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TransplantBuddies.org Forums » Liver - Multivisceral » Feeling lost « Previous Next »
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Mohan
Forum Leader
Username: Mraghavan

Post Number: 238
Registered: 12-2009
Posted on Saturday, June 23, 2012 - 07:25 pm:   Edit Post Delete Post Print Post

It has been three years since my transplant, and I am dealing with my 4th bout of pneumonia, my second bout of pseudomonas pneumonia. I am being treated with infusions of 2g of Sefapeme, twice a day. This has been going on, with only a brief break, for 5 weeks. Needless to say, the weakness from the antibiotic, combined with the pleural pain in my chest and back, is making me feel a little helpless.

Adding to it is the fact that for the first time since my transplant, my full-time caregiver, best friend, and wife of 20 years is also ill. She is to undergo a major dental surgery on Monday, and will have to be taken care of for the next few weeks.

Thankfully, her mom is flying in to be there for both of us. But, I have to admit being scared to take on the caregiver role.

Has anyone else feel scared when you caregiver could not care for you they way that he/she always has, or when you know that you are going to have to be the strong shoulders for awhile? If so, how did you do it?
Mohan
Liver Transplant 04/18/2009
University of Colorado Hospital
"...seek a sense of the miraculous in everyday life...
Twinks68
Member
Username: Twinks68

Post Number: 16
Registered: 06-2012
Posted on Monday, June 25, 2012 - 05:54 pm:   Edit Post Delete Post Print Post

Hi my husband has just been signed off work with depression and anxiety, he has been looking after me for the last two years and now he is in need it's hard whilst I am still ill so I can sympathise with your position. Having her mum handy is great and I'm sure in the circumstances she will take most of the strain it doesn't stop you wanting to be there for her though. I've found that being a good listener really helps, I can't do much practically but it does seem to be appreciated, just little things anything to show you are thinking of her will help. I hope you both recover soon, normality is a wonderful thing and we will return there eventually.
Awaiting transplant since Oct 2011

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