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TransplantBuddies.org Forums » Heart - Lung(s) » Sarah Murnaghan Gets Second Lung Transplant, First Failed: Family « Previous Next »
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Jay Lackritz
Forum Leader
Username: Jay_ny

Post Number: 543
Registered: 01-2007


Posted on Friday, June 28, 2013 - 03:36 pm:   Edit Post Delete Post Print Post

Sarah Murnaghan is on her second pair of lungs. The lungs failed after the first transplant, so she went back on the list, and has now had her second lung transplant. She has had problems with the 2nd transplant, since the donor had pneumonia, so the lungs were not in great shape.

http://www.nbcphiladelphia.com/news/local/Sarah-Murnaghan-Gets-Second-Lung-Transplant-First-Failed-Family-213556431.html
Jay Lackritz@Optonline.net
Jay Lackritz.com
Bilateral Lung TX, May 10, 2007, Columbia University Medical Center/NYPH
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Hostess Risé
Board Administrator
Username: Rise

Post Number: 17773
Registered: 05-2003


Posted on Friday, June 28, 2013 - 05:17 pm:   Edit Post Delete Post Print Post

Incredible what this little girl has endured.
Thanks for sharing Jay.
CF- dx at 2yrs. 2nd double lung tx-05 JMH
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ajs
Forum Leader
Username: Ajs

Post Number: 779
Registered: 03-2008


Posted on Tuesday, July 02, 2013 - 11:37 am:   Edit Post Delete Post Print Post

I'm assuming the donor didn't die from pneumonia. How odd to die of something else while you have pneumonia. I hope this pair works out, doubt they could try a third. Come on, Sarah!
Double-Lung transplant at Duke on 10/27/08
Pulmonary Fibrosis with traction bronchiectasis

http://healthierlungs.com

Live each day as if you were living forever, and live each moment as if it were your last.

Hostess Risé
Board Administrator
Username: Rise

Post Number: 17777
Registered: 05-2003


Posted on Wednesday, July 03, 2013 - 05:10 pm:   Edit Post Delete Post Print Post

Hi Ajs
I have no idea but assuming the donor was brain dead, pneumonia can find its way in being on the vent without medications and all.

I am praying for Sarah to be well.
CF- dx at 2yrs. 2nd double lung tx-05 JMH
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Jay Lackritz
Forum Leader
Username: Jay_ny

Post Number: 544
Registered: 01-2007


Posted on Tuesday, July 09, 2013 - 09:13 am:   Edit Post Delete Post Print Post

July 8, 2013

Sarah Murnaghan has developed pneumonia in one of her newly transplanted lungs, her mother wrote on Facebook. It likely developed because Sarah breathed in her stomach contents, doctors told her mother.

"Yesterday was tough," Sarah's mother, Janet Murnaghan, wrote on her Facebook page. "Today she is more stable, but this is definitely a large set back."

See Sarah blow a kiss and wave for the camera on July 4.
http://abcnews.go.com/Health/sarah-murnaghan-waves-blows-kiss-video-lung-transplants/story?id=19585098#

The 10-year-old whose parents successfully fought a rule preventing her from qualifying for adult lungs underwent two lung transplants in June. The first transplant failed almost immediately after surgery June 12. She was then relisted for another adult-lung transplant and received it June 15, even though the donor lungs were infected with pneumonia.

Read about how "things quickly spiraled out of control" for the Murnaghans before they got better.
http://abcnews.go.com/Health/girl-breathing-lung-transplant/story?id=19521453

A healthier patient might have turned down the lungs and waited for a better pair, but Sarah was out of options, so they went ahead with the operation.

"They were Sarah's best and only hope," the Murnaghans wrote in their June 28 statement. "The second transplant operation was truly a success."

Sarah underwent diaphragm surgery Tuesday because her diaphragm was partially paralyzed during the two transplants, making it difficult for her to breathe on her own. The diaphragm surgery was another step.

Sarah was dying of cystic fibrosis this time last month. The genetic condition affects cells that produce mucus, sweat and digestive fluid. Patients typically suffer so much lung damage that they often go into respiratory failure, which is why Sarah needed a lung transplant to survive.

About a month ago, Janet Murnaghan started a Change.org petition, calling attention to what would become known as the Under 12 Rule, which said that even though Sarah would be given priority when pediatric lungs became available, adult lungs would have to be offered to adult matches in her region before they could be offered to her.

On June 5, a federal judge issued a temporary restraining order to prevent U.S. Health and Human Services Secretary Kathleen Sebelius from enforcing the rule for Sarah. By June 10, the Organ Transplantation and Procurement Network re-evaluated the Under 12 Rule and decided to keep it but created a mechanism for exceptions, depending on the case.

Read more about the transplant-policy review.
http://abcnews.go.com/Health/girl-prompts-small-change-organ-transplant-policy/story?id=19373685#

Story:
http://abcnews.go.com/Health/sarah-murnaghan-develops-pneumonia-lung/story?id=19607924#
Jay Lackritz@Optonline.net
Jay Lackritz.com
Bilateral Lung TX, May 10, 2007, Columbia University Medical Center/NYPH
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Google doc

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