| Author |
Message |
Tamara
Member
Username: Heppygirl
Post Number: 94
Registered: 05-2011
| | Posted on Friday, April 19, 2013 - 04:50 am: | 
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So, this morning I found out (my doctor called) that I have osteoporosis. What can I do about this? I already take extra calcium and some other pill that helps to absorpe the calcium in my blood but it doesn't seem to help much  Does anyone has problems with osteoporosis and what can you do to prevent/stabilize it? I'm really worried that I can't do my tennis and stuff, I'm in constant pain in my hips and lower back (like I described in the other posts..) I now, get an appointment with the geriatry (elderly) department... Does anyone has had osteoporosis this quick after transplant (I'm "just" 2.5 years out...)
I don't know why it's going this quick.. :S
Tamara
24y/o, from the Netherlands
Cystic Fibrosis, Dxed at birth
Bilateral lungtransplant, September 2010
http://muffinmeetsworld.blogspot.com
Anywhoo... |
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Brian
Member
Username: Belizeangaijin
Post Number: 58
Registered: 06-2007
| | Posted on Friday, April 19, 2013 - 06:32 am: |
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I'm sorry to hear this Tamara.
My understanding is that for as long as you can, one of the biggest things that can help to slow the progression of the disease weight-bearing exercise. It sounds like you already do this with the Tennis but you may need to modify your exercise regimen to be less impact but still weight bearing. Speed walking perhaps, rather than running and Tennis? Also, if you're not already, maybe ask the doctor about beginning to take a biphosphonate as well as checking and supplementing and checking your vitamin D levels if needed. Recent research has shown some hopeful results with biphosphonates and preventing and reversing osteoporosis as well as AVN like I mentioned in my previous post to you. You may already be on a biphosphonate as that "other pill" you described, in my case however, these drugs are just making their way into the standard practice for my transplant team and I could have been benefiting from them for several years already had I but known.
By far though, one of the biggest things is weight bearing exercise. I wish you the best!
http://rheumatology.oxfordjournals.org/content/41/3/346.2.full
http://jcem.endojournals.org/content/95/4/1555.full |
Tamara
Member
Username: Heppygirl
Post Number: 95
Registered: 05-2011
| | Posted on Friday, April 19, 2013 - 06:41 am: |
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First Question, what is weight bearing excercise? I haven't been to Tennis since half a year, I can't even walk without much pain, and because of the pain, my legs somethings can't even carry me.. So that's why I see so may problems, don't know how to solve this vicious cirkel.. I'm already taking calcium supplements, eating my custard, yoghurt and drinking milk.. Already on biphosphonate since my transplant.. so there is nothing much they can do.... Although I think i have one last thing they can change.. My birth control pill is one without estrogene while I specifically asked for one WITH when I got it... You should trust your doctor in that but now I can't anymore...
I've heard there are biphosphonates for IV? Does that work better than when it's been given by pill?
Tamara
26y/o, from the Netherlands
Cystic Fibrosis, Dxed at birth
Bilateral lungtransplant, September 2010
http://muffinmeetsworld.blogspot.com
Anywhoo... |
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Brian
Member
Username: Belizeangaijin
Post Number: 59
Registered: 06-2007
| | Posted on Friday, April 19, 2013 - 07:01 am: |
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I wish I had more positive things to share with you...
Weight bearing exercise is any exercise where the bones are having to hold up against weight. Walking, Yoga, anything like that where you make the bones stress and react to usage. One of the mechanisms of our bones is like our muscles, usage helps to increase strength to a certain point.
How about your Vitamin D levels? Good? I thought mine were good because I was living in a very very sunny place and they were still low!
Biphosphonates are indeed available by IV as well. I have no idea if they are more effective or not, as I've never administered them in my work, nor have I ever used them myself. One of the articles I sent though seems to point to a potential for increased risk of osteonecrosis of the jaw at the levels used in IV which are apparently up to 10 times higher than what is taken orally. Certainly doesn't hurt to at least discuss with your doctor.
