need to convey my feelings to my Cardiologist Dr. Pinney but not for him I would not have gotten to transplant and probably would not be here today.

I gave him a gift of a porcelain Tin Man, I feel personally connected to the Tin Man from the Wizard of Oz. And here is the poem I sent with it.

The Tin Man went looking for a heart in the Land of Oz
He found the Wizard , but, alas no Heart.

I went looking too and though my journey was long,
I found Mt Sinai, my Land of Oz
And you…..my Wizard
And at long last a heart was to be found

So in my new Heart
My Donor, Mt. Sinai and you will forever be.

Rosemarie Sabella
Heart Transplant 10/26/05
Roe
Heart Transplant 10/26/05
Mount Sinai Hospital, New York
Happy2Bhere
Member
Username: Happy2bhere

Post Number: 1417
Registered: 02-2008
Posted on Friday, November 07, 2008 - 05:39 pm:   Edit Post Delete Post Print Post

Rosemarie,
Very cute poem. I can relate to your closeness to your Cardiologist Dr Pinney. I feel the very same way about my various heart doctors.

Very happy to see another heart recipient on this wonderful website.

Dr "Mandi" has been my Cardiologist since 1985 and he's the one who suggested my heart transplant in 1991. Not only is he a wonderful doctor, he has a great sense of humor, as seen here at a party several years ago at the local hospital.

He is originally from India.

Ol' Bob
Bob
Heart Transplant
performed Jan 28th 1991
http://www.heartandcoeur.com/story/bob_story.php
Hostess Risa
Board Administrator
Username: Risa

Post Number: 7109
Registered: 05-2003
Posted on Friday, November 07, 2008 - 06:30 pm:   Edit Post Delete Post Print Post

Welcome Rosemarie to our Txbuddies Blog corner.

I love the meanaing behind your poem. Your doctor must have greatly appreciated your words.
Risa@transplantbuddies.org
Cystic Fibrosis- diagnosed at 2 years old
Double lung Tx - 96 at Loyola in Chicago
Second Double lung tx-05 at JMH in Miami
http://cafepress.com/txbuddies
Welcome to our Transplant Buddies Family
Hostess Risa
Board Administrator
Username: Risa

Post Number: 7110
Registered: 05-2003
Posted on Friday, November 07, 2008 - 06:31 pm:   Edit Post Delete Post Print Post

Welcome Rosemarie to our Txbuddies Blog corner.

I love the meaning behind your poem. Your doctor must have greatly appreciated your words.
Risa@transplantbuddies.org
Cystic Fibrosis- diagnosed at 2 years old
Double lung Tx - 96 at Loyola in Chicago
Second Double lung tx-05 at JMH in Miami
http://cafepress.com/txbuddies
Welcome to our Transplant Buddies Family
DAP1122
Member
Username: Dap1122

Post Number: 376
Registered: 05-2008
Posted on Friday, November 07, 2008 - 08:34 pm:   Edit Post Delete Post Print Post

Roe,

What an awesome gesture!! And the poem, is very cool as well.

Blog when you can. I enjoy all that share here.
Transplant Buddies CALENDAR - http://www.2ndheartbeat.com/TransplantBuddies.html
www.2ndHeartBeat.com
DAP1122@Gmail.com
Heart Tx - 5/11/2007
DAP
Rosemarie
Member
Username: Rosemarie

Post Number: 60
Registered: 08-2007
Posted on Tuesday, November 11, 2008 - 08:55 pm:   Edit Post Delete Post Print Post

I am very interested in organ donation, I became an organ donor on the anniv of my transplant, as did my family and several of my friends.
I am going to do a local radio show in January, any input you could offer
I would appreciate, I don't want to sound like an idiot
You also will be able to listen online if you are interested. I really need to get up to speed on this subject. Thanks.

Roe
Roe
Heart Transplant 10/26/05
Mount Sinai Hospital, New York
Jeff
Member
Username: Jeff

Post Number: 1429
Registered: 07-2007
Posted on Wednesday, November 12, 2008 - 08:09 am:   Edit Post Delete Post Print Post

Roe, good luck with the radio show in January. I think if you speak from the heart (no pun intended) you will get the message across just fine. I have been an organ donor since one of my best friends in high school was killed in an auto accident, he made it known to his parents that he wanted to be a donor and they fulfilled his wishes. That act alone made me and a bunch of other people decide to do the same and become an organ donor. I think if you were to mention how much of a difference it can make in one's live to be given the gift of life and how it gives them a chance to watch their children grow, watch relationships blossom and improves the quality of our lives, it will get the message across. As you know, there are way too many in need of organs and not enough supply. I would be interested in hearing this online, let us know the link when you have the details....and Good Luck!
Jeff W.
Forum Leader-Kidney
dx: kidney failure, reason unknown JUN2007
Kidney transplant Oct. 26,2007
Living donor, my sister Patty
email: unclemud@gmail.com
DAP1122
Member
Username: Dap1122

Post Number: 395
Registered: 05-2008
Posted on Friday, November 14, 2008 - 08:27 pm:   Edit Post Delete Post Print Post

Roe,

I hope you got my note in regard to your radio show. I'm hoping I can listen in, when ever it is .......

