Post Number: 69
|Posted on Sunday, April 15, 2012 - 10:56 am: ||
well recently i can sleep for 13 hours get up and have to go back to bed after being awake for 4 hours....not sure really what to do anymore..i will be back to work tomorrow i can forsee that lasting about a day or tow before i have to phone in sick.
Am just tired of Drs not listening to me when i tell them how tired i am.
Post Number: 249
|Posted on Monday, April 16, 2012 - 04:02 am: ||
It might be that the docs don't know what to do to help tbh.
I was told a story fairly early on about my then neph at Exeter and his cycling friend. His friend was always better at him at cycling, quicker times etc, until about 5 years after tx when his times started to reduce. My neph explained that it was only then (when he could beat his friend easily) and in the following years that he really started to understand the way it goes for us in terms of reduced stamina over time and the toll that the drugs take from us.
My renal psychologist told me to take afternoon naps when I could and to read about spoon theory :
I'm only at 8 years but I now can't play two rounds of golf in a day ..whereas immediately post tx I could easily. Now I get pretty tired after about 12 holes.
My guess is that reduced stamina is just the way it goes for us all over time. Maybe some folks are luckier than others and maybe there is stuff we can do that helps ... but if there is I'd love to know too!
sorry .. not much help really.
Post Number: 70
|Posted on Monday, April 16, 2012 - 12:30 pm: ||
i agree with pretty much everything you have said keith only four years ago i was walking 3 hours a time over the hills, and going to the pub with friends now i am a pretty pathetic shadow of my former self.....my grandad runs circles around me he is 85.
from talking to some of the transplant nurses this seems pretty much the normal state of a transplantee this far out i am glad i partied hard after my transplant otherwise i would have felt pretty much cheated by life whereas i had a fabulous life and great group of compadres during my 20's and early 30's no regrets in that department.
Now it is an effort going to the shops and getting out of bed...i have asked the nephs to do something but there seems to be no answer.
to be honest i am thinking maybe i should just switch to sirolimus to stop the gout and then not have to take the allopurinol?
Post Number: 124
|Posted on Monday, April 16, 2012 - 04:26 pm: ||
You have to rebuild your stamnia. I would get winded after walking a min in beginning. But I kept pushing on and on. Keep exercising and keep at it. Best of luck.
What medications are you taking to making you nap so much?
|Kidney Transplant 3/08, 21 yrs old |
Post Number: 283
|Posted on Tuesday, April 24, 2012 - 10:20 pm: ||
I seem to have less stamina than I used to have too. Not sure if it is because of my two kidney transplants or because I am going to turn 40 in a few months. I paddled my sea kayak about 12 miles the other day though.
Post Number: 1
|Posted on Wednesday, May 08, 2013 - 11:52 pm: ||
But as a person grows older, and specially after 40, they start losing their stamina day by day.
Post Number: 10
|Posted on Thursday, May 09, 2013 - 08:53 am: ||
I have to kindly disagree with Rico Leech, I m 52 years old I received a kidney transplant on July 5, 2010 i Feel great, feel like 25 years old i exercise daily,
I believe transplant patients must slowly build there stamina back up,
there is Nothing holding US back but our old beliefs about what we can do
God bless everyone.
Post Number: 316
|Posted on Saturday, May 11, 2013 - 09:41 am: ||
Encouraging post Vince!
If I happen to be alive at 52, I hope I'll be able to say the same thing!
|Received kidney Mar 16, 2011, from my brother! 3/6 match |
St. Joe's, Hamilton, ON
Peritoneal dialysis Nov '08 - Mar '11
Dx 1995 - believed to be chronic glomerulonephritis
Started CAPD Oct 2008