I also don't have much to offer on the birth control pill with/without estrogen. |
Russ
Member
Username: Rjwitte
Post Number: 143
Registered: 06-2009
| | Posted on Friday, April 19, 2013 - 09:33 am: |
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Tamara,
I'm so sorry about your diagnosis and situation. Let me give you my story before I offer some advice. I was 4 1/2 months from my heart transplant when I sneezed and suddenly had very severe back pain. When I went to the emergency room they discovered 3 crushed vertebra in the middle of my back and severe osteoporosis (59% of normal). It was awful. I immediately went to the osteoporosis doctors (can you imagine a 35 year old man among all the old ladies?) and they started aggressive treatment. Besides the bisphosphonate, both miacalcin (nasal) and fosomax. I was also sent to a endrocrinologist who added hormone replacement (I was low) and additional calcium and vitamin D (they checked my Vitamin D level and added 2000 mg on top of what was in the calcium). I also saw a physical therapist who provided exercises I could do at home with weights and elastic bands to strengthen the muscles and hopefully increase bone strength. I took pain killers several times a day in order to function because of the back pain. About 11 months out (6 months later) one leg/hip started to have awful pain. At first the doctors thought it was bursitis, but when it didn't respond to physical therapy I had an MRI and was diagnosed with osteonecrosis of the hip. It was almost certainly triggered by a rejection episode and subsequent high dose steroids used to treat it a few weeks before the pain. A few years later I had a hip replacement which resolved the hip pain.
Since then I have been on very little prednisone and have continued the fosomax, calcium supplementation, vitamin D supplementation, hormone replacement and exercise. Every couple of years I've had follow up Dexa scans to determine my bone density. Gradually over the years, my bone density has increased until now I'm back to normal in my back and only slight osteopenia in my hips and they have dropped the fosomax, although have kept all the rest of the supplements in place. Because I was young and very vocal about the problems they treated quite aggressively, all the while warning me that it was likely that I'd never regain complete bone strength. Well ... I'm almost there now (13 years later) and can certainly do anything I want. Last summer I carried my 4 year old daughter around on my shoulders as we took a 2 week tour of Europe, which would have been unthinkable the first year out. If I were you, I'd insist on seeing a physical therapist for exercise help, a endrocrinologist to thoroughly check to see if anything else is not normal as well as your osteoporosis doctor.
I wish you the very best. Hang in there, it can get better.
Russ - Heart Txp, 1-1-1999
Univ. of Michigan |
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Hostess Risé
Board Administrator
Username: Rise
Post Number: 17604
Registered: 05-2003
| | Posted on Friday, April 19, 2013 - 09:52 am: |
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Hi all
I love all the photos which adds such warmth when you read each post
Regarding taking supplements- I would not trust just any brand. Several years ago after finding out that my vitamin D was low, I tried a generic brand vitamin D and after taking a high dose, there was no change to the vitamin D level. I switched over to Biotics Research and I will say there was a dramatic difference in my vitamin D level. I take two 400mg drops twice daily and my last vitamin D level was around 50 something. Not sure what it is today but I hope it is around a good range.
With cystic fibrosis, we do not properly absorb our fat soluble vitamins and today I take my A, D, E K with some healthy fats when I eat. I have heard that the fat soluble vitamins work best this way.
I tend to take a greater amount of magnesium with a lower does of calcium added with zinc and chromium picolinate (helps with blood sugar but it is a mineral) I am not sure if this is the best way but for now, this is how I taking my supplements.
When in pain, I think it is best to ask the doctors how to properly exercise because you do not want to injure yourself.
I prefer resistance bands to start and then adding free weights or using machine weights when you feel stronger. Just my experience.
Thank you all for the support - we have no idea how many others are reading and gaining insights and support.
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ajs
Forum Leader
Username: Ajs
Post Number: 761
Registered: 03-2008
| | Posted on Friday, April 19, 2013 - 09:53 am: |
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Hey Brian,
Would you mind making your picture much smaller, so as not to impact the threads so much? Something like 200 pixels X 200? I assume you know how to do that.....thanks.
Double-Lung transplant at Duke on 10/27/08
Pulmonary Fibrosis with traction bronchiectasis
http://healthierlungs.com
Live each day as if you were living forever, and live each moment as if it were your last.
