| Author |
Message |
Rita
Forum Leader
Username: Rita
Post Number: 776
Registered: 06-2003
| | Posted on Wednesday, October 12, 2011 - 10:01 am: | 
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Tomorrow I go to the see my kidney doctor because my creation went up to 3 and I am amemic as well along with other levels that arent that good. So just putting this out there because I am one of those people that believes prayer can help. Thank you. Wishing you all the best.
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Cora
Member
Username: Cora
Post Number: 386
Registered: 06-2007
| | Posted on Wednesday, October 12, 2011 - 10:19 am: |
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I'll be thinking of you tomorrow and sending all my positive energy your way. Best of luck!
Cora
Dx with T1 in 1966
Kidney tx in Minneapolis 2002
Pancreas tx in 2008 |
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ivan
Member
Username: Wisdom
Post Number: 493
Registered: 10-2010
| | Posted on Wednesday, October 12, 2011 - 12:02 pm: |
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you have my best wishes. |
CiscoKidney07
Forum Leader
Username: Gregg
Post Number: 5006
Registered: 03-2008
| | Posted on Wednesday, October 12, 2011 - 02:11 pm: |
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I hope and pray the best for you.
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Kimmy06
Member
Username: Kimmy06
Post Number: 74
Registered: 12-2010
| | Posted on Wednesday, October 12, 2011 - 04:02 pm: |
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Rita...I am sending prayers and good thoughts your way.
Kidney/Pancreas Transplant 10/2010
St Barnabas Medical Center, Livingston, NJ
Type 1 Diabetes over 30 years |
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cruizin
Member
Username: Cruizin
Post Number: 193
Registered: 09-2010
| | Posted on Wednesday, October 12, 2011 - 05:39 pm: |
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I'm praying for your precious gift Rita.
Received kidney Mar 16, 2011, from my brother! 3/6 match
St. Joe's, Hamilton, ON
Peritoneal dialysis Nov '08 - Mar '11
Dx 1995 - believed to be chronic glomerulonephritis
Started CAPD Oct 2008 |
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John M
Member
Username: Jam1107
Post Number: 144
Registered: 12-2006
| | Posted on Wednesday, October 12, 2011 - 07:14 pm: |
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Rita,
I will certainly keep you in my good thoughts and prayers.
Wishing you the best,
John
Pancreas alone transplant 4/13/04; rejected 2/07; removed 5/31/07.
Second pancreas transplant received 11/11/08.
NY Presbyterian/Cornell Medical Center, NY |
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stellatransplant
Member
Username: Stellatransplant
Post Number: 11
Registered: 04-2011
| | Posted on Wednesday, October 12, 2011 - 07:16 pm: |
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pray for you.
stella |
still alive
Member
Username: Carl
Post Number: 57
Registered: 01-2011
| | Posted on Wednesday, October 12, 2011 - 08:47 pm: |
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Sending positive vibes across the sea ... Hope your kidney just partied bit too hard and will get back into form soon |
LadyDi
Forum Leader
Username: Ladydi
Post Number: 2701
Registered: 03-2008
| | Posted on Wednesday, October 12, 2011 - 08:57 pm: |
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Adding my prayers to the others. Good luck to you Rita!
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Robin
Forum Leader
Username: Mamaru
Post Number: 737
Registered: 06-2008
| | Posted on Wednesday, October 12, 2011 - 11:42 pm: |
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Rita, you have mine too!
Forum Leader - Living Organ Donation
Husband had a Bone Marrow Transplant 09/08/1993. Diagnosed with CML that went into a blast crisis and became ALL.
Donated a kidney to husband 6/26/2008
Husband and both kids have PKD
I WANT TO BE REMEMBERED FOR THE LIFE I GAVE AS WELL AS THE LIFE I LIVED
I found this on a website and its so true
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CiscoKidney07
Forum Leader
Username: Gregg
Post Number: 5008
Registered: 03-2008
| | Posted on Thursday, October 13, 2011 - 07:13 am: |
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Good luck today, Rita. Hope you come back with good news!
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Alaskagal
Member
Username: Cheathers
Post Number: 28
Registered: 06-2011
| | Posted on Thursday, October 13, 2011 - 05:37 pm: |
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Hi Rita, add me to the prayers, hugs and best wishes. I just got back from 4 hours of testing as well. The usual weekly labs redone today, as well as an ultrasound on a full bladder, that took about an hour, and waiting on a kit from Seattle for a donor specific antigen test. My creatinine went up as well.
Please don't let fear or worry steal your peace, and know that if you let it, it also will steal your ability to be alert to make good decisions. Blessings, stay strong, know you have all of us with you!
