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TransplantBuddies.org Forums » Heart - Lung Transplant » Archive through April 17, 2011 » The World's First Combined Heart and Liver Transplant « Previous Next »
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Hostess Meagan
Forum Leader
Username: Newheart14

Post Number: 1765
Registered: 01-2009
Posted on Wednesday, March 02, 2011 - 10:54 am:   Edit Post Delete Post Print Post

The world's first combined heart and liver transplant was performed on a young girl named Stormie Jones on Valentine's Day, 1984 at Children's Hospital of Pittsburgh. Stormie was six years old when she received her new heart and liver. Stormie received another liver in 1990 after her first liver became damaged by hepatitis. Sadly, Stormie passed away from cardiac arrest in 1990 a few months after receiving her second liver.

Read more about Stormie:

http://articles.philly.com/1990-11-12/news/25926539_1_stormie-jones-texas-girl-second-liver-transplant

More heart and liver transplant stories:

http://www.umm.edu/news/releases/lifesaving_heart_liver_transplant.htm
http://www.umm.edu/news/releases/heart_liver_transplants.htm
Forum Leader
Heart-Liver Transplant - February 14, 2008
Toronto General Hospital, Toronto, Canada
Idiopathic dilated cardiomyopathy 1991 and CHF

- Most of the important things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie
- Bumps in the road can sometimes be mountains, so I have learned to climb mountains - Meagan

Meagan's Blog
Happy2Bhere
Forum Leader
Username: Happy2bhere

Post Number: 3991
Registered: 02-2008
Posted on Wednesday, March 02, 2011 - 01:54 pm:   Edit Post Delete Post Print Post

Meagan, I have already read several of these stories. Thanks for posting,

You are a very amazing lit'l lady, you also receiving a heart/liver transplant.

I don't know about your liver but you certainly have a heart as big as Texas.

Love ya'

Ol' Bob
Texas Bob
My Organ Donor Tees

Heart Transplant performed Jan 28th 1991
Bod Heart Transplant Story

Happy2Bhere's Blog
eccoblue
Forum Leader
Username: Eccoblue

Post Number: 1796
Registered: 05-2008
Posted on Wednesday, March 02, 2011 - 02:21 pm:   Edit Post Delete Post Print Post

Meagan,
Thanks for posting those stories.

I get all emotional when I think about Stormie--what an amazing girl who led the way.

Hope you have some stories about yourself to share.

I guess I'll go ahead and share a couple of press releases from Cedars-Sinai instead of hard to read news clippings.

I'll post these on my blog also. Love & hugs
application/pdf
031706 CSMC PR.pdf (93.3 k)

application/pdf
032307 CSMC PR.pdf (88.2 k)

Sara And The Gift Of Life

Heart and Liver Tx at Cedars-Sinai on 02/01/2007
Email Kelli
RD Video of Kelli
Eccoblue's Blog

Fall seven times, stand up eight - Japanese proverb

Behold, I have refined thee, but not with silver; I have chosen thee in the furnace of affliction. Isaiah 48:10
Hostess Rise'
Board Administrator
Username: Rise

Post Number: 15849
Registered: 05-2003
Posted on Wednesday, March 02, 2011 - 02:28 pm:   Edit Post Delete Post Print Post

Hi Meagan

This is very sad and making me tear up. Many people will miss Stormie greatly.
CF- dx at 2yrs. 2nd double lung tx-05

Debra Fertel MD- Jackson Memorial Hospital Si Pham MD, Professor of Surgery

Anas Hadeh MD, Cleveland Clinic, Weston, Florida Cystic Fibrosis consultant- Critical Care and Sleep Medicine

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Hostess Meagan
Forum Leader
Username: Newheart14

Post Number: 1768
Registered: 01-2009
Posted on Wednesday, March 02, 2011 - 03:24 pm:   Edit Post Delete Post Print Post

Rise',
Stormie and I had a lot in common. Not only did we have the same type of transplant but we shared the same transplant date, Valentine's Day (different years of course). Also my middle name is Abigail and I'm called Gail by Nick, family and friends. If you spell Gail the other way you get Gale like in gales/storms - Stormie/Gail, get it? :-) Like you, I always get upset hearing about ill children and wonder why they have to suffer like that.