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Tamara
Member
Username: Heppygirl
Post Number: 96
Registered: 05-2011
| | Posted on Friday, April 19, 2013 - 09:53 am: |
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Hi Russ
I find that a very positive story. I'm already seeing a physical therapist for my hip pain, and I did let her know this morning that I was diagnosed with osteoporosis, so she can keep that in mind with my excrcise. I also do already my excercise that she gave me last week, but now twice a day, I want this pain to be over with in 4 weeks (I have a bachelorparty 11th of May AND one 8th of June.. And then A wedding de 21th..so you see..'
I also have to drop a few pounds (I already want that for over half a year but nothing seems te work, and I can't work out properly so..)
There's already a visit planned with the osteoporosis doctor, now only the endocrinologist... But I sincerely hope it's going back the way it should be... I have one hope I hold onto.. The estrogen (which I was talking about earlier) helps to make your bones stronger (helps with making bone) and I have almost none of it now because of my anti-conception...
I get that most man can't discuss this because, of no experience, but estrogen is really important by increasing bone structure...
What kind of hormones did you get Russ?
greetings
Tamara
26y/o, from the Netherlands
Cystic Fibrosis, Dxed at birth
Bilateral lungtransplant, September 2010
http://muffinmeetsworld.blogspot.com
Anywhoo... |
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ajs
Forum Leader
Username: Ajs
Post Number: 762
Registered: 03-2008
| | Posted on Friday, April 19, 2013 - 09:58 am: |
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Tamara,
Are you on an anti-depressant? Even if you are not totally depressed, Wellbutrin (Bupropion) is an amazing thing. Everyone I know that has gone on it has lost weight, their mood improved, energy increased (so more exercise), and it reduces cravings. That's why its re-branded as Zyban to stop smoking. Its also one of the only AD that does not decrease libido, in fact, in many cases it increases it. We are on so many drugs anyway, why not give it a try, if your Drs. go along?
Double-Lung transplant at Duke on 10/27/08
Pulmonary Fibrosis with traction bronchiectasis
http://healthierlungs.com
Live each day as if you were living forever, and live each moment as if it were your last.
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Brian
Member
Username: Belizeangaijin
Post Number: 61
Registered: 06-2007
| | Posted on Friday, April 19, 2013 - 10:07 am: |
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Ajs,
sorry about that. I HAD resized the picture, the bigger one was half the size of the original... 
I'm often told I'm the loudest voice at the party, I guess that was just carrying over to my picture as well....
Should be better now.
Brian |
Russ
Member
Username: Rjwitte
Post Number: 144
Registered: 06-2009
| | Posted on Friday, April 19, 2013 - 10:17 am: |
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Tamara,
Estrogen is very important for bones in women, testosterone acts in a similar role in men and post transplant the antirejection medicines often significantly reduce production of these so-called sex hormones. They tried patches first, which didn't work well, then for many years I gave myself a shot every 2 weeks. For the last several years I've moved to a gel that I apply every day that gives a more steady supply and keeps it normal.
I'd also encourage you to look at diet ... Rise may be able to give better advice, but whole natural foods, lots of green non-starchy vegetables, particularly leafy greens (kale, chard, spinach, etc), yoghurt and milk. I am of German ancestry and like small fish too ... matjes, sardines, herring and such. Besides lots of good oils and protein, they also provide calcium. Just for general good health, eat as little processed food as possible. My rule of thumb is, I can eat anything I can find in my garden.
Lastly, ajs' idea of an anti-depressant is a good one ... I was really upset when this first happened and for a couple of years until I got used to the idea of having osteoporosis and started to see some improvement I was on an anti-depressant. It certainly helped me deal with it.
Yours.
Russ - Heart Txp, 1-1-1999
Univ. of Michigan |
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Tamara
Member
Username: Heppygirl
Post Number: 97
Registered: 05-2011
| | Posted on Friday, April 19, 2013 - 11:15 am: |
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I'm really against anti-depressants actually.. I'm also definitely not depressed, just a little moody now because of this thing and why nothing seems te work.. But that will clear up in a few days, thats how I work ;) 5 stages of grief youknow, works every time :P
What you say about eating right etc, I always do that, That is quite normal here in the Netherlands. Always make en cook my own food with as less additives as possible.. but I don't understand what you mean by non-starchy vegetables?
