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Message |
cduval04
Member
Username: Cduval04
Post Number: 1
Registered: 05-2011
| | Posted on Saturday, May 21, 2011 - 10:18 am: | 
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Hello,
My uncle had a meld score of 16 and my bro was going to go down on June 6 and be a live donor, but recently my uncle has developed kidney failure (result of bad liver or diabetes I don't know) now his meld is 33 and he is too sick for live donor & needs a cadaver liver. They said this would put him at high priority on the list.
I was wondering how long do u think he'll have to wait with blood type o and meld of 33? And how long do you think he has to live without a liver? He is the best uncle ever I don't want him to die and I don't want to see my dad see his brother in a casket. Please if you can provide any answers/ personal experience, I would appreciate it.
PS although I am terrified for my uncle, please speak ur mind I hate sugar coating. Thanks |
Bob2006
Member
Username: Delgador
Post Number: 215
Registered: 06-2008
| | Posted on Saturday, May 21, 2011 - 12:03 pm: |
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A MELD of 33 is pretty high and probably will not have a long wait before transplant, it all depends on how many with a MELD of 33 or higher are waiting in your region.
The link below takes to OPTN select his region, organ etc...
http://optn.transplant.hrsa.gov/latestData/stateData.asp?type=region
If you need more help provide TX Center and somebody (or myself) will help get more data.
Bob
Liver TX 7/31/2006 due to HCC
Dr. Jang Moon & Dr. Andreas Tzakis - UM/JMH |
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Frank J.
Forum Leader
Username: Txaggie86
Post Number: 251
Registered: 03-2009
| | Posted on Saturday, May 21, 2011 - 12:19 pm: |
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The wait time is determined by a lot of factors including the MELD score, blood type AND location.
Here are several links that can give you more information.
http://www.livermd.org/waiting.html
http://www.sharecare.com/question/liver-transplant-waiting-list#
If you want for information on how many people are waiting in your uncle's area:
http://optn.transplant.hrsa.gov/latestData/stateData.asp?type=region
Best of luck
Frank Jones
Liver Transplants at Emory University Hospital, Atlanta, GA April 2005 and April 2006.
By cultivating the beautiful we scatter the seeds of heavenly flowers, as by doing good we cultivate those that belong to humanity.
Robert A. Heinlein |
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papillonbleu
Forum Leader
Username: Papillonbleu
Post Number: 1977
Registered: 10-2007
| | Posted on Sunday, May 22, 2011 - 07:50 am: |
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I can not give you any specific data, just my own experience. My doctors did not tell me my MELD number but said I was in a condition to be put high on the list, and I have O positive blood. A liver was one of the organs I got in my six organ transplant (the others being a spleen, pancreas, stomach, small and large intestine), and it was one of the main reasons the idea of a transplant for me had been brought up in the first place. I had two dry runs, but eventually my transplant surgery took place after I had been three months on the wait list. I think some of the doctors thought I might have been too weak for it, but I tried to use the time I had to try and keep myself as strong as possible. I made the pledge to get up and take a walk at least once a day no matter how long or short it was. Some days I was only up for a very short one, but other days I surprised myself. I think it was efforts like this that helped me make it through the surgery and a long recovery. I would encourage your uncle also to try to keep as strong as possible even if it is just in small things as they can make a difference. I hope he may not have to wait much longer for his liver. I am glad that he has you who has such great concern for him. I know it helped me a great deal in the process to have the support of loved ones. I will be sure to keep both you and him in my thoughts and prayers. Many hugs and best of wishes.
Bobbiejo
Forum Leader-Multivisceral
dx: GERD 1995, gastroparesis 2002, pseudo-obstruction of the bowel 2004
multivisceral transplant, 6 organs, 10/06/05
University of Miami/Jackson Memorial Hospital
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health journey
Member
Username: Health_journey
Post Number: 10
Registered: 04-2011
| | Posted on Sunday, May 22, 2011 - 12:22 pm: |
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Hi cduva..... I can only tell you of my own experience in New Jersey. I was in liver failure with a meld in the 20's and reaching 30 at times. I got very sick like your uncle, was in a coma for a few days, then had encephalopathy almost all the time. This happened in July 2009, I spent Aug. testing and was put on the list by Sept. 2009. I received a liver late Oct. 2009 at which time I probably was down to days of life. I have been feeling good since the transplant.
For averages of time you would need to go to the links above. |
surviver
Member
Username: Intlmech
Post Number: 11
Registered: 05-2011
| | Posted on Sunday, May 22, 2011 - 06:46 pm: |
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that is a very high meld score,his blood type is common he will be in my prayers.i have a cadaver liver and been doing fine for 3yrs now,i was incoherant for 2months,they call it encepalis,i was gone to the word,they drilled through my liver to stop fluid build up in my abdoman,making my liver obsolite,went into a coma like state.2 months and a body of bones, and also 54 yrs of age,i got my new liver,god bless him and let him know you'll be there for him.to me my support help kept me going
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