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TransplantBuddies.org Forums » Liver - Multivisceral Transplant » Archive through September 18, 2011 » need help from anyone http://www.transplantbuddies.org/tbx/clipart/sad.gif « Previous Next »
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lori
Member
Username: Liverlori

Post Number: 44
Registered: 04-2010
Posted on Monday, July 25, 2011 - 10:10 pm:   Edit Post Delete Post Print Post

I am pre-transplant and have PBC and lupus. I have had something happen to me three times now and I don't know what it means. I get a feeling like I'm gassy and then I get intense and I mean intense abdominal pain. It goes from my diaphram straight down the middle and sometimes out to the side. It is most intense in the between ribs/diaphram area. The first two times it went away after a few hours and a hot water bottle then it turns into diarhea. This time it lasted all day and I was in so much pain that I almost went to the hospital. It felt like someone was grabbing my insides and twisting them apart. AT first it helped to lay on my stomach but after awhile that and the hot water bottle didn't help. I was in agony! Now my abdomen feels tender but the big pain is gone. I had diarhea and that stopped now. Could this be a bowel problem or could it be associated with my liver? Has anyone experienced this before?

Thanks, Lori
Pre-transplant
Toronto Liver Centre
Dr. Gideon Hirschfield
PBC/Lupus
Joe Berry
Forum Leader
Username: Joe910

Post Number: 284
Registered: 08-2008
Posted on Tuesday, July 26, 2011 - 06:37 am:   Edit Post Delete Post Print Post

I have had similar pain. I am a liver transplant for PSC. I also have ulcerative colitis. If you still have you gall bladder that could be giving you the pain. Clogged bile ducts or an infection of the bile ducts (cholangitis) could cause the pain. Both of these require a physician's intervention.

Regardless of the pain, you need to see a doctor. I urge you to see a doctor now.
Joe Berry, Peoria, IL USA
Forum Leader
Diagnosed with PSC and UC in 1990
Liver Transplant 10-17-2007
Northwestern Memorial, Chicago, IL
Joe Berry's Helpful Healthcare Hints
blog on TransplantBuddies
lori
Member
Username: Liverlori

Post Number: 45
Registered: 04-2010
Posted on Tuesday, July 26, 2011 - 02:00 pm:   Edit Post Delete Post Print Post

Thank you Joe, I will check it out!
Pre-transplant
Toronto Liver Centre
Dr. Gideon Hirschfield
PBC/Lupus
lori
Member
Username: Liverlori

Post Number: 46
Registered: 04-2010
Posted on Wednesday, July 27, 2011 - 08:31 pm:   Edit Post Delete Post Print Post

Well I contacted my specialist and he says that what is happening to me is not associated with my liver disease. He thinks its irritable bowel syndrome?? Oh well, I'll check it out locally here with my family doc.
Pre-transplant
Toronto Liver Centre
Dr. Gideon Hirschfield
PBC/Lupus
papillonbleu
Forum Leader
Username: Papillonbleu

Post Number: 2056
Registered: 10-2007
Posted on Friday, July 29, 2011 - 01:37 pm:   Edit Post Delete Post Print Post

What you are describing sounds somewhat similar to what I experience sometimes if I am having bowel trouble although my symptoms do not last so long. I hope that your family doctor is able to help or perhaps direct you to a specialist who can. May you soon get some answers and relief. I will keep you in my thoughts and prayers. Many hugs.
Bobbiejo
Forum Leader-Multivisceral
dx: GERD 1995, gastroparesis 2002, pseudo-obstruction of the bowel 2004
multivisceral transplant, 6 organs, 10/06/05
University of Miami/Jackson Memorial Hospital

lori
Member
Username: Liverlori

Post Number: 47
Registered: 04-2010
Posted on Sunday, July 31, 2011 - 01:54 pm:   Edit Post Delete Post Print Post

Thankyou for your thoughts and prayers. I haven't had an episode in the last week but I do see my family doctor soon so hopefully he will run some tests.

Lori
Pre-transplant
Toronto Liver Centre
Dr. Gideon Hirschfield
PBC/Lupus

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