Like I said, I eat enough milk and yoghurt, have my calcium supplements, eat the good oils and enough fish(my favorite!) Make my own sauces etc... So yeah, that's also kind of why I'm so frustrated.. I do everything right, according to the rules and it doens't seem to help..
So indeed, I have my hopes set on the hormones.. ;) I really don't get why they put prednisone and non-estrogen anti-conception together... Ah well.. let's see what the doctor says...
btw my vitamines etc, all my antibiotics etc are prescribed by the doc and given to me by my pharmacist.. I think they know what they're doing... Everyone with CF are on the same vitamines (Aquadeks) so I guess that they are working properly...
Tamara
26y/o, from the Netherlands
Cystic Fibrosis, Dxed at birth
Bilateral lungtransplant, September 2010
http://muffinmeetsworld.blogspot.com
Anywhoo... |
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Russ
Member
Username: Rjwitte
Post Number: 145
Registered: 06-2009
| | Posted on Friday, April 19, 2013 - 11:27 am: |
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I think you're doing all the right things ... except for the estrogen replacement. It does feel like your doctors missed that.
Non-starchy vegetables are things like asparagus, broccoli, cauliflower, cabbage, onions, squash, cucumbers. Potatoes, grains and rice are starchy. Your diet sounds really good already ... I love to cook at home too. Besides it being healthier, it's more fun to sit down together with the family and talk.
Russ - Heart Txp, 1-1-1999
Univ. of Michigan |
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Hostess Risé
Board Administrator
Username: Rise
Post Number: 17605
Registered: 05-2003
| | Posted on Saturday, April 20, 2013 - 08:28 am: |
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Calcium must be balanced with magnesium and adequate levels of magnesium are essential for the absorption and metabolism of calcium.
• Magnesium stimulates a particular hormone, calcitonin, that helps to preserve bone structure and draws calcium out of the blood and soft tissues back into the bones, preventing some forms of arthritis and kidney stones.
• Magnesium suppresses another bone hormone called parathyroid, preventing it from breaking down bone.
• Magnesium converts vitamin D into its active form so that it can help calcium absorption.
• Magnesium is required to activate an enzyme that is necessary to form new bone.
• Magnesium regulates active calcium transport.
http://www.nutritionalmagnesium.org/articles/nutrition/110-calcium-magnesium-balance.html
Rise' note:
That is why I asked if you take magnesium and since you did not mention this, I added the importance.
Calcium has always been thought as the one mineral that helps prevent Osteo. This is no longer believed to be the case. Vitamin D, magnesium and calcium all play a role. Look up Vitamin K about bone loss prevention.
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Russ
Member
Username: Rjwitte
Post Number: 146
Registered: 06-2009
| | Posted on Saturday, April 20, 2013 - 08:52 am: |
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I concur. I get muscle cramps if I don't take supplemental magnesium, so I've also had a Cal+Mag+D vitamin since transplant. Initially, when I was on higher cyclosporine, I took 1600mg/day. Now it's 500 mg.
Russ - Heart Txp, 1-1-1999
Univ. of Michigan |
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Tamara
Member
Username: Heppygirl
Post Number: 98
Registered: 05-2011
| | Posted on Saturday, April 20, 2013 - 12:01 pm: |
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Ok thanks for all the help people See, that's why I find this forum so good, always get good help here. Don't take extra magnesium but I think I'll start on that.. Do you know what good sources are for magnesium?
I didn''t know what starchy was, now I do. I, of course, like any other human being, eat rice, pasta (almost no potatoes, I don't like them) and bread. I love then, and i actually don't believe that skipping those grain foods (I don't think of them as vegetables but as grain foods, good because of the carbs), vegetables are always without (almost without) carbs... thats the fun thing from vegetables :P) is good for your diet. your body needs, beside vegetables and meat, also carbs to give you energy. without carbs I'm really low on energy... And besides that, I have diabetes (like half of the people here i guess) and with the carbs (but not to much) I'm quite stable with my bloodsugars...
