| Author |
Message |
Hostess Rise'
Forum Leader
Username: Risa
Post Number: 12294
Registered: 05-2003
| | Posted on Wednesday, February 10, 2010 - 10:01 am: | 
|
Please state if you had a Liver transplant or if you are waiting for your new Liver.
Please include your picture if you like and mention your transplant center. I want to create this special thread and can only do this with your help.
|
Meagan
Forum Leader
Username: Newheart14
Post Number: 830
Registered: 01-2009
| | Posted on Wednesday, February 10, 2010 - 10:39 am: |
|
I received a liver (and heart) transplant on Valentine's Day, 2008 at Toronto General Hospital, Toronto, Canada.
|
Joe Berry
Member
Username: Joe910
Post Number: 124
Registered: 08-2008
| | Posted on Wednesday, February 10, 2010 - 12:24 pm: |
|
I received my liver at Northwestern Memorial Hospital, Chicago, IL on October 17, 2007.
Joe Berry, Peoria, IL USA
Diagnosed with PSC and UC in 1990
Liver Transplant 10-17-2007
Northwestern Memorial, Chicago, IL |
|
Renee
Member
Username: Reneewilliams
Post Number: 8
Registered: 01-2010
| | Posted on Wednesday, February 10, 2010 - 12:48 pm: |
|
I had a liver Transplant at Children's Hospital of Pittsburgh on May 23/24 of 1985. |
Renee
Member
Username: Reneewilliams
Post Number: 9
Registered: 01-2010
| | Posted on Wednesday, February 10, 2010 - 01:00 pm: |
|
Ok that picture didnt work so I'll try again
 |
Hilary
Member
Username: Cowgirlhilary301
Post Number: 21
Registered: 05-2009
| | Posted on Wednesday, February 10, 2010 - 01:03 pm: |
|
I have had 2 liver transplants, the first at Children's Medical Center of Dallas in 1996 and the second at Baylor University Medical Center in Dallas in 2001. I am having difficulty adding a photo--any tips on how to do that?
~Hilary~
2-time liver recipient 07.20.1996 and 03.01.2001 Dallas, TX
Transplant Games Athlete, Tennis/Swimming
Team Maryland |
|
Mia
Member
Username: Mia2001
Post Number: 6
Registered: 02-2010
| | Posted on Wednesday, February 10, 2010 - 05:26 pm: |
|
I had a liver transplant June 18, 2009 at Ochsner's Medical Hospital in New Orleans, Louisiana. I had Primary Sclerosing Cholangitis, I was diagnosed in February 2009.
Mia
Liver Transplant
June 18, 2009
Ochsner's Medical Hospital |
|
bob
Member
Username: West_of_rome
Post Number: 16
Registered: 12-2009
| | Posted on Wednesday, February 10, 2010 - 05:40 pm: |
|
I am recently on the transplant list... University of Chicago
Sometimes you climb out of bed in the morning and you think, I'm not going to make it, but you laugh inside remembering all the times you've felt that way.
Charles Bukowski |
|
Frank J.
Member
Username: Txaggie86
Post Number: 129
Registered: 03-2009
| | Posted on Wednesday, February 10, 2010 - 05:42 pm: |
|
Howdy.
I had my first transplant in April 2005 due to cryptogenic cirrhosis. My second transplant, in April 2006 was due to Sclerosing Cholangitis.
|
CJ
Member
Username: Still_standing
Post Number: 284
Registered: 11-2008
| | Posted on Wednesday, February 10, 2010 - 07:45 pm: |
|
I had my transplant March 1, 2008 at Georgetown University Hospital.
CJ
Liver Transplant
3/1/08
Maryland |
|
LindyB
Member
Username: Lindyb
Post Number: 55
Registered: 07-2009
| | Posted on Wednesday, February 10, 2010 - 08:45 pm: |
|
I am the caregiver of BillyB who is waiting for a liver; been listed at University of Md Hospital since August 2008.
Wife and caregiver to BillyB.
Diagnosed w/Hep C and Cirrhosis 1/08
Added to the waiting list 8/08.
|
|
Mashka
Member
Username: Mashka
Post Number: 81
Registered: 11-2009
| | Posted on Wednesday, February 10, 2010 - 11:18 pm: |
|
I received my liver transplant August 14, 2009 at Mount Sinai in New York.
