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TransplantBuddies.org Forums » Kidney - Pancreas Transplant » Possible reason for low Tacro level... L-lysine « Previous Next »
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Alaskagal
Member
Username: Cheathers

Post Number: 176
Registered: 06-2011
Posted on Friday, January 31, 2014 - 02:48 pm:   Edit Post Delete Post Print Post

So my last visit to the nephrologist looked pretty good. Creatine good, WBC finally up out of the gutter to a 3.1. But my tacro level was down to 4.9 which is lower than my doctor would like to see. I had been battling with herpes in my mouth and nose, so figured that was the best thing to stop it, which I had been taking a large dose every day.

So, I just started searching for drug interactions, and thus far I found this: http://www.ehealthme.com/ds/l-lysine/immunosuppressant+drug+level+decreased

Dang....

Maybe I will take it more like a week on, week off... or something like that. You know, there really are a lot of things that the medical doctors don't know about, and it helps to do your research.. so thought I would share.
Kidney tx Aug. 23, 2011 Seattle Swedish Hospital.
Hostess Risé
Board Administrator
Username: Rise

Post Number: 17994
Registered: 05-2003


Posted on Friday, January 31, 2014 - 04:52 pm:   Edit Post Delete Post Print Post

Thank you Alaska gal for sharing this very important information.
I am starting to believe that many foods, vitamins do interact with our drugs.

I am big believer in muscle testing and I have always tested weak for L-Lysine. Weak meaning not a strong hold.

A doctor was on Dr. Oz yesterday showing us how to muscle test.

I muscle test (aka energy test) my drugs against the foods that I am in question of. I actually hold the food and drug in one hand while my husband tests via my arm to see if I can hold my arm close to my body.
This test is called the spleen pancreas indicator test. If my arm pulls away without effort then I am weak. If he cannot pull my arm way that means I am strong to the object(s) I am testing.

I test slightly weak when I hold a garlic clove and Prograf. I always test slightly weak to some oils that I have been taking. What I am learning is that it does not mean that weak is bad for me. I believe it could mean that I was taking in too much oil. On another day, I could test very strong when holding the drug and oils.

Everything is a balancing act.
CF- dx at 2yrs. 2nd double lung tx-05 JMH
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Hostess Risé
Board Administrator
Username: Rise

Post Number: 17995
Registered: 05-2003


Posted on Friday, January 31, 2014 - 05:01 pm:   Edit Post Delete Post Print Post

I found this regarding muscle test
http://www.doctoroz.com/videos/muscle-testing-technique-instructions

I was able to tell my doctor that Rapamune was not good for me via muscle testing.

The only book that I know of that teaches muscle testing the way I practice it, is called, "Energy Medicine" by Donna Eden.

To best describe muscle testing- it is like having my own body compass that also tells me how much I can take as well as if what I am testing is good for me.

I test strong to all my drugs.
CF- dx at 2yrs. 2nd double lung tx-05 JMH
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Alaskagal
Member
Username: Cheathers

Post Number: 177
Registered: 06-2011
Posted on Friday, January 31, 2014 - 05:02 pm:   Edit Post Delete Post Print Post

Yes it is a balancing act. I used to do muscle testing, and had an alternative MD who did it, but kind of felt like I had to toss it all when I went into kidney failure.... but now I am gaining confidence in who to search these things out. It isn't "black or white" and we are each different. But it is cautious. I have to re-learn that. So, when you test "against" a drug, how do you do that so that you don't lose the effectiveness of the drug, but gain the benefit of the food?

You see, the only thing that I know of to keep the herpes down, without additional side effects from anti-fungals, has been L-lysine, and it works!

THANKS!
Kidney tx Aug. 23, 2011 Seattle Swedish Hospital.
Hostess Risé
Board Administrator
Username: Rise

Post Number: 17996
Registered: 05-2003


Posted on Friday, January 31, 2014 - 05:32 pm:   Edit Post Delete Post Print Post

Hi Alaska Gal
You are my first transplant buddy that I remember who seemed interested in hearing more about muscle testing :-)

A few months ago, I bought a blend of cod liver oil, coconut oil, skate oil and butter oil because I had trouble with the various vitamin D supplements that I tried. Since my vitamin D level was extremely low, I had to take in large amount of vitamin D daily. I would first test strong to the D via muscle testing and then a few days later, I started to feel like I was detoxing or had an extremely tired feeling. I then tested very WEAK to the D. I would take out various bottles that looked like the D and closed my eyes when muscle testing and sure enough after conducting my own sort of like (double blind study) each time I would test weak to the bottle of Vitamin D. I have tried this on and on for over a year.

