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Hostess Rise'
Forum Leader
Username: Risa

Post Number: 12123
Registered: 05-2003
Posted on Monday, January 18, 2010 - 02:17 pm:   Edit Post Delete Post Print Post

Hi, I have a special favor to ask. After you read this paragraph below, Please post your response here and I will send Patty her replies.

Hello everyone...Hi Rise' that picture I've loaded is one of my grandbabies. I have 2...so far. Rochelle 10 and the little one in the pix is Allison (Ally) 3. I myself have four kids. 2 of each. I suffer from empty nest.
I am waiting for a liver transplant. I have a question to pose to others. Has anyone allowed one of their children to donate? I can't and won't. My eldest daughter Kimo keeps asking why. I know why I can't, but I'd like to here from someone who has.
Sincerely,
Patty K
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05 JMH
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Chad
Member
Username: Horace_mann

Post Number: 80
Registered: 12-2008
Posted on Monday, January 18, 2010 - 09:20 pm:   Edit Post Delete Post Print Post

Given the fact that I now have just one kidney I'm certain any one of my three children would step forward to donate should that one kidney fail and I'd be ok with them doing that. Volunteering and actually matching/being a suitable donor are two very different things. I'd do it for them, as would their mother. Turnabout is fair play right?

As far as allowing them to do so - probably the biggest factor would be my age... but don't ask me how old is too old. Fifty-years-old? Sure, let's do it! Ninety-years-old? Nope, life has been good to me and it's time to call it quits. There's a lot of gray area in between and who can put a value on a life lengthened by any amount of time?

After age it would be the quality of post transplant life. Would my quality of life return to normal with a transplant or briefly postpone the inevitable while dealing with other health issues.

On either side I would want such decisions to rely on the hand of providence rather that what makes logical and/or corporeal sense.
Chad - non-directed kidney donor Oct. 2007
BreathinSteven
Forum Leader
Username: Breathinsteven

Post Number: 1934
Registered: 11-2004
Posted on Monday, January 18, 2010 - 10:03 pm:   Edit Post Delete Post Print Post

Hi Rise'!

As you know -- both of my lungs were from a deceased donor... However, I've met hundreds of recipients and donor family members at various talks I've given and functions I've attended -- and I've met numerous living donors and recipients... Far more kidneys than livers, but I've met some livers too... And some of those liver situations have been where children have donated to their parents... (As well as siblings donating to one another, like Dawn & Anthony...)

Patty's children are adults (I'm assuming so because at least some of them have provided her with grandchildren, one of whom is approaching her teens...) I don't know how old her daughter Kimo is, who seems to be offering -- but I would assume that her children would like Patty to be around for her grandchildren, as well as themselves... Patty is adamant that she can't and won't accept this gift from one of her children -- and she says "I know why I can't..." I think some of us would like to be enlightened by her reasoning...

There is no question that one of the reasons may be the fact of putting the life of her child at risk, when that child is trying to save their Mom's life -- I would imagine that many, maybe most parents would have that issue... Is that what Patty's dealing with? Or is it some other reason...

I hope Heather will pick up on this about donating to her Dad...

Would the length of the wait cause Patty to reconsider??? Because it is a sad fact that a donor liver simply may never become available -- over 6,000 people die each year in the USA waiting for an organ... Depending on her MELD and other variables, she may be listed an awful long time, and other aspects of her health may deteriorate... Would she consider waiting and hoping for "the call", but then if things go on too long, then consider taking the gift her daughter is offering??? Could that approach satisfy both mother and daughter?

I hope Patty gets some answers she wants here...

Love, Steve
Steve
CF, Dbl-Lung Recip April 2000
www.ClimbingForKari.org
www.ReviveHope.com

http://www.youtube.com/SteveFerkau
Heather
Forum Leader
Username: Heather

Post Number: 2735
Registered: 05-2003
Posted on Tuesday, January 19, 2010 - 11:04 am:   Edit Post Delete Post Print Post

I donated to my dad.
Heather

Forum Leader - Living Organ Donation
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago

DONATE LIFE
surviver
Member
Username: Intlmech

Post Number: 22
Registered: 05-2011
Posted on Saturday, August 06, 2011 - 04:02 pm:   Edit Post Delete Post Print Post

not from my kids.my thought is that they are a part of me that under no circumstances would i risk,they have a whole lot of life left,and mine is winding down(58),i've seen the best and worst (war) of the world.now is there time and they,my 2 boys and there families,have a lot to give this world yet.besides i could never forgive myself if something went wrong,i wouldn't let my wife donate part of her liver to me same goes w/my children.
transplanted june 2008

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