Liver transplant 8.14.09
Mount Sinai, NY |
|
Diane
Forum Leader
Username: Mary_diane
Post Number: 396
Registered: 02-2009
| | Posted on Thursday, February 11, 2010 - 01:48 am: |
|
I received my liver Transplant Nov 20, 2008 3 weeks after becoming critically ill from the Parvo B 19 Virus.
I am so grateful to be here.
Diane
Liver Transplant Nov 20, 2008
Vancouver General, BC
“Sometimes our light goes out but is blown again into flame by an encounter with another human being. Each of us owes the deepest thanks to those who have rekindled this inner light.”
Albert Schweitzer
|
|
Gary
Member
Username: Grser
Post Number: 12
Registered: 01-2010
| | Posted on Thursday, February 11, 2010 - 03:57 am: |
|
Hi,
Gary here. I am on the Transplant list at Cedars Sinai in Los Angeles.
Gary
Pre Liver Transplant |
|
Alan
Member
Username: Memorybabe
Post Number: 2
Registered: 01-2010
| | Posted on Thursday, February 11, 2010 - 03:12 pm: |
|
I had a liver transplant on 12th September, 2009 (5 months ago today) at the Royal Prince Alfred Hospital in Sydney, Australia. I am doing very well, although I now have Osteoporosis and have 2 fractured vertebrae which has caused me a lot of pain in the last 2 months. My doctor tells me that they are stress fractures caused by reduced bone density.
They were going to give me a bone infusion at the time that I was re-admitted to hospital because some blood had accumulated in the area near where my enlarged spleen had been, removed during the transplant operation(4 weeks earlier). They cut me open again and removed a litre or two of clotted blood and the infusion didn't go ahead as the recovery from this second operation was much harder to deal with than the transplant itself had been. Has anyone else had a similar experience with either the spleen problem or the Osteoporosis complication? |
Liver Giver
Forum Leader
Username: Beteboop
Post Number: 700
Registered: 10-2007
| | Posted on Thursday, February 11, 2010 - 07:35 pm: |
|
great thread! Nice to see such happy faces
Dawn
Forum Leader Living Organ Donation
Liver Donor 11/19/07 to brother Anthony
Good and bad things happen in life, but what matters, what defines us, is how we handle them |
|
eccoblue
Forum Leader
Username: Eccoblue
Post Number: 1096
Registered: 05-2008
| | Posted on Friday, February 12, 2010 - 12:15 am: |
|
I received a liver (and heart) on Feb. 1, 2007 at Cedars-Sinai in Los Angeles.
|
Caroline
Member
Username: Carolined
Post Number: 4
Registered: 12-2009
| | Posted on Sunday, February 14, 2010 - 11:11 pm: |
|
My husband, Terry, had his liver transplant on 6th of October 2008 at Broward General, Ft Lauderdale. |
Kayla
Member
Username: Alpha1alone
Post Number: 32
Registered: 12-2008
| | Posted on Wednesday, February 17, 2010 - 04:37 am: |
|
I had a liver transplant at Childrens Medical Center in Dallas TX in March 2001 due to Alpha one anti trypsen defiancy.
|
mikesimon
Member
Username: Mikesimon
Post Number: 53
Registered: 08-2007
| | Posted on Thursday, February 18, 2010 - 09:35 am: |
|
Liver transplant June 2000 at Starzl Transplantation Institute - UPMC - Pittsburgh, PA.
mikesimon
Liver
Starzl Transplantation Institute 6/16/2000 |
|
JennP
Member
Username: Jlp0604
Post Number: 8
Registered: 01-2010
| | Posted on Thursday, February 18, 2010 - 01:04 pm: |
|
I was 29 at the time of my transplant on July 26, 2009. My Docs at the University of Michigan were great. I had a wonderful experience! I would certainly recommend this hospital.
Alpha 1 Antitrypsin Deficiency and Cystic Fibrosis
Liver Transplant and Gall Bladder Removal
July 29, 2009
University of Michigan Hospital
Ann Arbor, MI |
|
panchitaruiz
Member
Username: Panchitaruiz
Post Number: 66
Registered: 01-2009
| | Posted on Friday, February 19, 2010 - 01:09 am: |
|
I had my liver transplant ( due to tylenol)Jan. 26th , 2007 at UCLA. I absolutely LOVE them...I am now seen at Stanford Hospital and they are NOTHING compared to UCLA.