Heather
| Kidney tx Aug. 23, 2011 Seattle Swedish Hospital. |
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Jason
Member
Username: Jason
Post Number: 139
Registered: 02-2010
| | Posted on Thursday, October 13, 2011 - 06:20 pm: |
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Rita,
I hope your test results turned out well today.
Jason |
Anna Romero
Member
Username: Annalucia
Post Number: 20
Registered: 06-2011
| | Posted on Friday, October 14, 2011 - 02:25 am: |
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Rita,
Thinking of you and saying a prayer that things will come out well.
Stay strong,
Anna
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Marina
Member
Username: Marina
Post Number: 213
Registered: 08-2009
| | Posted on Friday, October 14, 2011 - 09:46 am: |
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Rita,
Sending lots or prayers and a healing light your way!!!!
((((((((((((((hugs)))))))))))))))))
Nov 9, 2010 Kidney and Pancreas TX @ California Pacific Medical center CPMC San Francisco, CA . What a blessing!!!!
Thank you Mary for donating your precious daughter Laura's organs.
I will FOREVER be G R A T E F U L
BELIEVE!!!!!!!!!! |
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jamie
Member
Username: Jamie
Post Number: 49
Registered: 01-2008
| | Posted on Friday, October 14, 2011 - 12:10 pm: |
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I hope everything went okay, all the best. |
Rita
Forum Leader
Username: Rita
Post Number: 777
Registered: 06-2003
| | Posted on Friday, October 14, 2011 - 01:30 pm: |
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Hello Everyone, Thank you for all of your prayers and support. So after a day of being upset I am ready to be my old self again. So I am looking at everything with a thankful heart and blessed to have so many caring people I love in my life. I am in kidney failure, I need to go for EPO shots because I have anemia, provided I do not have a GI bleed. My creation number is 3.07 my Bun is 89 and my GFR is 16. So the doctor told me to sign up for pre-transplant, and that this kidney may have a year left before I have to go on dialysis. Not the best news, however I was on this road before, I have inner strength and wonderful people like my family and friends in my life and all of you here. So am I extreamly blessed! Hard to be in the dumps when you have been given so much in life. I am sure I will have my boo hoo for me days but that usually doesn't last too long based upon my past of who I am. I am going to go on short term disability for work for now and see how it goes. My working with children is a big part of who I am and how I feel about myself, however I do not want the children and parents to be effected by my health so I did call work yesterday and talk to my boss who is the best and short term disability is the way that would be best for all so they could get a teacher in my class. So I feel better that they will be taken care of, --one life touches many-- and I love those children dearly! I could use help out there is anyone knows anything about SS for disability. Thanks. From what I hear you cant get it till you are actually on dialysis.I was just looking for information. Thanks. Thank you all for your support. It is so nice that we all have each other. Thank you all for your kind and loving hears.. Wishing you all the best. Rita
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CiscoKidney07
Forum Leader
Username: Gregg
Post Number: 5010
Registered: 03-2008
| | Posted on Friday, October 14, 2011 - 02:52 pm: |
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Not as good as I would have like to have heard, but I guess it is what it is.
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Meagan
Forum Leader
Username: Newheart14
Post Number: 1966
Registered: 01-2009
| | Posted on Friday, October 14, 2011 - 02:58 pm: |
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Hi Rita,
So sorry to hear this news. How sweet you are for always thinking of other people and the little people you care for.
I'm wishing you all the best and will keep you in my prayers. Remember our special angel.
Love, Meagan
Heart-Liver Transplant - February 14, 2008
TGH, Toronto
Cardiomyopathy 1991/CHF
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Alaskagal
Member
Username: Cheathers
Post Number: 29
Registered: 06-2011
| | Posted on Friday, October 14, 2011 - 06:01 pm: |
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My gosh, you are amazing!!! What an inspiration you are!!!!!! I am really speechless. Whew.
I wish I could say more, and give advice, but I am so encouraged by your attitude, and handle on reality. Blessing to you dear one!!!!
Love
Heather
| Kidney tx Aug. 23, 2011 Seattle Swedish Hospital. |
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John M
Member
Username: Jam1107
Post Number: 146
Registered: 12-2006
| | Posted on Saturday, October 15, 2011 - 10:41 am: |
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Rita,
I admire your courage and spirit. Be well -- I wish you all the best.
I will continue to keep you in my prayers. Please keep us informed.
John
Pancreas alone transplant 4/13/04; rejected 2/07; removed 5/31/07.
Second pancreas transplant received 11/11/08.
