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ajs
Forum Leader
Username: Ajs

Post Number: 751
Registered: 03-2008
Posted on Tuesday, June 26, 2012 - 01:16 pm:   Edit Post Delete Post Print Post

Anyone else here living with a low titer of a DSA? I have a pesky Class I that shows up on my HLA panels at 6%. I've had Rituxan early on which seemed to get rid of it for a period of time, but it reappears. Since my lung function has been stable for some time, they aren't treating it right now, just wondering what others have experienced. Thanks.

Here's me and my daughter last week at Vernal Falls,Yosemite. 1.2 miles uphill!



..and the whole family. Cross that off the bucket list!


Double-Lung transplant at Duke on 10/27/08
Pulmonary Fibrosis with traction bronchiectasis

http://healthierlungs.com

Live each day as if you were living forever, and live each moment as if it were your last.

Hostess Rise'
Board Administrator
Username: Rise

Post Number: 17478
Registered: 05-2003
Posted on Tuesday, June 26, 2012 - 04:50 pm:   Edit Post Delete Post Print Post

Hi AJS

I love your photos! Without mentioning anyone's name you and I have a mutual friend that was transplanted at Duke. You can write to him or write to me and I will forward your email to him. I am sure you can both talk.

By the way, how does a patient know if they have DSA? Please educated us.
CF- dx at 2yrs. 2nd double lung tx-05 JMH
My Photos on Transplant Friends

Facebook-TransplantBuddies

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Russ
Member
Username: Rjwitte

Post Number: 142
Registered: 06-2009
Posted on Tuesday, June 26, 2012 - 06:16 pm:   Edit Post Delete Post Print Post

AJS,

Love your photos ... can't help you with your question, but just to chime in ... I proposed to my wife at that overlook with Half-Dome in the background ... ;) We had brunch afterwards at the Ahwahnee Lodge and I recall the waiter asking us why we were smiling so much ... and we have never stopped.

Yosemite is marvelous.

yours,
Russ - Heart Txp, 1-1-1999
Univ. of Michigan
Rocket Heart
Member
Username: Rocketheart583

Post Number: 679
Registered: 08-2007
Posted on Tuesday, June 26, 2012 - 07:36 pm:   Edit Post Delete Post Print Post

You're a rock star!! I could never make that climb... never stop!!
Rocket Heart

Tom Emahiser
Waterville, Oh
Heart Failure
Heart Txplt 1/26/05 University of Michigan
ajs
Forum Leader
Username: Ajs

Post Number: 752
Registered: 03-2008
Posted on Wednesday, June 27, 2012 - 06:19 am:   Edit Post Delete Post Print Post

Hi Rise',

If it's who I think you mean, I need to call him. Dr Palmer at Duke told me a few weeks ago he went thru a rough patch.

I thought all transplantees knew about DSAs? It's an antibody that your body can develop, that is targeted specifically at your new organ. If you have it before hand, it can be the cause of an HLA mismatch. There is a certain level or number of DSAs that can be an acceptable risk, but in general you don't want to have any. That's why your blood work contains an HLA panel (Human Leukocyte Antigen).

http://journals.lww.com/transplantjournal/Abstract/2005/02151/Donor_Specific_Antibodies_in_Allograft_Rejection_.6.aspx
Double-Lung transplant at Duke on 10/27/08
Pulmonary Fibrosis with traction bronchiectasis

http://healthierlungs.com

Live each day as if you were living forever, and live each moment as if it were your last.

ajs
Forum Leader
Username: Ajs

Post Number: 754
Registered: 03-2008
Posted on Wednesday, June 27, 2012 - 06:55 am:   Edit Post Delete Post Print Post

Nice Russ! I could have sat at that overlook for an hour soaking in the glory that is nature.

We totally lucked out; I was talking to a client in San Francisco who happened to be friends with the PR Director of Yosemite, and he got us a room at Ahwahnee for two nights on a month's notice! (heard it's booked over a year ahead) AND, my friend in Palo Alto who we stayed with scored tickets to the US Open on the Friday. Followed Tiger, Phil and Bubba for three holes.

Seems like karma is repaying me for the rough times.....
Double-Lung transplant at Duke on 10/27/08
Pulmonary Fibrosis with traction bronchiectasis

http://healthierlungs.com

Live each day as if you were living forever, and live each moment as if it were your last.

ajs
Forum Leader
Username: Ajs

Post Number: 755
Registered: 03-2008
Posted on Wednesday, June 27, 2012 - 07:02 am:   Edit Post Delete Post Print Post

Russ- ps. Here's some memories for you:




Double-Lung transplant at Duke on 10/27/08
Pulmonary Fibrosis with traction bronchiectasis

http://healthierlungs.com

Live each day as if you were living forever, and live each moment as if it were your last.

Hostess Rise'
Board Administrator
Username: Rise

Post Number: 17488
Registered: 05-2003
Posted on Thursday, June 28, 2012 - 04:57 pm:   Edit Post Delete Post Print Post

Hi AJS

Love all the photos!

I hope you contact our friend. I know he is quite busy.
CF- dx at 2yrs. 2nd double lung tx-05 JMH
My Photos on Transplant Friends

Facebook-TransplantBuddies

Twitter-transplantbuds

Questions-
transplantbuddieshelp@gmail.com
Hostess Risé
Board Administrator
Username: Rise

Post Number: 17529
Registered: 05-2003


Posted on Saturday, February 09, 2013 - 12:06 pm:   Edit Post Delete Post Print Post

Feb 9th 2013
Heart and lung transplant chat on
http://transplantfriends.com
CF- dx at 2yrs. 2nd double lung tx-05 JMH
My Photos on Transplant Friends

Facebook-TransplantBuddies

Twitter-transplantbuds

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