Francesca
fulminant hepatitis
Liver transplant '07
UCLA |
|
LUOMING
Member
Username: Luoming777
Post Number: 41
Registered: 02-2009
| | Posted on Friday, February 19, 2010 - 09:01 am: |
|
hello everyone
i had liver transplant on Nov 14,2003 in Beijng China
i do like to meet new friends to chat on line to share experience
|
Hostess Rise'
Forum Leader
Username: Risa
Post Number: 12482
Registered: 05-2003
| | Posted on Friday, February 26, 2010 - 08:00 pm: |
|
Thank you everyone for sending in your photos..
|
Terri
Member
Username: Terri
Post Number: 170
Registered: 09-2007
| | Posted on Saturday, February 27, 2010 - 02:12 pm: |
|
I had my liver transplant July 2, 1991 at Eglestone Children's Hospital in Atlanta. I was Georgia's 8th pediatric liver transplant recipient. I am now seen at Emory, have been since I was 21.
I forgot how to add a picture here but if you visit my blog, my picture is there.
http://terri7291.blogspot.com/
Terri - Because I CAN
Liver Transplant July 2, 1991 |
|
Rick
Member
Username: Rick
Post Number: 3
Registered: 03-2010
| | Posted on Monday, March 15, 2010 - 05:56 pm: |
|
Hi to all my transplant Buddies. My name is Rick. I had Kidney donor surgery in Kingston, Ontario, Canada Nov. 2006. for my identical twin brother. I woke up from surgery to find my wife and brother standing beside my bed and found out they could not take my kidney. I was heart broken. I felt as though I failed and let him down. Three months later I was back to work and my brother got a kidney in June 2007. He is doing OK now. Then in the fall of 2007 I was told I had PSC. I got as yellow as a banana and itchy as crap for about a year. May 9th 2008 I got my first liver transplant at Toronto General. Home in 4 days. Then the liver failed (DVT, blood clot in main vein) and I was back in the hospital and received my second transplant on july 14th. I was in the hospital for 3 weeks before and 4 weeks after the second transplant. Not good at all. I was 168lbs before my first transplant and after my second one I was down to 117lbs. Back up to 165lbs now. A lot of complications from the antirejection drugs that did not happen after the first transplant. I'm doing pretty good now but still have a lot of side effects. I thank both my donors every day.,Me before my first transplant} |
Rick
Member
Username: Rick
Post Number: 4
Registered: 03-2010
| | Posted on Monday, March 15, 2010 - 05:59 pm: |
|
OMG LMFAO I can't believe how big that pic. came out on here. sorry all. Not very handsome.lol |
Meagan
Forum Leader
Username: Newheart14
Post Number: 999
Registered: 01-2009
| | Posted on Monday, March 15, 2010 - 06:04 pm: |
|
Rick's picture resized.
Forum Leader
First Combined Heart-Liver Transplant
Performed at Toronto General Hospital, Toronto, Canada
February 14, 2008
Diagnosed with idiopathic dilated cardiomyopathy 1991 and eventual CHF
Most of the immportant things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie |
|
Meagan
Forum Leader
Username: Newheart14
Post Number: 1001
Registered: 01-2009
| | Posted on Monday, March 15, 2010 - 06:17 pm: |
|
Hi Rick,
No worries about the honking big picture... lol. I resized it for you.
I just wanted to say hi and welcome. I am a fellow Canadian. I had my heart and liver transplant at Toronto General Hospital as well and we have gone to Kingston many times - love the boat cruise amongst the Thousand Islands.
I am so sorry you have had such a rough time with your transplants. I hope everything is totally straightened out very soon.
Take care eh!
Meagan 
Forum Leader
First Combined Heart-Liver Transplant
Performed at Toronto General Hospital, Toronto, Canada
February 14, 2008
Diagnosed with idiopathic dilated cardiomyopathy 1991 and eventual CHF
Most of the immportant things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie |
|
Meagan
Forum Leader
Username: Newheart14
Post Number: 1002
Registered: 01-2009
| | Posted on Monday, March 15, 2010 - 06:18 pm: |
|
PS Rick,
Which surgeon did your liver? I had Dr. Paul Greig do my liver and Dr. Robert J. Cusimano did my heart.
