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Message |
babeshmeb
Member
Username: Babeshmeb
Post Number: 8
Registered: 02-2012
| | Posted on Wednesday, March 28, 2012 - 03:11 pm: | 
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Is the reference range of Tacrolimus supposed to be 4.0-12.0? What are other peoples trough levels? Do people get more infections now that they are on Anti-rejection drugs. Has anyone has had any rejection episodes? What are the doses of anti-rejection drugs people are on. |
Frank J.
Forum Leader
Username: Txaggie86
Post Number: 286
Registered: 03-2009
| | Posted on Wednesday, March 28, 2012 - 03:44 pm: |
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My understanding of the Tacrolimus level is that the level will be high after the transplant and be tapered off after a few years. My current level is around 5.
As for infections, I had a few for 2-3 years after the transplant and none after 4 years.
Frank Jones
Liver Transplants at Emory University Hospital, Atlanta, GA April 2005 and April 2006.
Do the right thing. It will gratify some people and astonish the rest. - Mark Twain |
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BOBBY
Member
Username: Trackman
Post Number: 41
Registered: 06-2010
| | Posted on Wednesday, March 28, 2012 - 05:51 pm: |
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At 8 months I came down with what is called called Valley fever. Really knocked me for a loop. As it is a chronic condition I have another pill to take for life. Other than that I hven't even had a cold.
Tac level is between 4 and 6 after 18 months.
on the list. Mar, 2010. Liver cancer
Phoenix Mayo Hospital
Liver Transplant July 26, 2010 |
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Bob2006
Member
Username: Delgador
Post Number: 243
Registered: 06-2008
| | Posted on Wednesday, March 28, 2012 - 06:42 pm: |
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Your Drs will adjust Tacrolimus dosage as needed to achieve the level they think you should have, every one is different. After almost 6 years post I am on 1.5 mg of Tacrolimus and that maintains the Tacro level between 1.8 and 3.
I have a fever and shakes every once in a while due to (they think) narrowed bile duct, I take Ursodiol for that and it works pretty good. Also it is important to drink a lot of water ( in my case 1 gal) if your Drs have indicated to do so.
Liver TX 7/31/2006 due to HCC
Dr. Jang Moon & Dr. Andreas Tzakis - UM/JMH |
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papillonbleu
Forum Leader
Username: Papillonbleu
Post Number: 2188
Registered: 10-2007
| | Posted on Thursday, March 29, 2012 - 07:29 am: |
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I did develop shingles once after my transplant. The only other infections that I have that I can definitely connect with the transplant was a continuing problem of developing candidiasis of the esophagus, but this has now been brought under control by taking Nystatin twice daily. I have only had a few very minor rejection episodes. I consider myself very fortunate in this.
Bobbiejo
Forum Leader-Multivisceral
dx: GERD 1995, gastroparesis 2002, pseudo-obstruction of the bowel 2004
multivisceral transplant, 6 organs, 10/06/05
University of Miami/Jackson Memorial Hospital
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Terri
Member
Username: Terri
Post Number: 258
Registered: 09-2007
| | Posted on Tuesday, April 03, 2012 - 09:12 am: |
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I have no idea what my level is supposed to be...it was 9.4 in January and then 6.6 last month. I've been taking it since last June and they've had to adjust the dose a few times...too low, liver isn't happy, too high and kidneys dont like it.
Terri Lynne - 20 Year Liver Transplant Survivor
"Whatever doesn't kill me had better start running!"
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Bob2006
Member
Username: Delgador
Post Number: 244
Registered: 06-2008
| | Posted on Tuesday, April 03, 2012 - 10:35 am: |
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Here is a link to Tacrolimus info.:
http://www.thedrugmonitor.com/tacro.html
As usual remember that the anything can be entered into a web page. Check the info against other medical sites. This information agrees with the info I have received from my Drs.
Always follow your Drs advice. Know your meds., the more you know about your meds and condition the better you can manage your health.
Bob
Liver TX 7/31/2006 due to HCC
Dr. Jang Moon & Dr. Andreas Tzakis - UM/JMH |
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ono
Member
Username: Ono
Post Number: 163
Registered: 06-2009
| | Posted on Thursday, April 05, 2012 - 12:57 pm: |
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I think Dave gave good advice.
At two years post tp, taking .5 mg prograf twice daily, my trough level was 2-5.
Prograf is my only IS and I've had no rejection episodes.
Having just finished hep C tx successfully, my 3 year anniversary of my tp, is just around the corner and life is good ! |
Mohan
Forum Leader
Username: Mraghavan
Post Number: 234
Registered: 12-2009
| | Posted on Thursday, April 05, 2012 - 07:59 pm: |
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I would concur with everyone else. Prograf has limited side effects, and really they are nothing compared to the alternative. Stick with the program, and don't ever adjust any of your medications by yourself.
Mohan
Liver Transplant 04/18/2009
University of Colorado Hospital
"...seek a sense of the miraculous in everyday life... |
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