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Stanley
Member
Username: Stanley33572

Post Number: 6
Registered: 10-2011
Posted on Tuesday, December 06, 2011 - 11:30 am:   Edit Post Delete Post Print Post

My wife is 4 months post Liver transplant and is having severe difficulty remembering things. Her short term memory is very poor and her long term memory is slightly clouded. Prior to the transplant she had some Hepatic encephalopathy with higher levels of ammonia on the brain. Since the transplant it has gotten worse. Has anyone dealt with this problem? Could it be medication induced? She has been asked to see a Nuerologist. Probably will wait until some of her medications are reduced. Thanks for any advice you can give.
health journey
Member
Username: Health_journey

Post Number: 43
Registered: 04-2011
Posted on Tuesday, December 06, 2011 - 07:14 pm:   Edit Post Delete Post Print Post

.
I, too, had the encephalopathy brain fog before transplant. Mine went away the day I got the new liver two years ago. Does she still have the high amonia and encephalopathy. The transplant team should be able to address that. Or maybe someone here has had a similar experience.

Hope she gets better with time. Everyone heals differently.
Liver Transplant 10/25/2009
UMDNJ
Joe Berry
Forum Leader
Username: Joe910

Post Number: 312
Registered: 08-2008
Posted on Monday, December 12, 2011 - 09:25 pm:   Edit Post Delete Post Print Post

I had minor memory problems pre-transplant. Post-transplant they become more severe. I felt that it was due to the fatigue I had. Around 15 months everything went back to normal. I am now 4+ years and am back to my old self - working 12 hour days.

I talked this over with my hepatologist. He also thought it was related to the fatigue which isn't unusual. I recommend you talk to your doctor.
Joe Berry, Peoria, IL USA
Forum Leader
Diagnosed with PSC and UC in 1990
Liver Transplant 10-17-2007
Northwestern Memorial, Chicago, IL
Joe Berry's Helpful Healthcare Hints
blog on TransplantBuddies
Diane L.
Member
Username: Diane_l

Post Number: 2
Registered: 12-2011
Posted on Tuesday, December 13, 2011 - 10:44 am:   Edit Post Delete Post Print Post

Hi Stan,

I have had memory problems as well since my surgery. Not all of the time though. I have been having side effects from the Prograf, with very bad headaches which are constant. When they are at their worst, I definitely have problems in that area.
My meds are currently being tweaked.
Perhaps the pharmacist on your wife's team could take a look at what she is on, and also her blood work results to see if her medications are playing a role.
Diane Lewis
Liver Transplant
Vancouver General Hospital
November 20, 2008
Mohan
Forum Leader
Username: Mraghavan

Post Number: 223
Registered: 12-2009
Posted on Wednesday, December 14, 2011 - 11:09 am:   Edit Post Delete Post Print Post

I still do have some occasional memory problems, but my docs are are also thinking that it is due to stress and fatigue. I think we have to keep in mind that we are post-transplant patients, so we have our limitations.

I sometimes find it amazing how active some of you are living. I have slowed down a lot, probably because of the major surgery and of course, age.
Mohan
Liver Transplant 04/18/2009
University of Colorado Hospital
"...seek a sense of the miraculous in everyday life...

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