Forum Leader
First Combined Heart-Liver Transplant
Performed at Toronto General Hospital, Toronto, Canada
February 14, 2008
Diagnosed with idiopathic dilated cardiomyopathy 1991 and eventual CHF
Most of the immportant things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie |
|
Rick
Member
Username: Rick
Post Number: 5
Registered: 03-2010
| | Posted on Monday, March 15, 2010 - 06:45 pm: |
|
sorry I can't remember his name. I had other things on my mind when I met him. He was a big Australian guy. Very nice
P.S. I did see another Heart / Liver tx recip on hear someware. |
Diane
Forum Leader
Username: Mary_diane
Post Number: 437
Registered: 02-2009
| | Posted on Tuesday, March 16, 2010 - 01:12 am: |
|
Hi Rick,
Welcome to this site from me as well. I also had a liver Transplant in Nov 2008 due to a viral infection. I am so sorry to hear that you have had such a difficult time.
What kind of issues are you having now Rick? I know what it is like when people tell you look great, but you are not feeling that way. Sometimes it's hard to know what to say.
I have found that often if I have a problem or a drug side effect, that someone on this forum has also experienced it and that sharing is really helpful.
Looking forward to getting to know you.
Diane
Liver Transplant Nov 20, 2008
Vancouver General, BC
“Sometimes our light goes out but is blown again into flame by an encounter with another human being. Each of us owes the deepest thanks to those who have rekindled this inner light.”
Albert Schweitzer
|
|
Michelle
Member
Username: Mponto
Post Number: 25
Registered: 02-2009
| | Posted on Thursday, March 25, 2010 - 03:42 pm: |
|
I received a Liver, stomach, pancreas and small bowel December 17th, 2007. My Transplant was done at the University of Alberta Hospital in Edmonton, AB.
Michelle Ponto
Liver, Stomach, Pancreas, Small Bowel, Doedenum Tx - Dec 17, 2007
http://bedpanconfessions.webs.com/
http://www.facebook.com/mgillingham
http://www.new.facebook.com/group.php?gid=46587137778
http://smg.photobucket.com/albums/v482/joiningheartsstudio/michelle-jason%20cruise%20wedding/?albumview=slideshow |
|
lucia fatone
Member
Username: Mariluphato
Post Number: 3
Registered: 03-2010
| | Posted on Friday, April 02, 2010 - 02:39 am: |
|
My boyfriend Rene is awaiting a liver tranplant from either Mt. Sinai in NY or TJUH...Got his first call yesterday, but it the donors liver wasn't going to work after all...We are wating on the next call...
Love and best of luck to all!
Lucia |
Diane
Forum Leader
Username: Mary_diane
Post Number: 488
Registered: 02-2009
| | Posted on Wednesday, April 07, 2010 - 05:00 pm: |
|
That is so disappointing. But the perfect liver for your boyfriend will be right around the corner.
Take care while you are waiting and keep us posted on how things are going.
Diane
Liver Transplant Nov 20, 2008
Vancouver General, BC
“Sometimes our light goes out but is blown again into flame by an encounter with another human being. Each of us owes the deepest thanks to those who have rekindled this inner light.”
Albert Schweitzer
|
|
Hostess Rise'
Forum Leader
Username: Risa
Post Number: 12858
Registered: 05-2003
| | Posted on Wednesday, April 07, 2010 - 07:52 pm: |
|
Hi Lucia
I will keep you both in my thoughts and prayers.
Just want to say how wonderful this thread is coming along.
Thank you Mama Meagan for resizing.
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05 JMH
contact
Transplantbuddies@gmail.com |
|
J'me
Member
Username: Gardentherapist
Post Number: 31
Registered: 12-2009
| | Posted on Saturday, April 10, 2010 - 09:21 pm: |
|
I received a liver transplant on Feb. 8, 2010 at the Cleveland Clinic in Cleveland, Ohio 
J'me
Liver Transplant HCV, HCC
February 2010
Cleveland Clinic, Ohio |
|
Renee
Member
Username: Reneewilliams
Post Number: 22
Registered: 01-2010
| | Posted on Sunday, April 11, 2010 - 10:03 pm: |
|
J'ME WELCOME BACK--WE WERE PRAYING FOR YOU (and very very worried!!!!!!!) (sorry for all caps--I get spastic)
Renee
Liver Transpant, May 23, 1985
Children's Hospital of Pittbsurgh
|
|
lucia fatone
Member
Username: Mariluphato
Post Number: 4
Registered: 03-2010
| | Posted on Thursday, April 15, 2010 - 11:38 pm: |
|
Thanks Rise' and Diane.
