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Message |
John D
Member
Username: John_d
Post Number: 30
Registered: 09-2011
| | Posted on Friday, January 20, 2012 - 10:31 am: | 
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My transplant center (Cleveland Clinic) discourages supplements, and I understand. There are a lot of supplements out there, and the effects, if any, on the transplant may be unknown or poorly understood. However, I do wonder about CoQ10. I am on a statin, and I have seen a study that heart transplants on statins have better survival. OK. But statins deplete you of CoQ10.
Are any of the heart transplants here taking CoQ10?
Any comments?
Heart transplant
March 16, 2010
Cleveland Clinic |
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Jay Lackritz
Forum Leader
Username: Jay_ny
Post Number: 498
Registered: 01-2007
| | Posted on Friday, January 20, 2012 - 10:12 pm: |
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I had a double lung transplant, but before the transplant, I had had a minor heart attack during a COPD exacerbation, and due to a blocked artery, I had a stent placed. As such, I am regularly tested for heart issues, and my transplant team has me on statins and also CoQ10. It was me that asked about CoQ10, my doctor didn't propose it, but said it was a good idea. We didn't discuss it any more than that.
By the way, CoQ10 is not inexpensive and can be very pricey, depending on where you get it.
I just bought some from Puritan's Pride. I got 7 bottles of 60 softgels, 200mg for $45 with a coupon they sent me in the mail. This is less than half the price I have seen elsewhere for 200mg softgels. They are also cheaper than anywhere without the coupon. If you sign up with them, they will send you their coupons.
http://www.puritan.com/coenzyme-q-10-055/q-sorb-co-q-10-200-mg-002092
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John D
Member
Username: John_d
Post Number: 31
Registered: 09-2011
| | Posted on Saturday, January 21, 2012 - 06:36 am: |
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Thanks, Jay
Any other transplants using CoQ10?
Heart transplant
March 16, 2010
Cleveland Clinic |
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Holly
Member
Username: Holly
Post Number: 544
Registered: 09-2007
| | Posted on Saturday, January 21, 2012 - 09:16 am: |
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John,
I too had my transplant at CCF and am also on a statin. The Docs actually put me on CO10 to stop the leg pains I was having. so it shoudn't be a problem.
Holly Mulkerin
Medina Ohio
Heart transplant 1/28/09 I have a Happy Heart
Be kind. Remember that everyone you meet is fighting a hard battle. Harry Thompson
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John D
Member
Username: John_d
Post Number: 32
Registered: 09-2011
| | Posted on Saturday, January 21, 2012 - 10:34 am: |
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Thanks for the info, Holly. I'll talk them about it.
Heart transplant
March 16, 2010
Cleveland Clinic |
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John D
Member
Username: John_d
Post Number: 33
Registered: 09-2011
| | Posted on Sunday, January 22, 2012 - 08:16 am: |
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Hi Holly
Are you still on CoQ10? Has it helped?
Heart transplant
March 16, 2010
Cleveland Clinic |
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Holly
Member
Username: Holly
Post Number: 545
Registered: 09-2007
| | Posted on Sunday, January 22, 2012 - 07:25 pm: |
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Yep. Been on it for about a year. I don't have any leg pain anymore. I'm on other supplements as well. Magnesium, Calcium, Fish Oil, multi vitamin. All told to me by the Docs to take. The immunosuppresants mess with our magnesium and calcium levels so I've been on these since day one.
Holly Mulkerin
Medina Ohio
Heart transplant 1/28/09 I have a Happy Heart
Be kind. Remember that everyone you meet is fighting a hard battle. Harry Thompson
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John D
Member
Username: John_d
Post Number: 34
Registered: 09-2011
| | Posted on Monday, January 23, 2012 - 07:01 am: |
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Thanks, Holly. They also have me on Mg and Ca and MV. I'm doing chia seed instead of fish oil. I was a vegan at the time, not any more, but have stayed with the chia seed.
Heart transplant
March 16, 2010
Cleveland Clinic |
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