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Rajiv
Member
Username: Rmishra111
Post Number: 6
Registered: 02-2014
| | Posted on Sunday, March 09, 2014 - 05:36 am: | 
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Life is not easy for us recipients - is it  ?
It is little over two months after the transplant. I was discharged with a level of 1.33 and it has since then fluctuated between 1.33 to 1.72. Last reading was 1.69 ( 8th March). All other blood work reports are good and I am allowed to eat and drink pretty much everything.
Just to rule out rejection, I have had a biopsy already - they didnt find any signs of rejection. My tacrolimus levels were low around 4 to start with. To bump it up I was asked to do the following -
1. Substitute a BP medication with Dilzem SR 90 mg thrice a day
2. Asked to increase the tacrolimus (Nacsent) dose to 3.5 mg - 3.5 mg from 3.0mg - 3.0 mg daily. ( I am about 68 Kg in weight)
After the first changes trough tacrolimus level becaame 5.85 and after the second change also it came up to 12.5. This is when my Creatinine level slowly increase from around 1.4 to 1.69.
The doctors recommended to decrease the dose to 3.5mg - 3.0 mg and after three days - no change in creatinine levels. Have to see the doctor tomorrow and we will need to do another tacrolimus level shortly perhaps. In betweeen, my wbc count went up to 18.3 so they asked for a urine and blood culture. The results were negative but I was asked to take antibiotics Forcef 450 mg twice day for about 8-9 days. Now it is back to 11.3 ( around the normal range).
After reading tons of materials online it seems Creatinine level can go up because of
1. rejection - which in my case at least they havent found any evidence after the biopsy too.
2. High tacrolimus level - this could have some contributing factor in my case as my last reading was above 12. They have reduced the Nacsent tablets to 6.5 mg and I havent seen any improvement. Should the doctors decrease the dosage further? Maybe they should.
3. Dehydration - I drink about 2.5 to 3 l a day and it is difficult to drink more but i will try.
Anything else that could be going wrong? Should I try anything else?
I know this is a very common concern and question also here in this forum after the transplant but still wanted to ask.
I began with the sarcastic comment, but let me add also that I am enjoining no dialysis being able to eat peanuts, chocolates ( in moderation) and potatoes again. So no complain.
Thanks,
Rajiv
Kidney Disease: IgA Nephropathy since 2002
Dialysis - 10th Nov 2012 till 2nd Jan 2014
Both Haemo and PD.
Kidney Transplant-3rd Jan 2014
Apollo Hospital, Bangalore
Nephrologist-Dr V. R. Raju/Dr. Satish
Donor-My wife
My email-rajiv_k_mishra2003@yahoo.com |
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Rita
Forum Leader
Username: Rita
Post Number: 947
Registered: 06-2003
| | Posted on Wednesday, March 19, 2014 - 06:21 pm: |
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Hi, It has been 3 weeks since your transplant. Your body is still getting use to it and the stress of the operation. I would follow what the doctors say to the letter.
Doctors do adjust your meds at first and you will find over time they will adjust them more. Enjoy your new way of life.
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Bob2006
Member
Username: Delgador
Post Number: 258
Registered: 06-2008
| | Posted on Thursday, March 20, 2014 - 11:35 am: |
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I am almost 8 yrs post Liver Tx creatinine level at ~ 2.0 since then, it's not perfect but OK. Just drink lots of H2O, watch your diet, follow Drs advice and slowly decrease Tacrolimus. Be patient it takes a long time for your body to accept the new organs.
Enjoy life!!
Liver TX 7/31/2006 due to HCC
Dr. Jang Moon & Dr. Andreas Tzakis - UM/JMH |
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