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SteveD
Member
Username: Sdivot
Post Number: 44
Registered: 06-2008
| | Posted on Thursday, April 26, 2012 - 01:37 am: | 
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Hi everyone!
I thought I'd share something I've been going through lately and see if anyone here can relate or has had a similar experience.
About 2.5 months ago I accidentally bit my cheek. You know how we occasionally bite our tongue or the inside of the mouth. Well, I really bit it!! I mean I bit a small hole in it. Not all the way through, but I bit a little chunk out of the inside of my cheek.
Well, it hurt of course, but it did not bother me too much. For a couple days after I did it, I had a fever for a day or two, then it went away. I think I started taking antibiotics (it's been so long now I can't remember for sure). It has just never gotten any better. In fact, it seemed to grow and get worse over time.
Finally a month or so ago, it really started to hurt a lot. My doctor (during this process I switched transplant centers because I had been very frustrated and unhappy with my first one) told me that the nerves were probably growing back and reconnecting, causing the pain. He sent me to an oral surgeon, saying I should have it debrided and biopsied.
It took a while to get in to see the oral surgeon (they did not accept my insurance, so so long $2300), but finally this past monday he cleaned it up, debrided it, biopsied it, and finally sutured it completely closed.
Now the waiting starts over to see if this will help it heal.
This has been so frustrating. It seems that it just refuses to heal. Again, hopefully this recent oral surgery will help encourage it to heal. My face is now swollen and I'm having a different type of pain. But it's better than it was.
Of course I know the lack of healing is due to my screwy immune system.
Has anyone had any similar experience? Any insight would be much appreciated.
Thanks,
Steve
Steve D
CF, Dbl Lung Transplant 4-4-08
Houston, TX |
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ajs
Forum Leader
Username: Ajs
Post Number: 741
Registered: 03-2008
| | Posted on Thursday, April 26, 2012 - 11:37 am: |
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Sorry Steve, no experiences like it, but I wonder if Manuka Honey would help? I KNOW it would help if it was on the outside. Do some research, Drs in New Zealand (where it comes from) now say it's THE best thing to heal a wound, especially if its MRSA. Maybe you could put it in your mouth and hold it there for a while a few times a day? At least it would be a pleasant thing to try.
read the reviews here:
http://www.amazon.com/Wedderspoon-Organic-Manuka-Active-17-6-Ounce/dp/B000VK08OC
Double-Lung transplant at Duke on 10/27/08
Pulmonary Fibrosis with traction bronchiectasis
http://healthierlungs.com
Live each day as if you were living forever, and live each moment as if it were your last.
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