:-)
Transplant Buddies CALENDAR - http://www.2ndheartbeat.com/TransplantBuddies.html
www.2ndHeartBeat.com
DAP1122@Gmail.com
Heart Tx - 5/11/2007
DAP
Rosemarie
Member
Username: Rosemarie

Post Number: 61
Registered: 08-2007
Posted on Sunday, November 16, 2008 - 03:51 pm:   Edit Post Delete Post Print Post

Hi,
Just wanted to share with you a lovely evening in NY to see the new
Shrek Musical, my daughter Dominique is 20, she is developmentally disabled, but she does very well .
We had great seats and it was an amazing show. It was wonderful to be in the city on a beautiful night. NYC will always rock.
I have spent many nights in the city but always at the the hospital, it was wonderful to be there, healthy and walking about with my daughter.
I am truly blessed.
Roe
Heart Transplant 10/26/05
Mount Sinai Hospital, New York
Rosemarie
Member
Username: Rosemarie

Post Number: 62
Registered: 08-2007
Posted on Sunday, November 16, 2008 - 03:52 pm:   Edit Post Delete Post Print Post

Dap,

As soon as I get the date for the radio show I will post it with the link


Roe
Roe
Heart Transplant 10/26/05
Mount Sinai Hospital, New York
Rosemarie
Member
Username: Rosemarie

Post Number: 65
Registered: 08-2007
Posted on Wednesday, January 14, 2009 - 06:52 pm:   Edit Post Delete Post Print Post

WELL THE DAY OF THE RADIO SHOW ON ORGAN DONATION IS FINALLY
HERE, ITS TOMMOROW AT 1PM (NY)
THE SHOW IS CALLED "HEALTH MATTERS"
AS YOU KNOW THE SUBJECT IS ORGAN DONATION
THE CALL IN NUMBER IS 845-651-1110
I AM LITTLE NERVOUS, I HOPE ANY ONE WHO CAN WILL LISTEN IN AND CALL IN TO ADD THE CONVERSATION.
THANKS, ROE
Roe
Heart Transplant 10/26/05
Mount Sinai Hospital, New York
Hostess Risa
Board Administrator
Username: Risa

Post Number: 7613
Registered: 05-2003
Posted on Wednesday, January 14, 2009 - 07:01 pm:   Edit Post Delete Post Print Post

Hi Roe
I just posted this for you on the tx sharing forum. GOOD LUCK! Enjoy this opportunity.

Roe sent this to me
Risa here is the info on the radio show that i spoke about on my blog a few months ago, cant believe its next thursday, i will also post this on my blog.The radio show is scheduled for Jan 15, 2009 @ 1PM, you can listen in live @ WTBQ.com the call in number is 845-651-1110. I am a little nervous,so I am counting on all of you to help me, it is an issue, that is very important to me. Thanks
Roe
Risa@transplantbuddies.org
CF- diagnosed at 2 years old
Florida, USA
1st Tx - 96 LUMC
2nd double lung tx-05 JMH

TxBuddies Thanks page- Sponsors and Partners
http://www.transplantbuddies.org/html/thanks.php
Rosemarie
Member
Username: Rosemarie

Post Number: 67
Registered: 08-2007
Posted on Saturday, January 24, 2009 - 04:08 pm:   Edit Post Delete Post Print Post

October 26, 2005 was the truly the most life changing experience of my life. I have been chronically ill for most of my life.