I can't even think how to eat without carbs?
Tamara
26y/o, from the Netherlands
Cystic Fibrosis, Dxed at birth
Bilateral lungtransplant, September 2010
http://muffinmeetsworld.blogspot.com
Anywhoo... |
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ajs
Forum Leader
Username: Ajs
Post Number: 763
Registered: 03-2008
| | Posted on Saturday, April 20, 2013 - 12:40 pm: |
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Tamara - I'm surprised you aren't already on supplemental Magnesium. The meds we're on tend to sap our magnesium. At Duke, Mag. is part of the protocol. Even taking 500 mgs. of Magnesium Oxide per day, my labs still show my level right at the bottom of normal. Is Mag. level in your normal labs? Just look for an inexpensive source of MagOx. try Amazon, they are almost always the cheapest for most everything.
Some things I have done to lose weight is eat Chia seeds in my yogurt almost every day. Very filling and the highest source of non-fish Omega-3. Read about the benefits. Far and away the best way for almost anyone to lose weight, beyond exercise, is to not eat after about 7 PM each night. If you do this for two weeks, I bet you will lose 5 pounds. I also use nuts to fulfill my need for salty-crunchy things, instead of crackers. Pizza and frites are the worst. You don't need to stop, just use extreme moderation. Hate to say it, but bread is worthless. I eat lots of meat, vegetables, and salad.
Double-Lung transplant at Duke on 10/27/08
Pulmonary Fibrosis with traction bronchiectasis
http://healthierlungs.com
Live each day as if you were living forever, and live each moment as if it were your last.
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Tamara
Member
Username: Heppygirl
Post Number: 100
Registered: 05-2011
| | Posted on Saturday, April 20, 2013 - 01:24 pm: |
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Hi ajs.
I don't know anyone actually who gets magnesium after their transplant here in the Netherlands, it's definitely not common... I asked for the magnesium test once, but my docter said last time it was measured it was alright... So trust my doctor on that.. And he also said that magnesium is in bread.
I don't know how your bread is, but my bread always fills me up real good...I almost never eat pizza or fries (like once per 2 months or so...) so I guess that's moderation enough ;) I stopped eating cookies about a year, I didn't find that very hard, and instead of that I eat mostly fruits and something high fibre crackers. Yoghurt is one of the things I really really dislike (everytime I try, I puke) so yeah.. :P The only yoghurt I like is the Greek or Turkish one, but it's really fattening so I don't want to eat that either..
I try not to eat after dinner (which is between 6-7:30) but most of the time I end up in a hypo when I want to go to bed (around 10:30).. So I'm a bit stuck there. We tried to lower my insuline, but so far it didn't work... (btw if I don't eat in the evening, I go to bed really hungry, or wake up in the middle of the night or early in the morning really hungry, so hungry I'm nauseous (and sometimes have to puke) which I don't find very likable :P It's probably something you have to get used to, but I really don't know how to. How do/did you do it?
Tamara
26y/o, from the Netherlands
Cystic Fibrosis, Dxed at birth
Bilateral lungtransplant, September 2010
http://muffinmeetsworld.blogspot.com
Anywhoo... |
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Hostess Risé
Board Administrator
Username: Rise
Post Number: 17607
Registered: 05-2003
| | Posted on Saturday, April 20, 2013 - 02:57 pm: |
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Tamara- were you ever thin due to CF? What do you think has caused your weight gain? By the way, you look beautiful in your photo.
I love gluten free bread- and I personally need to gain weight and sometimes that can be just as difficult as losing weight.
AJS- I always have low magnesium levels but not critically low always low side of normal but I do take my blood test fasting.
Tamara- I would imagine if you could fall into a steady workout./exercise plan you will have an easier time managing your insulin levels.
Since you are not feeling well right now, I can see it could be difficult.
Do you like hummus or any bean dips? Perhaps you can chop up small pieces of celery and have celery with bean dip in the middle of the night.
For snacks in the middle of the night, I prepare an easily digestable protein cake. In a blender *vitamix I use two full pints of egg whites, pea protein powder, carob powder, chia seeds, a package full of figs, some nuts if you like, apple sauce and some almond milk and almond butter. Whatever I put into that makes this full blender full of healthy food, I cook for twenty minutes. This cake last me two days of snack food.
