| Author |
Message |
keith elliott
Member
Username: Keith_elliott
Post Number: 199
Registered: 11-2010
| | Posted on Tuesday, December 20, 2011 - 12:53 pm: | 
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Anyone had any experience post renal transplant of dealing with crohn's disease ? I'm currently suspected to have it (to be confirmed) and it appears that .. apart from the discomfort... I seem not to be absorbing my azathioprine properly.
Seems that increasing pred and reducing tacro may be the way forward for me but all a bit unclear.
Just wondered if anyone else had any experiences with crohn's that they could share ..
take care
Keith |
keith elliott
Member
Username: Keith_elliott
Post Number: 200
Registered: 11-2010
| | Posted on Saturday, December 24, 2011 - 04:56 am: |
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ah .... not Crohn's .. just IBS ('just') due to intolerance of stabilising agents within the new tacro formulation. Ah well - I guess it could be worse!
tc
Keith |
LadyDi
Forum Leader
Username: Ladydi
Post Number: 2735
Registered: 03-2008
| | Posted on Saturday, December 24, 2011 - 09:02 am: |
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Good news Keith - don't have Crohns but have known people who do and it's not fun.
I have lactose intolerance which creates very uncomfortable symptoms and cramps if I don't remember to take lactase enzyme tablets with any milk product.
Hope they have a solution to your problem, and you are doing better.
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keith elliott
Member
Username: Keith_elliott
Post Number: 201
Registered: 11-2010
| | Posted on Sunday, December 25, 2011 - 08:04 am: |
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Exactly that Lady Di .. though in the UK the NHS doesnt provide a treatment. Can I ask which lactose enzyme tablets you take (and whether your neph / family doc is ok with the idea ?).
many thanks and Happy Christmas
tc
Keith |
CiscoKidney07
Forum Leader
Username: Gregg
Post Number: 5200
Registered: 03-2008
| | Posted on Sunday, December 25, 2011 - 06:26 pm: |
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Actually, keith, she either takes lactaid or one of the other OTC remedies. As long as she is careful about the amounts of dairy she eats, it will work. However, I do know that there some dairy that is harder to combat the lactose that is in them. I am supposing that there is more lactose in some things than others..
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LadyDi
Forum Leader
Username: Ladydi
Post Number: 2738
Registered: 03-2008
| | Posted on Sunday, December 25, 2011 - 06:38 pm: |
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I did approve the lactase tablets. Here in the US we can get the over the counter, as Cisco said, either as a brand name - Lactaid - or in a generic type form just described at lactase enzyme tablets.
They work great!
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Hostess Rise'
Board Administrator
Username: Rise
Post Number: 16987
Registered: 05-2003
| | Posted on Sunday, December 25, 2011 - 06:51 pm: |
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For Crohns- have you tried a gluten free diet?
I do not have crohns nor did my blood test reveal an allergy to gluten-
after trying a gluten free diet for a few months, I absorb my foods and can eat foods that I could not before. CF is my underlying condition.
It is worth a try. I am hooked now and will not go back to eating foods that have gluten in them.
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keith elliott
Member
Username: Keith_elliott
Post Number: 202
Registered: 11-2010
| | Posted on Monday, December 26, 2011 - 08:02 am: |
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I'm definitely coeliac so I try to avoid gluten anyway (as much as reasonably poss) .. and interestingly I have one cf gene (so not full cf but some characteristics).
I didnt realise I was lactose intolerant though and so knowing that will help a fair bit... just annoying/disappointing that the lactose in the stabiliser in adoport is so much tougher on me than in the prograf (different formulation .. both use lactose monohydrate .. but bound together in different ways)
OTC lactose enzyme sounds like the way forward for me. I'll email my neph after the holidays to see what he says.
thanks indeed for the help / guidance!
happy holidays all
tc
Keith |