Bob,
Thank you, and my liver is slowly growing back, minus some bile ducts, of course. Contrary to popular believe, the liver does NOT regenerate, but does grow back, but not necessarily in the same shape as before. The bile ducts do not regenerate. Just sharing. :-)

Kelli,
My story is in my blog, but I guess I need to write the sequel huh? Part Deux??? Thanks for posting those press releases. I always get sad when I read what you have been through your entire life from birth, but I am so happy you finally got your heart and liver.
Forum Leader
Heart-Liver Transplant - February 14, 2008
Toronto General Hospital, Toronto, Canada
Idiopathic dilated cardiomyopathy 1991 and CHF

- Most of the important things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie
- Bumps in the road can sometimes be mountains, so I have learned to climb mountains - Meagan

Meagan's Blog
Happy2Bhere
Forum Leader
Username: Happy2bhere

Post Number: 4012
Registered: 02-2008
Posted on Friday, March 04, 2011 - 03:24 pm:   Edit Post Delete Post Print Post

"Contrary to popular believe, the liver does NOT regenerate."

Meagan, I'm sorry but I differ with you, lit'l lady.

The liver has a remarkable capacity to regenerate after injury and to adjust its size to match its host. Within a week after partial hepatectomy, which, in typical experimental settings entails surgical removal of two-thirds of the liver, hepatic mass is back essentially to what it was prior to surgery.

I have done extensive research on this subject,

Still love ya', though

Ol' Bob
Texas Bob
My Organ Donor Tees

Heart Transplant performed Jan 28th 1991
Bod Heart Transplant Story

Happy2Bhere's Blog
Hostess Meagan
Forum Leader
Username: Newheart14

Post Number: 1787
Registered: 01-2009
Posted on Monday, March 07, 2011 - 12:30 am:   Edit Post Delete Post Print Post

Another heart and liver transplant story:

http://www.youtube.com/watch?v=4l23r-_lDaw&feature=fvsr
Forum Leader
Heart-Liver Transplant - February 14, 2008
Toronto General Hospital, Toronto, Canada
Idiopathic dilated cardiomyopathy 1991 and CHF

- Most of the important things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie
- Bumps in the road can sometimes be mountains, so I have learned to climb mountains - Meagan

Meagan's Blog
Happy2Bhere
Forum Leader
Username: Happy2bhere

Post Number: 4016
Registered: 02-2008
Posted on Monday, March 07, 2011 - 10:46 am:   Edit Post Delete Post Print Post

Hi Meagan,

This young man's story was so very interesting, I had to jump over to another interview clip with him: http://www.youtube.com/watch?v=eGlmbZc0eL4 This is a very amazing story.

Thanks for sharing, lit'l lady.

Love ya'

Ol' Bob
Texas Bob
My Organ Donor Tees

Heart Transplant performed Jan 28th 1991
Bod Heart Transplant Story

Happy2Bhere's Blog
Jack R
Forum Leader
Username: Jack_r

Post Number: 363
Registered: 08-2010
Posted on Monday, March 07, 2011 - 12:03 pm:   Edit Post Delete Post Print Post

Ol' Bob and Meggie, thanks for sharing.
Meggie HAPPY THIRD ANNIVERSARY!!!
For Ol' Bob you may recall that very old song "Ol' Man River" Happy 20th Anniversary.
Cardiac history going back to 1993. Heart Transplant received in Oct. 2004. Interesting first year and have been very physically active ever since. I currently am pro-active with the SE PA. Gift of Life and a member of Johns Hopkins patient administered Heart Transplant Foundation.

Exercise - look around you and don't tell me you can't -Blog
Hostess Meagan
Forum Leader
Username: Newheart14

Post Number: 1789
Registered: 01-2009
Posted on Monday, March 07, 2011 - 12:21 pm:   Edit Post Delete Post Print Post

Bob,
Thanks for posting. I'm always interested in heart-liver stories as it is such a rare transplant.

Jack R.,
Thanks! It's nice to be three and alive.


Forum Leader
Heart-Liver Transplant - February 14, 2008
Toronto General Hospital, Toronto, Canada
Idiopathic dilated cardiomyopathy 1991 and CHF

- Most of the important things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie
- Bumps in the road can sometimes be mountains, so I have learned to climb mountains - Meagan

Meagan's Blog

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