Yogurt is probably better. Have you tried Kefir? It taste like yogurt but I think you would like the taste because to me it taste like melted ice cream (without added sweeteners).
I too eat super healthy and maybe you can call me the non junk food junkie. It is not healthy, gluten free, I will not touch it. LOL
As a child, I felt instinctively that healthy food was the only defense that I had toward living with Cystic Fibrosis.
Too bad, I did not have the knowledge that I have today back when i was little. I believe my life with CF would have been much different.
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Russ
Member
Username: Rjwitte
Post Number: 147
Registered: 06-2009
| | Posted on Saturday, April 20, 2013 - 03:40 pm: |
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Tamara,
I mostly included the comment about non-starchy vegetables, because in the US, when one talks about eating your vegetables, some people think that means French fries and Wonder bread... sounds like your diet is very good anyway. Do you like cheese as well? For diabetes control, the lower you can bring the carbs/sugars the better. Contrary to most doctors advice, you can actually live on almost no carbohydrate, although you will get plenty in just green vegetables, diary and whole fruits/berries. You will never be able to get in any pill everything you need for good health/bones. Good diet is critical. Be sure to check about the magnesium ... I had a tough time getting enough in my diet but different drugs interact differently.
Russ - Heart Txp, 1-1-1999
Univ. of Michigan |
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Tamara
Member
Username: Heppygirl
Post Number: 101
Registered: 05-2011
| | Posted on Saturday, April 20, 2013 - 04:05 pm: |
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Ajs + Risé thanks for your information.
I think it's quite difficult to compare the Netherlands to the USA when it comes to food. I've been to the USA 2 years ago, and althought I did not eat very differently from when I was home, I gained 3 kilo's in 4 weeks!! That would never achieved that in The NL, whatever I ate....
Risé, I'm really sorry to say, but what you described there.. It sounds disgusting, Sorry :P (But that's because of me, I really hate nuts, so almond stuff, nuts are off, figs are off, apples I'm allergic to and I can't find Chia seeds anywhere (I've been looking for that for several months now but really... nowhere!)
Before my transplant I could eat whatever I wanted, just eat all day long and still lose weight... for 24 years.. So I'm kind of used to that ;) But now I don't need the energy anymore so my body has paused or something and before I lived on 3600 calories a day and now I gain wait when I eat 1600.. So I have Tiny Little problem there... My family has to watch what they're eating otherwise they will gain wieght also. Lucklyli my family taught me how to live and eat well so we're all nog fat (just average, BMI around 22, except for me than..)
No matter what I eat now it seems I gain weight.. So on 1200 calories I stay where I am... Excercise would do the trick I think but since I have been transplanted I've struggled with several injuries in my ankles, hips, knees, arms and so on we continue... The only thing I can do right now is swimming or bycycling so I bicycle my way to work (an hour per day, so not bad) When I swim I get itchy all over (I also get itchy when I shower... tried everything, nothing helped) so it sééms like I'm high sensitive to water (but that is, off course, really weird...) And note: Our water doesn't have chloride in it.. The Swimming water does obviously
You see where my troubles are ;) I really want this wheel to turn the right direction...
Risé, AJS can you give me an example of your daily diet? I would really appreciate that.
Tamara
26y/o, from the Netherlands
Cystic Fibrosis, Dxed at birth
Bilateral lungtransplant, September 2010
http://muffinmeetsworld.blogspot.com
Anywhoo... |
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Hostess Risé
Board Administrator
Username: Rise
Post Number: 17613
Registered: 05-2003
| | Posted on Sunday, April 21, 2013 - 11:10 am: |
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Hi Tamara
Yes in the USA if you do not eat organic foods then many of us can eat foods that are genetically modified unless you know the source is non-GMO. Scary for us but not for you.
That is probably why you gained weight when you came over here. Most restaurants cook with too much salt.
I only buy organic or Non GMO foods so basically, I eat well no worries on my end.
