Author |
Message |
BRIAN
Member Username: Alpha1
Post Number: 3 Registered: 11-2008
| Posted on Wednesday, November 05, 2008 - 08:09 pm: |
|
PLEASE VIEW OUR VIDEO: http://www.youtube.com/watch?v=2gwYlYogkWs
|
Marisa
Member Username: Marisa
Post Number: 289 Registered: 06-2003
| Posted on Wednesday, November 05, 2008 - 08:21 pm: |
|
Hi Brian! I know your family from Liver Families. WELCOME to Transplantbuddies!
~Marisa born with liver disease Liver Tx. 5/88 Univ. of MN-Minneapolis |
|
Hostess Risa
Board Administrator Username: Risa
Post Number: 7092 Registered: 05-2003
| Posted on Wednesday, November 05, 2008 - 10:25 pm: |
|
Hi Brian I watched your Video twice. how is Sophia today? When was this video created? Thank you for joining TransplantBuddies.
|
Happy2Bhere
Member Username: Happy2bhere
Post Number: 1412 Registered: 02-2008
| Posted on Wednesday, November 05, 2008 - 11:02 pm: |
|
Brian, this video is amazing. Such a beautiful lit'l girl. Ol' Bob
|
BRIAN
Member Username: Alpha1
Post Number: 4 Registered: 11-2008
| Posted on Wednesday, November 05, 2008 - 11:33 pm: |
|
Hello to all, and thank you for the warm welcome! I made this video 3 weeks ago in an attempt to help me emotionally with our current situation. When Sophia was diagnosed in 2005 and her health deteriorated so rapidly in 2006 (tx 12/24/06), we were caught off guard. She continues to battle rejection, but she is stable. Our 4 year old, Tatum, is now facing the same outcome. Her liver disease is becoming more aggressive and the signs of her disease are noticeable. She is at stage 2 and is scheduled for a full day of testing on 11/20 in Portland to determine if she is stage 3? The process of making this video has made me a better Father! Thank you, Brian
|
Hostess Risa
Board Administrator Username: Risa
Post Number: 7094 Registered: 05-2003
| Posted on Thursday, November 06, 2008 - 12:22 pm: |
|
Dear Brian Thank you so much for making your video. You are a wonderful Father and just remember how blessed your daughters are to have you as their dear Father. Not all Father's are loving like you. This must be a very difficult time in your life and to have to go through all of this again with Tatum (love that name) must be extremely difficult and challenging. I hope and pray that Sophia will start accepting her new liver. Your daughters are very beautiful. I have two suggestions for you. 1. add your youtube video url address to your signature here. Click on edit profile, type in your username and password, scroll down to signature and add the info that you would like others to know about. 2. Did you ever think about contacting The National Transplant Assistance Fund to raise funds for your daughter's transplant expenses? I would look into this program http://transplantfund.org 800-642-8399 I will keep you all in my Prayers and thoughts
|
BRIAN
Member Username: Alpha1
Post Number: 5 Registered: 11-2008
| Posted on Friday, November 07, 2008 - 05:32 pm: |
|
Hi Risa, Thank you for the kind words and the suggestions. I have contacted NTAF, but have not heard back from them yet. I will add the url to my signature--thanks again! Have a great day, Brian
|
Kayla
Member Username: Alpha1alone
Post Number: 2 Registered: 12-2008
| Posted on Wednesday, December 24, 2008 - 12:27 am: |
|
Am I really not the only one with alpha one???!!!! I have never met or heard of anyone else with it cuz its so rare. wow I am 19 my name is Kayla and I had a transplant when i was 12. I am doing great now. |
Hostess Risa
Board Administrator Username: Risa
Post Number: 7409 Registered: 05-2003
| Posted on Wednesday, December 24, 2008 - 08:08 am: |
|
Hi Kayla Welcome to TransplantBuddies
|
Liver Giver
Member Username: Beteboop
Post Number: 482 Registered: 10-2007
| Posted on Saturday, December 27, 2008 - 02:41 pm: |
|
Hi Kayla, Welcome to our family! I am sorry for your past health issues but happy that you may find people here to relate to.
Dawn Forum Leader Living Organ Donation Liver Donor 11/19/07 to brother Anthony Good and bad things happen in life, but what matters, what defines us, is how we handle them |
|