NY Presbyterian/Cornell Medical Center, NY |
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Kimmy06
Member
Username: Kimmy06
Post Number: 78
Registered: 12-2010
| | Posted on Saturday, October 15, 2011 - 05:51 pm: |
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Rita...stay strong. Your outlook inspires me, and I admire you and your courage. I will keep the prayers and good thoughts coming your way. You should qualify for SSD if your creatnine is a certain number for 3 months....I forgot exactly what the number has to be, but you will continue to be eligible for SSD while you are on dialysis, and from what I understand, up to a year after transplant if you need. Just check the Social Security website for specifics for kidney failure.
Love you!!
Kim
Kidney/Pancreas Transplant 10/2010
St Barnabas Medical Center, Livingston, NJ
Type 1 Diabetes over 30 years |
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LadyDi
Forum Leader
Username: Ladydi
Post Number: 2704
Registered: 03-2008
| | Posted on Saturday, October 15, 2011 - 07:01 pm: |
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Your strength is amazing Rita! Hang in there and know that we are all with you.
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BD
Member
Username: Bd1
Post Number: 93
Registered: 03-2009
| | Posted on Sunday, October 16, 2011 - 06:37 pm: |
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OMG So sorry rita 
Stay strong |
miocean
Member
Username: Miocean
Post Number: 125
Registered: 07-2010
| | Posted on Monday, October 17, 2011 - 09:51 pm: |
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Rita,
Here is a link to SSD
http://ssa.gov/disability/professionals/bluebook/listing-impairments.htm
I can't help with when you qualify since my kidneys failed suddenly. I do remember it took several months to kick in. I was a teacher and used my sick leave for several months and it just happened that SSD started the same time my sick leave ran out. I was so sick I don't remember all the details.
I am so sorry that you have to deal with this but am inspired by your strength and courage. We all have been given a gift and always hope it will remain forever.
miocean
Diffuse Scleroderma
Kidney Transplant March 11, 2010
St. Barnabas Medical Center, Livingston, NJ |
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miocean
Member
Username: Miocean
Post Number: 126
Registered: 07-2010
| | Posted on Monday, October 17, 2011 - 10:02 pm: |
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Hi Rita, it's miocean again. Here is the specific link for SSD renal failure
http://www.ssa.gov/disability/professionals/bluebook/6.00-Genito-Urinary-Adult.htm
miocean
Diffuse Scleroderma
Kidney Transplant March 11, 2010
St. Barnabas Medical Center, Livingston, NJ |
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Duane
Member
Username: Duane
Post Number: 2
Registered: 10-2011
| | Posted on Tuesday, October 25, 2011 - 05:39 pm: |
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Hi Rita
I just came across your post when searching for something on medication. I am on my second Kidney transplant and because of that I really do understand what you are going through. i am so sorry to hear about whats going on with you. I will most certainly be praying for you. If it is alright with you, I would like to post your prayer request on Facebook at "All Prayer. Everywhere!" (I administer this page) I do not use any last names.
Anyway I wanted to say hi and my wife and I will be praying for you and praying earnestly for you in all things even if you do not want anything posted.
All the best!
Duane |
Duane
Member
Username: Duane
Post Number: 3
Registered: 10-2011
| | Posted on Tuesday, October 25, 2011 - 05:41 pm: |
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Hi Rita,
I just came across your post when searching for something on medication. I am on my second Kidney transplant and because of that I really do understand what you are going through. i am so sorry to hear about whats going on with you. I will most certainly be praying for you. If it is alright with you, I would like to post your prayer request on Facebook at "All Prayer. Everywhere!" (I administer this page) I do not use any last names.
Anyway I wanted to say hi and my wife and I will be praying for you and praying earnestly for you in all things even if you do not want anything posted.
All the best!
Duane |
Rita
Forum Leader
Username: Rita
Post Number: 788
Registered: 06-2003
| | Posted on Wednesday, October 26, 2011 - 07:01 am: |
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Thank you all for all your support. Duane, yes I am always open to prayer, how loving of you. Today I am going down to Social Security, Miocean I did call social security and I have to tell you the were more than kind. This has been my third in person interaction with them since 1992 and they always have been so nice. I am not a glass half empty type of person, but somewhere in my mind I always expect them to be less than compassionate with me, which they have never given me a reason to think that way. With me it is a whole mental thing, I guess to be a giver and not a taker, even though many say Rita you have a right to ask in for this, given your situation. To me it is amazing at 55, a grown women, you still have your parents in your head--as if I was a child, "stand on your own 2 feet, do not take from others, be independent". It is all about the growing process, letting go or changing ones thinking even when you are 55. So I am looking at this as I am growing because I am over coming another Script that I have given myself to live within my comfort zone in my own head and expanding me and my thinking. Thanks for letting me babble. Wishing you the best.
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