I just got back Tuesday from visiting Rene' in NY (I'm in Ca.) -- This is the first time I've seen him since his MELD went up in March...He's pretty swollen from all the edema. He was "tapped' when I was there, and he's about to get drained again tomorrow.. He is listed for liver transplant with two transplant centers (Mt. Sinai) and Thomas Jefferson U.H. in Philadelphia...
On Monday he'll drive with his daughter to Philly to see the folks at that clinic... His MELD with that clinic is at 24, so we're hoping and being very optimistic that another call will come soon---taking it one day at a time--but I have to say this waiting is so trying..!!! (especially when we're 3,000 miles away)
Thanks for all the thoughts!
Lucia |
Hostess Rise'
Board Administrator
Username: Rise
Post Number: 12932
Registered: 05-2003
| | Posted on Thursday, April 22, 2010 - 12:22 pm: |
|
Hi Lucia
Glad to stay in touch. Thank you for the update. I am so happy he has YU.
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05 JMH
contact
Transplantbuddies@gmail.com
Join our Social Network on
www.transplantfriends.com |
|
lori
Member
Username: Liverlori
Post Number: 20
Registered: 04-2010
| | Posted on Monday, May 10, 2010 - 03:41 am: |
|
Hi, I'm Lori and I have Lupus and PBC. I am hoping to go on the transplant list next month and the hospital that will do it will be Toronto General. You all are such an inspiration!
Pre-transplant
Evalutation Toronto Liver Centre June 10/10
PBC/Lupus |
|
jim'n'colorado
Member
Username: Jimncolorado
Post Number: 1
Registered: 05-2010
| | Posted on Friday, May 14, 2010 - 12:23 pm: |
|
I'm Jim and had a liver transplant (Alpha-1 related) at Mayo Clinic, Jacksonville, Florida, September 27, 2007. Went to Korea to teach ESL in an elementary school in July 2008 and just got back to the Denver area March 1, 2010. I'm happy to find this forum and hope to make some friends and offer support. 
|
Hostess Rise'
Board Administrator
Username: Rise
Post Number: 13099
Registered: 05-2003
| | Posted on Friday, May 14, 2010 - 12:50 pm: |
|
Hi Lori and Jim
~Welcome to Transplant Buddies~
Please start a new topic so others can get to know you.
|
Gary
Member
Username: Grser
Post Number: 50
Registered: 01-2010
| | Posted on Wednesday, August 18, 2010 - 02:04 am: |
|
Hi All..
I am waiting for a new liver. I am in Los Angeles (PAsadena) and am listed at Cedars Sinai.
Gary
Pre Liver Transplant |
|
Hostess Rise
Board Administrator
Username: Rise
Post Number: 14063
Registered: 05-2003
| | Posted on Wednesday, August 18, 2010 - 09:52 am: |
|
Hi Gary
Thank you for posting your bio and photo. Keep us updated.
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05
Debra Fertel MD- Med. Dir. Lung Transplant/Pulmonary Hypertension Programs
Jackson Memorial Hospital
Si Pham MD, Professor of Surgery, Dir. of Thoracic Transplant & Artificial Heart Program-Miam Transplant Institute
Anas Hadeh MD, Cleveland Clinic, Weston, Florida
CF consultant- Critical Care and Sleep Medicine
Sharing Knowledge is an Invaluable Experience
Transplant Friends & Chat
Questions- Contact Hostess Rise' |
|
BOBBY
Member
Username: Trackman
Post Number: 11
Registered: 06-2010
| | Posted on Wednesday, August 18, 2010 - 01:57 pm: |
|
I had my transplant on July 25th. Home 6 days later, feeling real good and slowly feeling my energy return. Mayo Clinic, Phoenix, AZ. They have a great transplant team and I feel complete confidence in everything they say.
on the list.
Phoenix Mayo Hospital |
|
Hostess Rise
Board Administrator
Username: Rise
Post Number: 14332
Registered: 05-2003
| | Posted on Wednesday, September 01, 2010 - 03:24 pm: |
|
Thank you everyone for submitting your bio and photo
|