That is when I thought I would try the coconut oil blend as mentioned above because the blend was high in Vitamin D. After three months which was last week, I started to feel that Vitamin D feeling tired feeling again. I of course tested weak to the blend of Coconut oil. I stopped taking it for a few days and my energy returned. All my vitamin levels improved including the D but not as much as I wanted for the D.

The day I did the muscle test to the oil, I also held Prograf and the coconut blend in my right hand against my body and tested weak. It is very possible that the Prograf interacts with all of these oils and it would not surprise me at all.

After all, magnesium is depleted by prograf and it would not surprise me at all if too much magnesium could deplete Prograf.

When muscle testing, it is important to stand correctly or else you can get a wrong answer.

Muscle testing has nothing to do with effectiveness of a drug. You are asking your body a question via energy from a product that you are holding.

If you were to hold a bottle of coke (it is a good idea to place any heavy object you are holding on a table). Touch the object and however you muscle test, ask yourself is this good for me? If your body accepts this product you will feel or see your muscle responding with strength.

There are various videos on youtube on energy testing or muscle testing. You can also look up sway testing. I feel it is good to know because like you wanted to try L-lysine and not sure and how often does a drug company test vitamins and minerals?

Most recently, I felt I needed additional Magnesium. I think the reason for this was the coconut oil blend that is high in Vitamin D depletes magnesium. Not sure but Vitamin D depletes magnesium and that is true.

My Prograf level was also low and I am pointing my finger to too much magnesium. Through muscle testing I test strong when I need the magnesium and test weak when my body had enough.


I then realized that It is not normal to take so much magnesium like I have been taking and that is when I remembered how much Magnesium Oil helps me. Magnesium oil is used topically and works sort of instantly.
I was using it incorrectly in the past but now I apply it to my feet, arms, legs, back and stomach and now I only need 400 mg of vitamin D orally and I am taking five sprays all over my body three times per day. Since this is a new thing I am doing I cannot say what I will be doing in the future. 400 mg of magnesium is a normal amount to take orally vs. 2000 mg which I was taking. Too much magnesium can become acidic.

I slept well last night, I have my energy back and all is good. I will be repeating my Prograf level next week and I am sure there will be a big improvement. I am also taking the coconut oil mid day and decreased the amount but did order a cod liver oil to take with it. I am also using Cod liver oil on my feet. If the magnesium works topically perhaps I will be able to soak in the Vitamin D through my feet.

Mothers rub cod liver oil on their babies feet and bum :-)

If what I am doing will work, I will be a very happy camper.

I hope you understand what I shared :-)
CF- dx at 2yrs. 2nd double lung tx-05 JMH
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Hostess Risé
Board Administrator
Username: Rise

Post Number: 17997
Registered: 05-2003


Posted on Friday, January 31, 2014 - 05:41 pm:   Edit Post Delete Post Print Post

Here is a link to energy testing
https://www.youtube.com/watch?v=FX0iY6zuBHc

I love Donna Eden!
CF- dx at 2yrs. 2nd double lung tx-05 JMH
My Photos on Transplant Friends

Facebook-TransplantBuddiesfriends

Twitter-transplantbuds

Contact: transplantbuddies@gmail.com
Hostess Risé
Board Administrator
Username: Rise

Post Number: 17998
Registered: 05-2003


Posted on Friday, January 31, 2014 - 05:44 pm:   Edit Post Delete Post Print Post

in Donna Eden's book, she talks about the spleen indicator test which I prefer because you are testing against the spleen meridian (immune system) which I believe is more accurate for a transplant patient.

If you have a weak shoulder, the test she demonstrates might give you a weak answer when it could be your shoulder instead of the object that you are testing.
CF- dx at 2yrs. 2nd double lung tx-05 JMH
My Photos on Transplant Friends

Facebook-TransplantBuddiesfriends

Twitter-transplantbuds

Contact: transplantbuddies@gmail.com
Hostess Risé
Board Administrator
Username: Rise

Post Number: 17999
Registered: 05-2003


Posted on Friday, January 31, 2014 - 05:46 pm:   Edit Post Delete Post Print Post

Here is a blog on this forum where I shared my experience regarding Energy Medicine.
http://www.transplantbuddies.org/tbx/messages/29187/11510.html?1370803119
CF- dx at 2yrs. 2nd double lung tx-05 JMH
My Photos on Transplant Friends

Facebook-TransplantBuddiesfriends

Twitter-transplantbuds

Contact: transplantbuddies@gmail.com

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