At 32, I was finally diagnosed with scleroderma and spent the next 17 years in and out of hospitals with infections and surgery to control the most painful
aspects of the disease, as you know it is an incurable situation
In July of 1998 I had my first heart attack, I was driving over the Tappan Zee Bridge into Queens to visit my Dad, I didn't know at the time I was having one, my daughter and niece were in the car with and I continued on my way. I never reported this to my Doctor, I did not want be hospitalized again. VERY DUMB on my part.
In March of 1999 I had my first documented heart attack , even then I did not react quickly, I took aspirin, had a cup of tea and then had my husband drive me to the ER. Let me tell you, when every one starts running you know you are in deep trouble.
That was followed by many hospitalizations due to congestive heart failure, after another heart attack I was scheduled for open heart surgery in 2001. This put a little band aid on the heart issues.
In 2004 another artery closed and I had another procedure to put a stent in the artery to open it, well I began to bleed internally and my kidneys were literally being crushed, yes they were running around again the Recovery room Doctor was cursing up a storm, demanding the cardiologist not go to the next procedure but come to the recovery room. I believe in angels, and they were all around I remember saying to my mom who passed on years before, no mommy it is not time my little girl needs me. My daughter Dominique is developmentally disabled.
Thankfully I made it through.
In 2005 I had an ICD implanted that is a difibulator that will shock the heat to keep it in rhythm. Well when that goes off it is like being shot. Incidentally the one that was implanted my body was recalled, amazing huh?
It was then suggested I have a heart transplant, after being with a transplant team for over year and not being listed. I asked my cardiologist to send me to a different hospital.
In February of 2005 I was transferred to Mount Sinai Hospital, and put in care of Dr. Sean Pinney and his amazing team. Dr Pinney put me on IV medication at home 24/7. In May I was listed on the transplant list with UNOS the central location of all donor information.
I had two dry runs and they were now considering implanting another piece of equipment to help my heart function. In October I had a severe infection and was transferred to Mount Sinai, this was the culmination of my life changing experience, a heart came in and I was blessed with life, I was not expected to make it with out this transplant, and I would not have. I had ARVD (ARVD stands for Arrhythmogenic Right Ventricular Dysplasia) I disease that typically goes undiagnosed
until after death from a massive heart attack.
Talk about an amazing life changing experience. I do not know who my donor is but I think about him daily and keep him in "OUR HEART".

This will also be posted to Life Stories, Risa suggested in the interim, that I post so you all could read it now.

Its been an amazing journey and I am "happy to be here" to share my
story.

Roe
Roe
Heart Transplant 10/26/05
Mount Sinai Hospital, New York
Hostess Risa
Board Administrator
Username: Risa

Post Number: 7820
Registered: 05-2003
Posted on Saturday, January 24, 2009 - 04:36 pm:   Edit Post Delete Post Print Post

Thank you Roe:-) You are the bionic Woman!
Risa@transplantbuddies.org
CF- diagnosed at 2 years old
Florida, USA
1st Tx - 96 LUMC
2nd double lung tx-05 JMH

TxBuddies Thanks page- Sponsors and Partners
http://www.transplantbuddies.org/html/thanks.php
Happy2Bhere
Member
Username: Happy2bhere

Post Number: 1657
Registered: 02-2008
Posted on Saturday, January 24, 2009 - 06:25 pm:   Edit Post Delete Post Print Post

A very amazing story of survival, Roe.

God Bless


Ol' Bob
Texas Bob
Heart Transplant
performed Jan 28th 1991
http://www.heartandcoeur.com/story/bob_story.php
DAP1122
Member
Username: Dap1122

Post Number: 583
Registered: 05-2008
Posted on Saturday, January 24, 2009 - 08:43 pm:   Edit Post Delete Post Print Post

Roe,

You are blessed and have had an amazing journey. Thank you for sharing and may God Bless you.

DAP
Transplant Buddies CALENDAR - http://www.2ndheartbeat.com/TransplantBuddies.html
www.2ndHeartBeat.com
DAP1122@Gmail.com
Heart Tx - 5/11/2007
DAP
Ohio, USA
Hostess Risé
Board Administrator
Username: Rise

Post Number: 18013
Registered: 05-2003


Posted on Friday, February 28, 2014 - 09:57 am:   Edit Post Delete Post Print Post

I am writing this with very teary eyes.

Our special and beautiful friend Rosemarie *ROE* is now in Heaven.

I had no idea how much she loved Transplant Buddies.
Her very close friend Roseann has been in contact with me.
I just received a CD of Rosemarie Radio show interview as mentioned in this blog thread.
I remember how much this interview meant to her.
I will be listening to her sweet voice today.

Rosemarie's and her best friend Roseann photo.Rosemarie is on the left.
We miss You Roe



We miss you Roe
CF- dx at 2yrs. 2nd double lung tx-05 JMH
My Photos on Transplant Friends

Facebook-TransplantBuddiesfriends

Twitter-transplantbuds

Contact: transplantbuddies@gmail.com
LadyDi
Forum Leader
Username: Ladydi

Post Number: 2826
Registered: 03-2008
Posted on Tuesday, March 04, 2014 - 08:27 pm:   Edit Post Delete Post Print Post

How very sad to hear this! My sympathies and prayers to her friends and family.
Kidney Donor to Husband 10/30/07
Forum Leader-Living Organ Donation
Barnes Jewish Hospital St. Louis, Mo

My Donation Story

Post Donation Things to consider

I walk slowly, but I never walk backward - Abraham Lincoln
Hostess Risé
Board Administrator
Username: Rise

Post Number: 18220
Registered: 05-2003


Posted on Saturday, April 16, 2016 - 05:39 am:   Edit Post Delete Post Print Post

Missing you Roe!!
CF- dx at 2yrs. 2nd double lung tx-05 JMH
My Photos on Transplant Friends

Facebook-TransplantBuddiesfriends

Twitter-transplantbuds

Contact: transplantbuddies@gmail.com

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