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Tim
Member
Username: Secondchance

Post Number: 1
Registered: 07-2013
Posted on Thursday, July 04, 2013 - 07:54 pm:   Edit Post Delete Post Print Post

Hi everyone. So I'm new to this site but I figured it was a good place post. I'm a 28 year old who was diagnosed with cystic fibrosis when I was 3 months old. I lead a fairly normal life minus the med's and daily physio my parents had to give me. For the most part I had a healthy young and teen life. in my early 20's lung infections became more frequent which resulted in more hospital stays and a steady decline in my lung function. The signs of my lung's failing was affecting my daily life. By the time I was 22 you could say my quality of life was non existent. I was on oxygen 24/7.Daily activities were unbelievably hard. I couldn't get dressed without taking breaks and I had to sit to shower on the days I could make it to the shower. I was listed for transplant in 2008 and luckily only waited for 6 months till I got the life changing call on Nov 19,2008 that lungs had come available. The next 4 and a half years had been fantastic I could live a normal life. I met a beautiful girl, we got the cutest little puppy and I bought a house. Which happened just in time. Up until May of this year I had done fantastic. Then all of a sudden I was having a lot of trouble breathing. I took a 8 hr trip to Edmonton. AB. Where my transplant doctors are and after a week in hospital they figured I had pneumonia and sent me home on antibiotics. A week at home and things were not getting better but progressively worse. Back to Edmonton I went only this time they found rejection which when I had my first transplant I knew that word would eventually take my life. And in 2 months it did enough damage to drop my lung function from the mid 80% down to 35%. I spent another month in hospital and they finally got the rejection to stop for the time being. So needless to say I'm right back to where I was just about 5 years ago. I'm back on oxygen and can barely do the day to day necessities. Luckily I have Amanda and our puppy Lux to help. On July 15th ill be going to Edmonton for a 4-6 week work up to get me ready for transplant. It'll included physio, teaching and some tests so they can match me accordingly with a donor. As well when I get the call I'm required to stay in Edmonton for another 3-6 months as long as things go smoothly. With the cost of travel, food and accommodation it quickly adds up. As much as I hate fundraising for myself I know it needs to be done. So any help would be greatly appreciated. I would assume none of you live in Regina sk so mentioning we're having a pizza pasta night fundraiser is probably pointless lol. Either way here is a link to my site and a link to the news paper article they just ran. There's a few pics of my first transplant when I was still in icu and another that was just taken on Monday.

https://www.youcaring.com/medical-fundraiser/second-try/69231

http://www.leaderpost.com/health/with+fights+life+again/8595841/story.html
Hostess Risé
Board Administrator
Username: Rise

Post Number: 17779
Registered: 05-2003


Posted on Friday, July 05, 2013 - 03:45 pm:   Edit Post Delete Post Print Post

Hi Tim
I wish you the best with your upcoming second double lung transplant.
You are blessed that you are positive and have a special young lady behind you.
If you have any questions just ask
Rise'
I am sharing your link in our newsletter today.
CF- dx at 2yrs. 2nd double lung tx-05 JMH
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