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Author Message
BRIAN
Member
Username: Alpha1

Post Number: 3
Registered: 11-2008
Posted on Wednesday, November 05, 2008 - 08:09 pm:   Edit Post Delete Post Print Post

PLEASE VIEW OUR VIDEO:

http://www.youtube.com/watch?v=2gwYlYogkWs
BRIAN BOYER
Marisa
Member
Username: Marisa

Post Number: 289
Registered: 06-2003
Posted on Wednesday, November 05, 2008 - 08:21 pm:   Edit Post Delete Post Print Post

Hi Brian!
I know your family from Liver Families. :-)

WELCOME to Transplantbuddies!
~Marisa
born with liver disease
Liver Tx. 5/88
Univ. of MN-Minneapolis
Hostess Risa
Board Administrator
Username: Risa

Post Number: 7092
Registered: 05-2003
Posted on Wednesday, November 05, 2008 - 10:25 pm:   Edit Post Delete Post Print Post

Hi Brian

I watched your Video twice. how is Sophia today? When was this video created?

Thank you for joining TransplantBuddies.
Risa@transplantbuddies.org
Cystic Fibrosis- diagnosed at 2 years old
Double lung Tx - 96 at Loyola in Chicago
Second Double lung tx-05 at JMH in Miami
http://cafepress.com/txbuddies
Welcome to our Transplant Buddies Family
Happy2Bhere
Member
Username: Happy2bhere

Post Number: 1412
Registered: 02-2008
Posted on Wednesday, November 05, 2008 - 11:02 pm:   Edit Post Delete Post Print Post

Brian, this video is amazing. Such a beautiful lit'l girl.

Ol' Bob
Bob
Heart Transplant
performed Jan 28th 1991
http://www.heartandcoeur.com/story/bob_story.php
BRIAN
Member
Username: Alpha1

Post Number: 4
Registered: 11-2008
Posted on Wednesday, November 05, 2008 - 11:33 pm:   Edit Post Delete Post Print Post

Hello to all, and thank you for the warm welcome! I made this video 3 weeks ago in an attempt to help me emotionally with our current situation. When Sophia was diagnosed in 2005 and her health deteriorated so rapidly in 2006 (tx 12/24/06), we were caught off guard. She continues to battle rejection, but she is stable. Our 4 year old, Tatum, is now facing the same outcome. Her liver disease is becoming more aggressive and the signs of her disease are noticeable. She is at stage 2 and is scheduled for a full day of testing on 11/20 in Portland to determine if she is stage 3? The process of making this video has made me a better Father!

Thank you,
Brian
BRIAN BOYER
Hostess Risa
Board Administrator
Username: Risa

Post Number: 7094
Registered: 05-2003
Posted on Thursday, November 06, 2008 - 12:22 pm:   Edit Post Delete Post Print Post

Dear Brian
Thank you so much for making your video. You are a wonderful Father and just remember how blessed your daughters are to have you as their dear Father. Not all Father's are loving like you.

This must be a very difficult time in your life and to have to go through all of this again with Tatum (love that name) must be extremely difficult and challenging.

I hope and pray that Sophia will start accepting her new liver. Your daughters are very beautiful.

I have two suggestions for you.
1. add your youtube video url address to your signature here. Click on edit profile, type in your username and password, scroll down to signature and add the info that you would like others to know about.

2. Did you ever think about contacting The National Transplant Assistance Fund to raise funds for your daughter's transplant expenses? I would look into this program http://transplantfund.org 800-642-8399

I will keep you all in my Prayers and thoughts
Risa@transplantbuddies.org
Cystic Fibrosis- diagnosed at 2 years old
Double lung Tx - 96 at Loyola in Chicago
Second Double lung tx-05 at JMH in Miami
http://cafepress.com/txbuddies
Welcome to our Transplant Buddies Family
BRIAN
Member
Username: Alpha1

Post Number: 5
Registered: 11-2008
Posted on Friday, November 07, 2008 - 05:32 pm:   Edit Post Delete Post Print Post

Hi Risa,

Thank you for the kind words and the suggestions. I have contacted NTAF, but have not heard back from them yet. I will add the url to my signature--thanks again!

Have a great day,
Brian
BRIAN BOYER
Kayla
Member
Username: Alpha1alone

Post Number: 2
Registered: 12-2008
Posted on Wednesday, December 24, 2008 - 12:27 am:   Edit Post Delete Post Print Post

Am I really not the only one with alpha one???!!!! I have never met or heard of anyone else with it cuz its so rare. wow
I am 19 my name is Kayla and I had a transplant when i was 12. I am doing great now.
Hostess Risa
Board Administrator
Username: Risa

Post Number: 7409
Registered: 05-2003
Posted on Wednesday, December 24, 2008 - 08:08 am:   Edit Post Delete Post Print Post

Hi Kayla

Welcome to TransplantBuddies:-)
Risa@transplantbuddies.org
CF- diagnosed at 2 years old
1st Tx - 96 LUMC
2nd double lung tx-05 JMH

TxBuddies Thanks page- Sponsors and Partners
http://www.transplantbuddies.org/html/thanks.php
Liver Giver
Member
Username: Beteboop

Post Number: 482
Registered: 10-2007
Posted on Saturday, December 27, 2008 - 02:41 pm:   Edit Post Delete Post Print Post

Hi Kayla,
Welcome to our family! I am sorry for your past health issues but happy that you may find people here to relate to.
Dawn
Forum Leader Living Organ Donation
Liver Donor 11/19/07 to brother Anthony

Good and bad things happen in life, but what matters, what defines us, is how we handle them

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