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Cass
Member
Username: Cassq
Post Number: 816
Registered: 06-2006
| | Posted on Friday, February 05, 2010 - 12:05 am: | 
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Got a letter from our transplant center yesterday asking me to fill out a questionnaire, to arrive shortly, for a research project concerning my "medical care and general health" since donating.
Wondered if anyone else got such a request, or if this is just for Saint Barnabas. I've been absent for a bit, so forgive me if I missed an earlier posting on the subject.
Cass
Kidney donor to hubby Mike, 12/2000. St. Barnabas, Livingston, NJ
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Chad
Member
Username: Horace_mann
Post Number: 86
Registered: 12-2008
| | Posted on Friday, February 05, 2010 - 10:24 am: |
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I've received surveys from my transplant center about every six months for the past two years. It seems with more recent transplants hospitals have become more concerned and interested in the post transplant health of donors. That's a good thing! Following and reporting on such information will certainly increase the number of people who will consider being a living donor.
| Chad - non-directed kidney donor Oct. 2007 |
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Cass
Member
Username: Cassq
Post Number: 818
Registered: 06-2006
| | Posted on Friday, February 05, 2010 - 11:14 pm: |
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Glad your center is keeping tabs, Chad. This is the first peep I've heard from our center since I donated more than nine years ago.
Cass
Kidney donor to hubby Mike, 12/2000. St. Barnabas, Livingston, NJ
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Heather
Forum Leader
Username: Heather
Post Number: 2754
Registered: 05-2003
| | Posted on Friday, February 05, 2010 - 11:21 pm: |
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never heard a word from mine in 10 years
Heather
Forum Leader - Living Organ Donation
EC Illinois, USA
Kidney donor to dad 12/1/99
Rush-Presbyterian-St. Lukes, Chicago
DONATE LIFE |
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LadyDi
Forum Leader
Username: Ladydi
Post Number: 2139
Registered: 03-2008
| | Posted on Saturday, February 06, 2010 - 07:01 am: |
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None from mine either. I will give them credit - whenever we go to Cisco's appointments they at least remember that I donated and always ask if I am doing okay or if I have any problems. His coordinator is always a sweetie and asks after me too.
Kidney Donor to Husband 10/30/07
Forum Leader-Living Organ Donation
Barnes Jewish Hospital St. Louis, Mo
I walk slowly, but I never walk backward - Abraham Lincoln |
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One less kidney
Member
Username: One_less_kidney
Post Number: 7
Registered: 10-2009
| | Posted on Monday, February 08, 2010 - 06:16 pm: |
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I rcv'd a questionaire from the transplant center right after, haven't heard a word from them since. The questionaire mostly had to do with the "business" end of things...Was I treated nice, would I recommend the facility..blah blah blah...No follow-up with me since then at all. |
Chad
Member
Username: Horace_mann
Post Number: 88
Registered: 12-2008
| | Posted on Tuesday, February 09, 2010 - 10:13 am: |
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I'll add the questionnaire was about my physical AND mental health and ability to return to pre-transplant activities. Physically my body has known no difference with one verses two kidneys but I'm pretty much crazy as ever  ... not much they can do for that.
| Chad - non-directed kidney donor Oct. 2007 |
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Liver Giver
Forum Leader
Username: Beteboop
Post Number: 697
Registered: 10-2007
| | Posted on Wednesday, February 10, 2010 - 10:47 am: |
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I am in a mandatory 5 year life study which is conducted at 1 month, 6 months, then annually after donation.
The questions are repetitive and most don't really apply to life now. For example: how much money was spent on transportation during the testing and donation time. I don't even remember that anymore.
Dawn
Forum Leader Living Organ Donation
Liver Donor 11/19/07 to brother Anthony
Good and bad things happen in life, but what matters, what defines us, is how we handle them |
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Cass
Member
Username: Cassq
Post Number: 821
Registered: 06-2006
| | Posted on Wednesday, March 03, 2010 - 12:05 am: |
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Got the questionnaire, sent it back.
It was pretty much as you describe, Dawn. Lots of questions about the business end, although I do think that's very important, because the financial burden on the donor (and potentially the donor's family) is something that almost every donor has to consider.
But in this questionnaire, they didn't really ask the right questions, so in the "other comments" section I gave them an essay.
Cass
Kidney donor to hubby Mike, 12/2000. St. Barnabas, Livingston, NJ
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Liver Giver
Forum Leader
Username: Beteboop
Post Number: 714
Registered: 10-2007
| | Posted on Wednesday, March 03, 2010 - 08:54 pm: |
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lol.. I did the same thing! 
donor minds think alike!
Dawn
Forum Leader Living Organ Donation
Liver Donor 11/19/07 to brother Anthony
Good and bad things happen in life, but what matters, what defines us, is how we handle them |
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