I try and eat food every two-four hours and if I can get in a middle of the night snack which is rare, I do and if I have my delicious cake, I will eat it and then of course brush my teeth. I always sleep on pillows so I am not concerned about the food not digesting well if I would fall back to sleep.
My diet varies from time to tome. When my weight is low, I will start to eat dairy which helps me to gain weight.
I found an online bakery from California that makes almond and coconut flour based breads and most recently, I try and consume bread with each snack for added calories and fiber.
For breakfast, I like two eggs, gluten free bread some veggies and a good hour later some fruit. I try and consume protein, healthy carbs, healthy fats every single time I eat.
A good meal for me would consist of fish or chicken on rare occasion red meat, green veggies, fish coated with coconut oil, for a carb, I would have a sweet potato and beans. I cannot eat all this much all the time.
Recently, I have added lipase to my enzyme mix from a vegetable source. I am digesting my foods and burning belly fat but my weight is an issue now. I am always trying to tweak something that I am working on.
By the way, my high protein cake mix is the most delicious high protein bar I have ever tasted! It might sound gross in the raw stages but when it is baked, I can eat this treat all day long. Sometimes if I do not have any figs, I will add in two sweet potatoes to the mix. LOVE!!
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ajs
Forum Leader
Username: Ajs
Post Number: 764
Registered: 03-2008
| | Posted on Sunday, April 21, 2013 - 03:57 pm: |
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Hi Tamara,
I am not nearly as rigid or discerning as our lovely Hostess. I have a very limited and boring daytime diet, but it is things I like very much, so I'm able to maintain. I only eat two small meals during the day, but one is almost always Chobani Greek yogurt with a tablespoon of Chia seeds. My other staples are bananas with peanut butter on them, tuna fish, cottage cheese or cheddar cheese with almonds, and sliced smoked turkey.
For dinner I eat most anything my wife or I make, but almost always include raw broccoli or carrots. Love brussels sprouts, too. We just try to finish dinner by 7. If I crave a sweet snack in the evening, apple pieces dipped in caramel sauce from Trader Joe's will usually suffice. Or an orange. On the weekends I've been known to go off the rails, because I can't live in a 'food gulag'. But still I've lost 30 pounds in the last two years, and keep it off easily.
Our fast food and processed food culture is the reason for the American obesity epidemic. I travel to Holland quite a bit, as I think you know, and I'm always struck with how few overweight people there are. I hope you can find a solution for your bone pain, as I'm guessing your inability to exercise is a big contributor to any weight issues. Best of luck!
Double-Lung transplant at Duke on 10/27/08
Pulmonary Fibrosis with traction bronchiectasis
http://healthierlungs.com
Live each day as if you were living forever, and live each moment as if it were your last.
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Holly
Member
Username: Holly
Post Number: 611
Registered: 09-2007
| | Posted on Friday, April 26, 2013 - 07:54 am: |
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Hi Tamara,
I have osteoporosis as well. I had it before transplant but the steroid exasperated it very quickly. I was taking injections in my stomach with a drug called Forteo (very expensive and I had to do it for 2 years) not much help. I now get a shot twice a year called prolia. My last bone scan showed a 19% increase in bone density! Worth it!. Hope this helps.
Holly Mulkerin
Medina Ohio
Heart transplant 1/28/09 I have a Happy Heart
Be kind. Remember that everyone you meet is fighting a hard battle. Harry Thompson
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Tamara
Member
Username: Heppygirl
Post Number: 102
Registered: 05-2011
| | Posted on Friday, April 26, 2013 - 08:16 am: |
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Hurray, that sounds good I've heard more stories from my Dutch friends here, and most of them have a case of Osteoporosis... IT seems they just let it be... All of them say, I do everything still and sometimes I break something but no biggie... I don't know, but that's not how I want to live actually... At work I have to walk and carry a lot of things, I don't have the time (and I don't WANT to) to break anything.. I've never broken anything in my life, so I'm not starting now... Tha'ts why I'm so glad with the help of you guys, the USA has more stuff, knows more about this...
Tamara
26y/o, from the Netherlands
Cystic Fibrosis, Dxed at birth
Bilateral lungtransplant, September 2010
http://muffinmeetsworld.blogspot.com
Anywhoo... |
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